What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?

Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?
Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
<a></a>Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in!  Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information! 

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, &lsquo;live&rsquo; march 4th wherever you tune in!&nbsp; Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!&nbsp;

Pulmonary Fibrosis Podcast

WELCOME to our Pulmonary Fibrosis Podcast!

Our monthly podcasts encompass a wide range of valuable topics for patients and families living with pulmonary fibrosis.

Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

WELCOME to our Pulmonary Fibrosis Podcast!
Our monthly podcasts encompass a wide range of valuable topics for patients&nbsp;and families living with pulmonary fibrosis.
Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

Pulmonary Fibrosis Ep 35 - Marie Conley of PARDAC - Pennsylvania Rare Disease Advisory Council

How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD?

Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD!

It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD?
Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD!
It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 40 - Veterans and ILD

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease?

Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there!

It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease?
Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there!
It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 39 - Role of a Research Coordinator in Clinical Trials

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease?

How does the family dynamic help in managing this part of one diagnosis?

Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease?
How does the family dynamic help in managing this part of one diagnosis?
Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 35 - Marie Conley of PARDAC - Pennsylvania Rare Disease Advisory Council

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