Pulmonary Fibrosis - Ep 57 - The Role of a Specialty Pharmacy with Orsini Specialty Pharmacy

What is a specialty pharmacy, and how is it different from the pharmacy most people use down the street? Why are pulmonary fibrosis medications like Ofev, Esbriet, and Jascayd dispensed through a specialty pharmacy instead of a retail pharmacy? Mona Patel and Shoban Joseph of Orsini - Rare Diseas…

Pulmonary Fibrosis - Ep 56 - Pulmonary Hypertension and ILD

For a patient already diagnosed with ILD, how and why does pulmonary hypertension often develop as a secondary condition? What are the 'red flags' symptoms patients look for that might suggest they have Pulmonary Hypertension or their PH is worsening independently of their underlying lung disease?…

Pulmonary Fibrosis - Episode 55 - Genetics and ILD

What is a gene and what role does it play in our bodies? What exactly is a genetic mutation, and how can it lead to Pulmonary Fibrosis? Dr. Shruti Mitkus, Geneticist, Rare Disease Educator and Patient Advocate joins @crockettonair to discuss the correlation between genetics and ILD in the PULMONA…

Pulmonary Fibrosis - Episode 54 - GERD and ILD with Dr. Waqas Bhatti

What is the connection between GERD & ILD? Is GERD believed to contribute to the progression of lung fibrosis, or is it more of a coexisting condition? What symptoms should patients or caregivers be aware of? Dr. Waqas Bhatti of UPMC joins host Kevin Crockett (@crockettonair) to discuss the rela…

Pulmonary Fibrosis - Episode 53 - Progressive Pulmonary Fibrosis (PPF) with Dr. Ayushi Lalwani of Temple Health

How is progressive pulmonary fibrosis (PPF) defined clinically? How can that be translated for a patient, care partner, or family? Dr. Ayushi Lalwani of Temple Health joins host @crockettonair to discuss PPF in this episode of the Pulmonary Fibrosis podcast! Brought to you by the Wescoe Foundati…

Wescoe Lung Transplant Podcast - Ep 1 - Dr Rachel Criner of Temple Health

Is a lung transplant a part of your journey with ILD?! Then we hope this podcast can give you great insight and information! For patients newly beginning the lung transplant journey, what are the most important things they should understand about timing, evaluation, and referral? Hosts Kevin Croc…

Pulmonary Fibrosis - Episode 52 - Nutrition and ILD

Why is nutrition an important part of managing overall health for someone living with ILD or PF? Whether it be hydration, unexpected side effects from medication or even weight fluctuation, your nutritional choices can help make a big impact! Lori Flint, a Registered Nurse and Support Group Leade…

Pulmonary Fibrosis - Episode 51 - Fatigue and ILD with Dr. Valeria Santibanez

Why is fatigue such a significant part of ILD? What practical strategies, medical or lifestyle, have you seen make the biggest difference in helping patients manage fatigue? Dr. Valeria Santibanez, who specializes in Pulmonology and Pulmonary Critical Care at Jefferson Health, joins the show to d…

Pulmonary Fibrosis - Ep 50 - Bridging the Gap - Connecting the PF Community to Support Groups

How do support groups complement medical care for conditions like Pulmonary Fibrosis? How does connecting with others living with Pulmonary Fibrosis help reduce anxiety, depression, or fear? How can support groups help patients prepare for conversations with their healthcare team? Jen Wescoe joi…

Pulmonary Fibrosis - Ep 49 - Introduction to Mindfulness - The Science of Stress

What happens in the body when we experience stress? Why is it especially important to talk about stress and mindfulness in the context of living with Pulmonary Fibrosis? Kim Hopkins, the Executive Director of the Shanthi Project, and Sarah Dennehy - Senior Director of Programs at the Shanthi Proj…