What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?

Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?
Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
<a></a>Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in!  Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information! 

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, &lsquo;live&rsquo; march 4th wherever you tune in!&nbsp; Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!&nbsp;

Pulmonary Fibrosis Podcast

WELCOME to our Pulmonary Fibrosis Podcast!

Our monthly podcasts encompass a wide range of valuable topics for patients and families living with pulmonary fibrosis.

Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

WELCOME to our Pulmonary Fibrosis Podcast!
Our monthly podcasts encompass a wide range of valuable topics for patients&nbsp;and families living with pulmonary fibrosis.
Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

Pulmonary Fibrosis Ep 35 - Marie Conley of PARDAC - Pennsylvania Rare Disease Advisory Council

The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers.

Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers.
Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>! Find this podcast wherever you get your podcasts!
Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

Pulmpnary Fibrosis Ep 44 - A Lung Transplant Journey

What is the difference between Palliative Care & Hospice, and why important to discern the difference?!

Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey.

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

What is the difference between Palliative Care &amp; Hospice, and why important to discern the difference?!
Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey.
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>! Find this podcast wherever you get your podcasts!
Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

Pulmonary Fibrosis Ep 43 - Advancing Palliative Care to Better Care for Patients with Serious Illness

Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF.

This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you can participate in the studies!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF.
This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you can participate in the studies!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

Pulmonary Fibrosis Ep 35 - Marie Conley of PARDAC - Pennsylvania Rare Disease Advisory Council

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