Pulmonary Fibrosis Ep 39 - Role of a Research Coordinator in Clinical Trials

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease? Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there! It's the 'Pulmonary Fibrosis' podcast! Hoste…

Pulmonary Fibrosis Ep 38 - Spirituality and ILD

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease? How does the family dynamic help in managing this part of one diagnosis? Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discus…

Pulmonary Fibrosis Ep 37 - Pulmonary Rehab With David Junga, RRT, PAS

What is Pulmonary rehab? How has rehab changed thanks to the virtual world? This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation…

Pulmonary Fibrosis Ep 36 - Rural Healthcare and ILD

What defines a "rural" area? What step has to been taken to assess rural healthcare & ILD needs? Find out in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! This episode, we're joined by Dr. T…

Pulmonary Fibrosis Ep 35 - Marie Conley of PARDAC - Pennsylvania Rare Disease Advisory Council

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey? Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibro…

Pulmonary Fibrosis Ep 34 - 'Walk a mile in my shoes' - Discussing Patient Engaged Research

What is Patient Engaged Research? What is PCORI? Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF. It's the 'Pulmonary Fibrosis' …

Pulmonary Fibrosis Ep 33 - Dr. Aberdeen Allen Discusses the Patient Voice Experience With ILD Guidelines

Delightful. That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen! Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pu…

Pulmonary Fibrosis Ep 32 - Dr. Sindhu Johnson Discusses ILD Guidelines

What are ILD guidelines? How are they developed, and what major role do patients play in the process? Dr. Sindhu Johnson of the University of Toronto joins Crockett to discuss the ins-and-outs of ILD guidelines in this episode of the Pulmonary Fibrosis podcast! Brought to you the Wescoe Foundatio…

Pulmonary Fibrosis Ep 31 - Jen Wescoe Looks Back at 2023 - and Forward to 2024

What a year it was! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss the wonderful and enlightening moments of 2023, and what exciting things are in store for 2024 in the Pulmonary Fibrosis podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis…

Pulmonary Fibrosis Ep 30 - Dr. Gautam George Discusses the Role Nutrition Plays in ILD

What role does nutrition play for patients and caregivers battling ILD? Dr. Gautam George of Jefferson Health joins Crockett to discuss how one can prioritize their nutrition on a daily basis, specific foods that can help, and the role calories play! It's the 'Pulmonary Fibrosis' podcast! Brought…