What is UNOS? And what role do they play for a patient waiting for a lung transplant?

Dr. Marie Budev of the Cleveland Clinic, and the OPTN Lung Transplantation Committee Chair joins the PULMONARY FIBROSIS podcast to discuss these questions and more!

Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!!

Find the PULMONARY FIBROSIS podcast wherever you get your podcasts!!

What is UNOS? And what role do they play for a patient waiting for a lung transplant?
Dr. Marie Budev of the Cleveland Clinic, and the OPTN Lung Transplantation Committee Chair joins the PULMONARY FIBROSIS podcast to discuss these questions and more!
Brought to you by the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZWCD-zU9BBVdmc5whBLrl3Lo_XT51-8pzRBb_ke2jVPBroqmP48z6iB3kSn34EunJNr8LtWpYOdRCktu747cQrMyy5lLNVVjylaWRZmZHAjRk2COajS5Um2Mc2neE6NIEM&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a> and the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZWCD-zU9BBVdmc5whBLrl3Lo_XT51-8pzRBb_ke2jVPBroqmP48z6iB3kSn34EunJNr8LtWpYOdRCktu747cQrMyy5lLNVVjylaWRZmZHAjRk2COajS5Um2Mc2neE6NIEM&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> - learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR3bpdPzywHjiMqym4KNRbjXHZ0aYdzIBdzeH7-fMtzLtkGE_aHvJyHo_ns">paipfsupportnetwork.org</a>!!
Find the PULMONARY FIBROSIS podcast wherever you get your podcasts!!

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in!  Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information! 

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, &lsquo;live&rsquo; march 4th wherever you tune in!&nbsp; Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!&nbsp;

Pulmonary Fibrosis Podcast

WELCOME to our Pulmonary Fibrosis Podcast!

Our monthly podcasts encompass a wide range of valuable topics for patients and families living with pulmonary fibrosis.

Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

WELCOME to our Pulmonary Fibrosis Podcast!
Our monthly podcasts encompass a wide range of valuable topics for patients&nbsp;and families living with pulmonary fibrosis.
Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

Pulmonary Fibrosis Ep 26 - Dr. Marie Budev Discusses UNOS and Organ Transplants

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?

Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey?
Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast!
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
<a></a>Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 35 - Marie Conley of PARDAC - Pennsylvania Rare Disease Advisory Council

What is Patient Engaged Research? What is PCORI?

Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF.

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is Patient Engaged Research? What is PCORI?
Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF.
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
<a></a>Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 34 - 'Walk a mile in my shoes' - Discussing Patient Engaged Research

Delightful.

That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen!

Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

Delightful.
That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen!
Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
<a></a>Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 26 - Dr. Marie Budev Discusses UNOS and Organ Transplants

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