What is Patient Engaged Research? What is PCORI?

Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF.

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is Patient Engaged Research? What is PCORI?
Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF.
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
<a></a>Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in!  Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information! 

What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, &lsquo;live&rsquo; march 4th wherever you tune in!&nbsp; Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!&nbsp;

Pulmonary Fibrosis Podcast

WELCOME to our Pulmonary Fibrosis Podcast!

Our monthly podcasts encompass a wide range of valuable topics for patients and families living with pulmonary fibrosis.

Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

WELCOME to our Pulmonary Fibrosis Podcast!
Our monthly podcasts encompass a wide range of valuable topics for patients&nbsp;and families living with pulmonary fibrosis.
Tune In and learn more from renowned pulmonary specialists in Pennsylvania!

Pulmonary Fibrosis Ep 34 - 'Walk a mile in my shoes' - Discussing Patient Engaged Research

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease?

Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there!

It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease?
Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there!
It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 39 - Role of a Research Coordinator in Clinical Trials

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease?

How does the family dynamic help in managing this part of one diagnosis?

Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.

Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease?
How does the family dynamic help in managing this part of one diagnosis?
Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett.
Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 38 - Spirituality and ILD

What is Pulmonary rehab? How has rehab changed thanks to the virtual world?

This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!

Learn more at PAIPFsupportnetwork.org!

What is Pulmonary rehab? How has rehab changed thanks to the virtual world?
This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab!
It's the 'Pulmonary Fibrosis' podcast! Brought to you the <a href="https://www.facebook.com/WescoeFoundationforPF?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Wescoe Foundation for Pulmonary Fibrosis</a> and the <a href="https://www.facebook.com/paipfsupportnetwork?__cft__[0]=AZU4kh3P7_qMquCQALqbvxyh88KDvgg5ZhUNr1AWh-MEooGsdSqfHcUnECdA-mtwGMeLhb6WzuzZmvuTuY7utHtfGdWj1_z7C1hZ-sZhTPsretQRrmf35t3RTXhZ-4k3rc_vlKOUOk9o1KRKwBXirb1KR8zop67RTrcELozdDSGXuR-rxWKbPFktN0nVARjvS9E&amp;__tn__=-]K-R">Pennsylvania IPF Support Network</a>!
Learn more at <a href="http://paipfsupportnetwork.org/?fbclid=IwAR0cS3s-yc-TzJ9oGhzcpVzDNuWHZBYbZBTSTHFswQYGs92ZsxFlDVvQXfA">PAIPFsupportnetwork.org</a>!

Pulmonary Fibrosis Ep 34 - 'Walk a mile in my shoes' - Discussing Patient Engaged Research

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