Flying Through Fog: A Podcast for PANS/PANDAS Caregivers
Flying Through Fog: A Podcast for PANS/PANDAS Caregivers
When infections or other factors trigger autoimmune responses that attack your child's brain, families find themselves navigating an invisible storm. They seek out care, but often even clinicians wanting to help may not know how. Flying Through Fog brings clarity to the complex world of PANS/PANDAS through real stories, expert insights, and practical guidance. Tune in weekly for conversations wit…Social links:
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A Light in the Fog: Parents Share Their PANS/PANDAS Stories of Hope
When you're in the darkest moments of your PANS/PANDAS journey—when your child is a shell of themselves, when every day feels like surviving an impossible storm—it's hard to imagine that things will ever get better. But they can. And they do. For the final episode of Season 1, hosts Krystal Vivian…
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School Refusal and Doctor Refusal: Understanding PANS/PANDAS Behaviors
Your child is screaming in the car, refusing to go to school. Or they're hiding under their bed, terrified of another doctor's appointment. You know something is deeply wrong, but from the outside, it just looks like defiance. Welcome to one of the most misunderstood aspects of PANS/PANDAS: refusal…
1:01:10
Siblings, Schools, and Friends: Navigating PANS/PANDAS Conversations With Kids
One of the hardest parts of a PANS/PANDAS diagnosis isn't just getting the diagnosis—it's figuring out how to talk about it. How do you explain to your child that their brain is under attack by their own immune system? What do you tell siblings who've been walking on eggshells for months? And how m…
47:06
How Mold Testing Changed Everything for One PANS/PANDAS Family
What do you do when you've tried everything—antibiotics, therapy, multiple specialists—and your children are still struggling? For Tricia, the answer came from an unexpected place: her own home. In this episode, we sit down with Tricia, a teacher and mom of two kids with PANDAS, whose five-year di…
53:16
Understanding Flares: Stanford Study Research Reveals Four PANS/PANDAS Course Patterns
For years, parents have been told their observations about their child's PANS/PANDAS symptoms don't match the "typical" pattern—leaving them confused, doubting themselves, and struggling to get proper treatment. But what if there isn't just one typical pattern? What if your child's unique journey i…
46:24
Navigating Insurance Denials: How Claimable is Helping PANS/PANDAS Families Win Appeals
Getting a PANS/PANDAS diagnosis is only half the battle—the other half is fighting insurance companies for treatment coverage. In this episode, Krystal and Lindsey sit down with Dr. Warris Bokhari, co-founder of Claimable, an AI-powered platform that's helping families overturn insurance denials f…
1:12:22
When Strep Hijacks Your Child's Brain: One Family's PANDAS Journey
What happens when a simple strep infection transforms your child into someone you don't recognize? Flying Through Fog dives deep into the hidden world of PANS/PANDAS — a condition where common infections trigger autoimmune responses that attack the brain, causing sudden personality changes, severe…
51:19