What is it like to have PANDAS in college? Abby is a freshman in Minnesota, twelve hours from home, playing Division II volleyball and working toward vet school. She's also managing a PANS/PANDAS diagnosis she didn't receive until her junior year of high school, which meant most of her life was spent coping without a name for what was happening to her.
Your Flying Through Fog hosts Krystal Vivian, Lindsey Forsyth, and Angela Henry talk with Abby about what a flare actually looks like for her, which is quiet and solitary rather than the raging many parents expect. She walks through the two flares she had during her first semester away, deciding whether to tell her coach and her teammates, and which part of her treatment has helped her most. She also answers the question a lot of parents of newly diagnosed kids are afraid to ask out loud: what does this look like when my child is grown?
This is our first episode of season 2 of Flying Through Fog. We're so glad you're flying with us.
RESOURCES:
Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts
Claimable https://www.getclaimable.com/
PANDAS Michiana https://pandasmichiana.com/
PANDAS Physician Network https://www.pandasppn.org/
PANDAS Network https://pandasnetwork.org/understanding-pandas/
Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae
National PANDAS/PANS Youth Alliance https://www.nationalpandasyouthalliance.org/home
PANDAS PARENTS Facebook Group https://www.facebook.com/groups/461708653853619
ASPIRE PANS PANDAS Advocacy, Community & Support Aspire
Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions
Mind Global Council https://www.mindglobalcouncil.com/
OCD Family Podcast https://www.ocdfamilypodcast.com/
Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/
Parenting Resources:
Dr. Ross Greene https://drrossgreene.com/
Dr. Becky Kennedy https://www.goodinside.com/about/
Dr. Dan Siegel https://drdansiegel.com/
Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/

Why Kids Hide Their OCD Thoughts for Years: Lynn and Brady's Story
1:09:15

When Autism and PANDAS Overlap: Madi's Story
44:22

A Light in the Fog: Parents Share Their PANS/PANDAS Stories of Hope
41:56