4BC Afternoons with Carla Bignasca4BC Afternoons with Carla Bignasca

Why this toddler’s diagnosis is a 1-in-100,000 medical rarity

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Little Sunny Stroski is one of only three children in Queensland living with CLN2 Batten disease, a condition so rare that few people even know it exists.

His father, Jace, opened up to Carla about the realities of the disease and how a community-led GoFundMe is keeping them afloat.

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4BC Afternoons with Carla Bignasca

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