For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories is back for Season Five

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/c7d20eeb-7483-49ab-a6f8-b372012fe33c/transcript

When Dave was diagnosed with CIDP at 24, there was no roadmap for what came next. Nearly 25 years later, he found his own ways to adapt, advocate for himself, and keep moving forward. Now, he’s sharing what he learned with people just beginning that journey, in a world where living with CIDP looks very different than it did when his began.

When Dave was diagnosed with CIDP at 24, there was no roadmap for what came next. Nearly 25 years later, he found his own ways to adapt, advocate for himself, and keep moving forward. Now, he&rsquo;s sharing what he learned with people just beginning that journey, in a world where living with CIDP looks very different than it did when his began.

Dave: Then and Now with CIDP

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/a13c5907-88d4-4095-97ca-b4f8002b7b26/transcript

Living with antisynthetase syndrome, a subtype of myositis, means Waiyee’s care doesn’t fit neatly into one doctor’s office. She’s learned how to ask questions, keep multiple specialists connected, and advocate for what she needs. Along the way, she found an unexpected outlet in art and an online community that transformed her own search for support into a way to help others feel seen.

Living with antisynthetase syndrome, a subtype of myositis, means Waiyee&rsquo;s care doesn&rsquo;t fit neatly into one doctor&rsquo;s office. She&rsquo;s learned how to ask questions, keep multiple specialists connected, and advocate for what she needs. Along the way, she found an unexpected outlet in art and an online community that transformed her own search for support into a way to help others feel seen.

Waiyee: The Power of Connecting Your Myositis Care Team

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/847123c0-b21c-4110-a371-b4ea01444d79/transcript

Allison Foss was diagnosed with MG at just five years old. Join Martine Hackett as Allison looks back on a lifetime with MG and the remarkable changes she’s witnessed along the way, from a growing understanding of MuSK-positive MG to advances in treatment and care that continue to shape the road forward for people living with MG today.

Allison Foss was diagnosed with MG at just five years old. Join Martine Hackett as Allison looks back on a lifetime with MG and the remarkable changes she&rsquo;s witnessed along the way, from a growing understanding of MuSK-positive MG to advances in treatment and care that continue to shape the road forward for people living with MG today.

Allison: A Lifetime of Progress with MG

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/1f608271-bb2a-49ea-ba16-b4db010e6aee/transcript

Untold Stories is back for Season Five

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Untold Stories: Life with a Severe Autoimmune Condition

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