In this episode, host Naomi Creek and her guests discuss the early stages of Axial Spondyloarthritis (axSpA).

Cherie Cleland (70) lives with a non-specific form on axSpA. She has tried numerous treatments over the years and has developed other health conditions including inflammatory bowel disease and thyroid, kidney and heart issues. Cherie and her husband love travelling and cycling.

Shayne Van Der Heide (57) was diagnosed with ankylosing spondylitis at age 30 but felt very isolated with little support from his doctors. Shayne later had spinal surgeries and developed Parkinson’s disease. He lives a full life spending time with his family, managing a training organisation and cycling for exercise and enjoyment.

Cherie and Shane share their long diagnosis and treatment journeys and the impact of axSpA on their lives. They emphasise the importance of good doctor-patient communication and of getting quality information and support to help them feel less overwhelmed and alone.

Dr Michael Yoon is a rheumatologist at Campbelltown Hospital in Sydney, NSW, with a special interest in axial spondyloarthritis (axSpA). His passion for patient-centered care and clinical research drives his continuous efforts to enhance treatment approaches.

Dr Yoon explains the challenges of diagnosing axSpA as there is no definitive test and symptoms are similar to those of other conditions. Doctors rely on a mix of tests, imaging and clinical judgement. Treatment can range from anti-inflammatories to medications that suppress the immune system, along with exercise and lifestyle adjustments.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This third season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website at creakyjoints.org.au