In our second episode, Naomi chats with Julie Norris, who lives in rural Victoria and whose life has been profoundly shaped by resilience, compassion and advocacy. Living with lupus for more than 34 years, she has navigated the daily challenges of a chronic illness while raising her son as a single parent.

Julie shares her challenging diagnosis journey and emphasizes the importance of self-efficacy, symptom tracking, and why understanding your blood tests can help make your treatment journey smoother. She also highlights how a new immunotherapy treatment has significantly improved her quality of life. Julie goes on to discuss her memoir, Shattered Silence: Reclaiming My Voice, which documents her lived experience and advocacy for better patient empowerment and communication among healthcare providers.

Julie’s story is one of survival and renewal, and she continues to use her voice to empower others, reminding them that they are not alone and that together, communities can create lasting change.

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This fourth season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from AstraZeneca.

For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

In our second episode, Naomi chats with Julie Norris, who lives in rural Victoria and whose life has been profoundly shaped by resilience, compassion and advocacy. Living with lupus for more than 34 years, she has navigated the daily challenges of a chronic illness while raising her son as a single parent.
Julie shares her challenging diagnosis journey and emphasizes the importance of self-efficacy, symptom tracking, and why understanding your blood tests can help make your treatment journey smoother. She also highlights how a new immunotherapy treatment has significantly improved her quality of life. Julie goes on to discuss her memoir, Shattered Silence: Reclaiming My Voice, which documents her lived experience and advocacy for better patient empowerment and communication among healthcare providers.
Julie&rsquo;s story is one of survival and renewal, and she continues to use her voice to empower others, reminding them that they are not alone and that together, communities can create lasting change.
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
This fourth season of Patient&nbsp;PrepRheum&nbsp;is produced by the non-profit&nbsp;Global Healthy Living Foundation,&nbsp;its arthritis patient community&nbsp;CreakyJoints Australia, and made possible with support from AstraZeneca.
For more information, visit the CreakyJoints Australia website at <a href="creakyjoints.org.au">creakyjoints.org.au</a>

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.

At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 

In Patient PrepRheum, we are looking at three key areas:
Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;
How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and
the importance of good patient-doctor communication.

Hosted by CreakyJoints Australia National Coordinator Naomi Creek. 

For more information, visit the CreakyJoints Australia website.

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.
At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health.&nbsp;
In Patient PrepRheum, we are looking at three key areas:
<ol>
<li>Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;</li>
<li>How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and</li>
<li>the importance of good patient-doctor communication.</li>
</ol>
<ul></ul>
Hosted by CreakyJoints Australia National Coordinator Naomi Creek.&nbsp;
For more information, visit the CreakyJoints Australia website.

Patient PrepRheum Podcast

Patient PrepRheum is a podcast produced by Creakyjoints Australia exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. We speak to fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing autoimmune diseases.

At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 

Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit CreakyJoints Australia - https://creakyjoints.org.au/ or visit our facebook page https://www.facebook.com/creakyjoints

Patient PrepRheum is a podcast produced by Creakyjoints Australia exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. We speak to fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing autoimmune diseases.
At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 
<ul></ul>
Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit CreakyJoints Australia - <a href="https://creakyjoints.org.au/">https://creakyjoints.org.au/</a> or visit our facebook page https://www.facebook.com/creakyjoints

Patient PrepRheum

From Pain to Power – A Lupus Journey of Hope

In our first episode, host Naomi Creek discusses all things lupus with Professor Eric Morand, a Sir John Monash Distinguished Professor, a physician-scientist and Dean of the Sub-Faculty of Clinical and Molecular Medicine at Monash University. He is a clinical rheumatologist specialising in systemic lupus erythematosus (SLE) and is Head of the Monash Health Rheumatology Unit.

Professor Morand provides an insightful overview of lupus and its symptoms and shares the challenges of diagnosing and treating lupus due to its complex nature. He highlights the importance of achieving early diagnosis to minimise damage to body organs. Professor Morand also talks about the role of genetic factors and the need for patient self-efficacy and empowerment.

Their conversation covers treatment options for lupus including new targeted therapies, clinical trials and the potential of CAR T-cell therapy for achieving drug-free remission.

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This fourth season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from AstraZeneca.

For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

In our first episode, host Naomi Creek discusses all things lupus with Professor Eric Morand, a Sir John Monash Distinguished Professor, a physician-scientist and Dean of the Sub-Faculty of Clinical and Molecular Medicine at Monash University. He is a clinical rheumatologist specialising in systemic lupus erythematosus (SLE) and is Head of the Monash Health Rheumatology Unit.
Professor Morand provides an insightful overview of lupus and its symptoms and shares the challenges of diagnosing and treating lupus due to its complex nature. He highlights the importance of achieving early diagnosis to minimise damage to body organs. Professor Morand also talks about the role of genetic factors and the need for patient self-efficacy and empowerment.
Their conversation covers treatment options for lupus including new targeted therapies, clinical trials and the potential of CAR T-cell therapy for achieving drug-free remission.
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
This fourth season of Patient&nbsp;PrepRheum&nbsp;is produced by the non-profit&nbsp;Global Healthy Living Foundation,&nbsp;its arthritis patient community&nbsp;CreakyJoints Australia, and made possible with support from AstraZeneca.
For more information, visit the CreakyJoints Australia website at <a href="creakyjoints.org.au">creakyjoints.org.au</a>

A New Horizon for Treating Lupus

Naomi and her guests discuss ways to manage axSpA in daily life in this third episode of the season.

Janet Millner is an experienced physiotherapist and a valued member of the rheumatology team at the Royal Hobart Hospital in Tasmania. She has special interests in the management of spondyloarthritis and persisting musculoskeletal pain. Janet’s clinical role includes supporting people with complex rheumatological conditions to optimise their fitness and ability to function.

Janet emphasises the role of regular exercise in maintaining joint function and overall health. She acknowledges that exercise can be challenging for people with axSpA and discusses how it can be adapted to suit individual needs and preferences.

Naomi’s guests from the previous two episodes, Cherie Cleland and Shayne Van Der Heide, return to share their experiences of managing axSpA holistically. Along with Jane, they discuss various ways to keep moving, such as cycling, swimming and physiotherapy.

The guests also share tips on other lifestyle changes that can help people with axSpA, including using modified furniture and other aids, working from home, slowing down during flares and asking for help when needed. All believe that even doing a few minutes each day can make a difference.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This third season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

Naomi and her guests discuss ways to manage axSpA in daily life in this third episode of the season.
Janet Millner is an experienced physiotherapist and a valued member of the rheumatology team at the Royal Hobart Hospital in Tasmania. She has special interests in the management of spondyloarthritis and persisting musculoskeletal pain. Janet&rsquo;s clinical role includes supporting people with complex rheumatological conditions to optimise their fitness and ability to function.
Janet emphasises the role of regular exercise in maintaining joint function and overall health. She acknowledges that exercise can be challenging for people with axSpA and discusses how it can be adapted to suit individual needs and preferences.
Naomi&rsquo;s guests from the previous two episodes, Cherie Cleland and Shayne Van Der Heide, return to share their experiences of managing axSpA holistically. Along with Jane, they discuss various ways to keep moving, such as cycling, swimming and physiotherapy.
The guests also share tips on other lifestyle changes that can help people with axSpA, including using modified furniture and other aids, working from home, slowing down during flares and asking for help when needed. All believe that even doing a few minutes each day can make a difference.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to&nbsp;<a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
This third season of&nbsp;Patient&nbsp;PrepRheum&nbsp;is produced by the non-profit&nbsp;Global Healthy Living Foundation,&nbsp;its arthritis patient community&nbsp;CreakyJoints Australia, and made possible with support from&nbsp;UCB Australia.
For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

Managing Daily Life and Self-Care with axSpA

In episode 2 of this season, Naomi and her guests discuss the comorbidities associated with axial spondyloarthritis (axSpA).

Dr Arupam Raman is a rheumatologist at South by Southwest Specialists in Gledswood Hills, NSW. She also holds a Master of Medicine (Internal Medicine) from the University of Sydney, further strengthening her expertise in managing complex conditions and delivering evidence-based care. Dr Raman is actively involved in medical education and contributes to the ongoing development of rheumatology treatment approaches.

Dr Raman outlines the most common comorbidities associated with axSpA, including hypertension, obstructive sleep apnoea, fibromyalgia and depression. She looks at the role of inflammatory cytokines and risk factors in developing comorbidities and believes patients should be screened for such conditions so they can be managed proactively.

Naomi is also delighted to talk with Cherie Cleland and Shayne Van Der Heide from Episode 1 again. Cherie and Shayne both live with comorbid conditions and openly share how they manage these conditions alongside their axSpA. Finally, they reflect on the ups and downs of talking to family and friends about their conditions.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This third season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

In episode 2 of this season, Naomi and her guests discuss the comorbidities associated with axial spondyloarthritis (axSpA).
Dr Arupam Raman is a rheumatologist at South by Southwest Specialists in Gledswood Hills, NSW. She also holds a Master of Medicine (Internal Medicine) from the University of Sydney, further strengthening her expertise in managing complex conditions and delivering evidence-based care. Dr Raman is actively involved in medical education and contributes to the ongoing development of rheumatology treatment approaches.
Dr Raman outlines the most common comorbidities associated with axSpA, including hypertension, obstructive sleep apnoea, fibromyalgia and depression. She looks at the role of inflammatory cytokines and risk factors in developing comorbidities and believes patients should be screened for such conditions so they can be managed proactively.
Naomi is also delighted to talk with Cherie Cleland and Shayne Van Der Heide from Episode 1 again. Cherie and Shayne both live with comorbid conditions and openly share how they manage these conditions alongside their axSpA. Finally, they reflect on the ups and downs of talking to family and friends about their conditions. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to&nbsp;<a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
This third season of&nbsp;Patient&nbsp;PrepRheum&nbsp;is produced by the non-profit&nbsp;Global Healthy Living Foundation,&nbsp;its arthritis patient community&nbsp;CreakyJoints Australia, and made possible with support from&nbsp;UCB Australia.
For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

From Pain to Power – A Lupus Journey of Hope

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