In our third episode, Naomi is chatting with Simone Bye from New South Wales, who lives with psoriatic arthritis. Simone was diagnosed in 2018 and is a mum of two young children. She says the hardest part of her journey has been trialling and medically failing so many treatments, which has made it difficult to be the parent she wants to be for her kids. Despite these challenges, she is doing her best to manage her condition and get on with life.
Naomi is also joined by Sarah Comensoli from BJC Health in Sydney. Sarah has several roles there as a director, head of marketing and manager of the allied health team. She has been practising as an Accredited Exercise Physiologist since 2008 and has worked in a number of clinical and gym settings since then. Sarah has been instrumental in building the Exercise Physiology service at BJC Health to be one which is unmatched in delivering care to those with rheumatic disease.
Sarah shares her expertise in working with rheumatology patients and says there is no “one size fits all” approach in helping people keep fit and healthy. She explains how tailoring an exercise program is the key to success in getting patients engaged in better lifestyle habits. Simone discusses some of the ways her allied health team are helping her integrate techniques into her daily life so she can function more efficiently, physically and mentally.

Contact Us

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

This second season of PatientPrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website.

In our third episode, Naomi is chatting with Simone Bye from New South Wales, who lives with psoriatic arthritis. Simone was diagnosed in 2018 and is a mum of two young children. She says the hardest part of her journey has been trialling and medically failing so many treatments, which has made it difficult to be the parent she wants to be for her kids. Despite these challenges, she is doing her best to manage her condition and get on with life. Naomi is also joined by Sarah Comensoli from BJC Health in Sydney. Sarah has several roles there as a director, head of marketing and manager of the allied health team. She has been practising as an Accredited Exercise Physiologist since 2008 and has worked in a number of clinical and gym settings since then. Sarah has been instrumental in building the Exercise Physiology service at BJC Health to be one which is unmatched in delivering care to those with rheumatic disease. Sarah shares her expertise in working with rheumatology patients and says there is no “one size fits all” approach in helping people keep fit and healthy. She explains how tailoring an exercise program is the key to success in getting patients engaged in better lifestyle habits. Simone discusses some of the ways her allied health team are helping her integrate techniques into her daily life so she can function more efficiently, physically and mentally.
Contact Us
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
This second season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia. For more information, visit the CreakyJoints Australia website.

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.

At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 

In Patient PrepRheum, we are looking at three key areas:
Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;
How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and
the importance of good patient-doctor communication.

Hosted by CreakyJoints Australia National Coordinator Naomi Creek. 

For more information, visit the CreakyJoints Australia website.

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.
At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health.&nbsp;
In Patient PrepRheum, we are looking at three key areas:
<ol>
<li>Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;</li>
<li>How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and</li>
<li>the importance of good patient-doctor communication.</li>
</ol>
<ul></ul>
Hosted by CreakyJoints Australia National Coordinator Naomi Creek.&nbsp;
For more information, visit the CreakyJoints Australia website.

Patient PrepRheum Podcast

Patient PrepRheum is a podcast produced by Creakyjoints Australia exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. We speak to fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing autoimmune diseases.

At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 

Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit CreakyJoints Australia - https://creakyjoints.org.au/ or visit our facebook page https://www.facebook.com/creakyjoints

Patient PrepRheum is a podcast produced by Creakyjoints Australia exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. We speak to fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing autoimmune diseases.
At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 
<ul></ul>
Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit CreakyJoints Australia - <a href="https://creakyjoints.org.au/">https://creakyjoints.org.au/</a> or visit our facebook page https://www.facebook.com/creakyjoints

Patient PrepRheum

Psoriatic Arthritis: Self-Management and Getting on with Life

In this episode, Naomi is joined by two patients. Kay Boucker is from New South Wales and was diagnosed with psoriatic arthritis in 2013. Kay lived with psoriasis for many years before experiencing other symptoms like fatigue, tendon pain and uveitis. She said it took her GP a long time to be convinced about her PsA symptoms but she was finally referred to a rheumatologist. Kay also lives with type 2 diabetes and depression and says singing is her happy pill for helping her through life’s challenges.
Naomi’s second guest is Andrea McMahon from South Australia. Andrea was diagnosed with rheumatoid arthritis, Sjogren’s syndrome and fibromyalgia in 2010.  Then, four years ago, she presented to her rheumatologist with new symptoms of splitting nails and lower back pain. Shortly after that she was diagnosed with psoriatic arthritis. The ups and downs in her journey have taught her patience, pacing and resilience. Andrea remains optimistic for her future and continues her life with as much activity as she can.
Kay, Andrea and Naomi share their experiences and insights on managing psoriatic arthritis and living with chronic illnesses. They emphasise the importance of lifestyle factors, seeking knowledge, and finding support systems. Kay and Andrea discuss the impact of their conditions on their daily life, while offering practical advice and personal anecdotes to help others navigate the challenges of living with chronic conditions.

Contact Us

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

This second season of PatientPrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website.

In this episode, Naomi is joined by two patients. Kay Boucker is from New South Wales and was diagnosed with psoriatic arthritis in 2013. Kay lived with psoriasis for many years before experiencing other symptoms like fatigue, tendon pain and uveitis. She said it took her GP a long time to be convinced about her PsA symptoms but she was finally referred to a rheumatologist. Kay also lives with type 2 diabetes and depression and says singing is her happy pill for helping her through life’s challenges. Naomi’s second guest is Andrea McMahon from South Australia. Andrea was diagnosed with rheumatoid arthritis, Sjogren’s syndrome and fibromyalgia in 2010.  Then, four years ago, she presented to her rheumatologist with new symptoms of splitting nails and lower back pain. Shortly after that she was diagnosed with psoriatic arthritis. The ups and downs in her journey have taught her patience, pacing and resilience. Andrea remains optimistic for her future and continues her life with as much activity as she can. Kay, Andrea and Naomi share their experiences and insights on managing psoriatic arthritis and living with chronic illnesses. They emphasise the importance of lifestyle factors, seeking knowledge, and finding support systems. Kay and Andrea discuss the impact of their conditions on their daily life, while offering practical advice and personal anecdotes to help others navigate the challenges of living with chronic conditions.
Contact Us
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
This second season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.
For more information, visit the CreakyJoints Australia website.

Psoriatic Arthritis: Patient Journeys and the Road to Diagnosis

In this episode, we talk with Dr Premarani Sinnathurai, a specialist in the Rheumatology Department at Royal North Shore Hospital and Clinical Senior Lecturer at the University of Sydney. She was awarded her PhD from the University of Sydney in 2019 on Comorbidity and Patient-Centred Health Outcomes in Psoriatic Arthritis. Her research focuses on the role of comorbidity and adiposity on outcomes in psoriatic arthritis. Her clinical work includes specialist psoriatic arthritis clinics in addition to general rheumatology and acute referral clinics.
Dr Sinnathurai discusses the complexities of psoriatic arthritis, including inflammation in joints, tendons and skin and the challenges of diagnosing the condition. We learn about the importance of early diagnosis and appropriate treatment as well as the comorbidities associated with psoriatic arthritis. We also hear about the various medications and lifestyle changes that can help people manage the condition, highlighting the importance of individualised approaches based on patient priorities and patient-doctor partnerships.

Contact Us

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

This second season of PatientPrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website.

In this episode, we talk with Dr Premarani Sinnathurai, a specialist in the Rheumatology Department at Royal North Shore Hospital and Clinical Senior Lecturer at the University of Sydney. She was awarded her PhD from the University of Sydney in 2019 on Comorbidity and Patient-Centred Health Outcomes in Psoriatic Arthritis. Her research focuses on the role of comorbidity and adiposity on outcomes in psoriatic arthritis. Her clinical work includes specialist psoriatic arthritis clinics in addition to general rheumatology and acute referral clinics. Dr Sinnathurai discusses the complexities of psoriatic arthritis, including inflammation in joints, tendons and skin and the challenges of diagnosing the condition. We learn about the importance of early diagnosis and appropriate treatment as well as the comorbidities associated with psoriatic arthritis. We also hear about the various medications and lifestyle changes that can help people manage the condition, highlighting the importance of individualised approaches based on patient priorities and patient-doctor partnerships.
Contact Us
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
This second season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia. For more information, visit the CreakyJoints Australia website.

Psoriatic Arthritis: An Underdiagnosed Disease

In this episode, we’ll be talking about methotrexate and clarifying how it is used in rheumatology settings. Methotrexate is one of the main medications used to slow or stop the progression of autoimmune arthritis and reduce disease activity.



We’ll hear from Janine Fisher, a patient who has lived with rheumatoid arthritis for 31 years. Janine shares her journey with methotrexate, starting with her initial concerns about taking it. She has tried various other treatments over the years and now uses methotrexate successfully in combination with a biologic medication to manage her condition.



Rheumatologist, Dr Irwin Lim will explain why methotrexate is widely used as a front-line treatment for many forms of autoimmune arthritis. He will also explain how it can safely be used by most people and dispel the myths that have developed around it.

In this episode, we’ll be talking about methotrexate and clarifying how it is used in rheumatology settings. Methotrexate is one of the main medications used to slow or stop the progression of autoimmune arthritis and reduce disease activity.
 
We’ll hear from Janine Fisher, a patient who has lived with rheumatoid arthritis for 31 years. Janine shares her journey with methotrexate, starting with her initial concerns about taking it. She has tried various other treatments over the years and now uses methotrexate successfully in combination with a biologic medication to manage her condition.
 
Rheumatologist, Dr Irwin Lim will explain why methotrexate is widely used as a front-line treatment for many forms of autoimmune arthritis. He will also explain how it can safely be used by most people and dispel the myths that have developed around it.

Psoriatic Arthritis: Self-Management and Getting on with Life

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