Welcome to Katie's Crib, a production of Shonda Land Audio in partnership with I Heart Radio. Have you and Scott, I mean they're so young, but like, have you guys talked to them at all about Huntington's disease? They know what it is. I was just telling Scott we needed to talk to our nursery's school about how we're going to approach it kind of going forward, because Scott and I am very open that I have Huntington's and always getting older, and he does not know that I have it. He knows Gammy has it. What do you call my mom um? But he doesn't know I have it. It's so wonderful and I feel like everyone should use their teachers more because they I think if you have a teacher, you love getting their advice of how to approach kids with some big, big hard topics is always another avenue of where to get advice from. I'm sure they will be very helpful, you know. I feel like that what you're saying goes back to just allowing your community to help you, right, Like reaching out and finding somebody in your community to help you navigate a tough subject is good. Hello, everybody, and welcome back to Katie's Crib. Today's episode fills my heart and I personally just love our guests so much. Her name is Kelsey Porter. Her and I have kids at the same preschool, and I've known Nerve for years. We have so many mutual friends, a lot of whom have been on Katie's Crib before. She is the wife of actor Scott Porter, who you guys might know is his portrayal of Jason Street in the NBC television drama Friday Night Lights, which is my favorite pilot ever. Kelsey previously worked as a casting director and a producer for a ton of shows, including Like The Biggest Loser and ABC is The Taste. Kelsey currently serves as a member of the National Board of Trustees at Huntington's Disease Society of America, and she raises money for the organization annually. She herself was diagnosed with Huntington's disease and has an absolutely fascinating story of how she became a mom knowing that she has a disease that could be passed on genetically. It's just a very interesting, amazing topic that I've wanted to get into for a while. She and her husband Scott have two children. Their son McCoy's six, their daughter Clover is four. And I am so proud of this episode and I'm so honored. Hi, Kelsey, Welcome to Katie's Crib. Kelsey and I go to the same preschool and that is how we first met, right, yes, yeah, yeah, it is right before you started. Because Rebecca in her duce stuff was Rebecca b and out of your dula too. Oh of course Rebecca was my dula and my mommy and me teacher through all of my pregnancies with both kids. Oh my god. Okay, so first tell the listeners, Okay, you have two kids with a muzing names. Tell him. I have two kids, my son McCoy who is six, and my daughter Clover is four. It's crazy how many people we have in common, you guys who are listening at who have been on the podcast. Rebecca and Nadi obviously was both of our dulas, and Jolie cabral is a mutual friend. Mary O'Malley is a mutual friend. Tally Moore, who we've had on for both postpartum depression anxiety talk but also for amazing nutrition. You and Scott met this is just my love loving anecdote. But like you guys met Friday night Lights. Scott Porter, as you know, was one of the leads of Friday Night Lights, which is literally my favorite pilot that I've ever seen. Um, and he played Jason Street. And you met because he shot it in Texas, and you're a little cheerleader in Texas where you like, I mean, you weren't five years old, you were over eighteen, but tell me that I was twenty two. But that's so young and cute I cannot. We met in Austin. He was there for our Finite Lights and I was going to college and we met playing beer pong against each other at a Halloween party. It is perfect, it writes itself. Was it love at first sight? It was love at first sight? Ye, it was like instantaneous. I bent and was it like so serious? Quickly? I moved in with him two weeks after knowing him. And funny story, I moved me and my bunny because I had a bunny, like a live bunny named I hop Um. I moved myself and my bunny genius okay, in with Scott Porter. In with Scott Porter, and guess what he had a roommate at the time, Zach Guildford. Oh, but Zach was traveling and out of town a lot, and so Scott and I would like basically stay in Scott's room and then Zach would come back and Zach's like, who is this? You have a new girlfriend? I mean bunny? Yeah? Got wow, wow, wow wow wow. Well, you guys are such a wonderful couple. You guys are such a great parenting couple. And just I just see how you guys work. We've been lucky enough that you guys have come over a few times for hangs, and I just feel like, you guys are great parents. Um, You're both so involved, and you both work. You just have it all going on. You guys are really supportive of each other. And god, I just feel like you guys have really been through something that you know, even my you know, my husband and I have been together sixteen years and we've never gone through anything like this, like anything even remotely as serious. I think we got like thrown into the deep end after the Huntington's. I think of our relationship as like before Huntington's and after Huntington's, just because of the effect it has had on our relationship. But honestly, it's tightened our bond. So it's like like a zipper, Like we were just inseparable after that, and we've depended on each other through so much that it has strengthened our relationship quite a bit. I've wanted you to come on forever because I think you're just such an amazing mom, but also you have such a wild story. Tell us about Huntington's disease, what it is, how you found out you had it, and how that affected your wanting to have babies. Yeah, um, okay, So for anybody that doesn't know, Huntington's disease is a genetic disorder and it causes the breakdown of nerve cells in the brain, so it deteriorates your physical and mental abilities at the same time. So people describe it. The easy way to say it is it's a l S and Parkinson's and Alzheimer's simultaneously. Come the fuck. Yeah, it's a really fucked up And like, how did you and we can curse, how did you find it? Wondering? I was like, yeah, I curse all the time, I have a mess, but but how did you find out that you had this? Right? So, um, the year after Scott and I got married, we were at Christmas with my family in San Antonio, Texas. My mom set us down and she had been seeing some doctors because she had she felt like she had numbness and she couldn't really understand what was going on. The neurologist diagnosed or with Huntington's disease, and she went and she got tested without telling any of us, and she had it. How do they test for it? Is it like they draw blood or how do you know? Yes, it's a blood draw and it cheeks blob I'm trying to remember. Um. But it's the kind of good thing is that we know where it comes from. So with Alzheimer's we don't really understand where it comes from. But with Huntington's, it's a specific gene and it's a defective gene, so it releases this protein that basically attacks everything from your body. There's a test for it. You can go get tested to see if you have this gene, and any child of a parent that has HD, which is what it's called, has a fifty chance of having it. Holy shit balls And not like, oh you might develop this thing later in life or no, you are going to develop it, and it's just you don't know when. Was it a big question for you whether or not to find out you were carrying the gene? No, you were like, I'm a finding out. Hundred was finding out. Like when we first found out, my biggest concern was my mom dealing with this progressive degenerative disease. It was earth shattering or you know our family earth shattering. Is there varying grades of how severe and also how quickly it comes on? So yes to all of those, but there's no way of knowing. So some people get it earlier in their life, some people get it later in their lives. Life. There is such a thing as juvenile Huntington's about ten people that have HD have juvenile Huntingtons, which is good and more devastating because now you're talking about it in children. Um. But the cognitive and the physical it's called Korea where your body has tips and movement. It's awful. There's an awful disease. There's not a cure. And that's why you know, Scott and I are super involved with the organizations. Now, yeah, you guys are super involved with and what is the organization called We are involved with HD s A and it's the Huntington's Disease Society of America. And I'm actually on the board of directors now ye are yeah, um, And we always participate very heavily and freeze h D, which is the gallop that we do for a year freeze HD. That's usually in the fall and then throughout the year. If you want to get involved find out more information. It's h D s A, which is Huntington's Disease Society of America. HM. When you got the earth shattering news that you're dealing with a your mom who has a very awful disease that will change her life. Now you're looking at it if for your own life, and you find out the news that you too carry the gene, how did you start to come around to the idea of I want to be a mom. I'm going to figure this out. What are my options? Because I think this is science, that it's best. This is unbelievable, for sure, it is. It's science. Is the only way that we had kids h D free like it is the only way. The second that we left Christmas with my parents, after finding out my mom how to h D, I looked at Scott and I said, I've got to go get tested. I want to be a mom for as long as I can. We've got to get tested so that we can have kids. That became my drive and the phoecus um And because of that, I think I was able to deal with everything that came along with it a little easier because I had a focus, had a purpose. I was gonna go get tested, and then if I didn't have it, whatever, we would have kids the good old fashioned fun way. And I had it, we could then focus on how to make it happen that way. And it's called UM pg D I VF right, which stands for guys, here we go. Pre am plantation, genetic diagnosis in vitro fertilization. Yes, you get a star. It's written down in my note. So basically you have an egg retrieval process. They shoot you up with hormones like you and I VF. You get put out for a short in it twenty minutes or whatever. They take out the eggs when it's they say it's go time, and then they test each embryo. They test the embryo, so they have to make the embryo because what happens is Scott also has that gene, but his gene is good. My gene is the faulty gene. So they have to make the embryo and then they have to test to see what embryo's inherited my faulty gene and what embryo's got Scott's good gene. Oh my god, this is so crazy. In order to do this, they explained it to us as they had to make a probe to stick into the embryos, and they needed the d n A of me, of Scott, of my mom, and my dad so that they could figure out what genes. Guys, are you listening to this? Like, what the fucking hell? This is unbelievable to me? And then how do you pick choose? What were the conversations you and Scott were having at this time? So then we got twelve embryos and seven had Huntington's and five were clear. So those seven that had Huntington's we actually donated back to Science for research because we were not going to use them um and Science had already given us a lot, so we did that, and then we were left with five. Think of it this way, it's a coin flip, right, So everyone is a coin flip. So it's just you don't know, the odds are not there fifty per embryo, so it could have swung all in that direction. Wow. But I was young and I didn't have fertility problems. That's why I wish because we had a lot of embryos, right, twelve. Yeah, I mean I've I've just been through egg freezing with like four of my friends this past year, and the lack of dating has put a real wake up call and a lot of my friends who don't have a significant others and they're over forty and let me tell you, twelve is a very good number, Like that is high as buck. Yeah. No, I had they retrieved thirty. I had thirty three follicles. Oh my god. Trying to remember how old I was. I was like in my twenties. So there, I was like, right, So the implantation process, did it take right away the first embryo that was chosen? Did you pick I don't know if you want to talk. Did you pick a boy on purpose? Did you just like, how do you do that? Yeah? Well, I don't know. I don't know what the right answer is. We just told our doctor, like, you choose one that you think is healthiest and put it in me and we'll see what happens. And so she did and it took and uh then it was a little boy and we were over the moon. How was your pregnancy? Does Huntington's show up at all when there's this many hormones and changes in fluctuation in your body or is it completely dormant and doesn't matter? No? Yeah, the Huntington's basically is just building up. The protein builds up inside your body until you finally see symptoms. So, but it doesn't affect until it's built up enough. Got it. So it didn't affect my pregnancies. My pregnancies weren't that. I had collistasis with McCoy. Do you even know what that is? That? What's that? Well? Are you ready for this? It's a weird disease seem to hit the lottery on um. It's basically where your liver stops processing the bile and your body. And so at thirty seven weeks I went in for my checkup and uh, my O B was like, uh, is there any symptoms that have been happening? You're feeling fine? I'm like, yeah, I'm fine. And Scott's like she's been really itchy on her hands and her feet, like crazy itchy, Like I would make him scratch my feet and weight me up at night. And I was like, maybe that's not anything. And my b said, well, just let's run this test. It's real rare, but we'll run it. They ran it, and sure enough, I had what's called cola stasis, and one of the symptoms is having insanely itchy hands and feet. I know one other person, Casey Wilson. Do you know this actress, Casey Wilson. No, she's been a guest on Katie scrib but she was on Happy Endings. She had cola stasis and her calfs and lower legs were itching like a fucking motherfucker. And rushed her in. They induced her, but like, so your liver just stops functioning. Yeah, it just stops, like the bio builds up in your body. Basically, it's bizarre. Good. They did the same thing. Rushed me in potosan forced it out forty forty four hours of labor and it ended in a section No what so And you're like the most so for you guys listening. You can't see her, but she's like literally the physically strongest woman. I know, I'm not kidding, Like how many you can run like a lot of miles like you are like very physically fit. Okay, I want you to picture like a hard core cheerleader, like you run, you do pilates, like you worked out so like the fact that you ended up in a C section, like was it just stopping? Like did you get the epidural in the potocon and your body was not responding or the baby was in stress? I got the potosan no epidural and then twenty four hours in ended up with the epidural and then uh yeah, he was just stuck. So you were dilating anymore and he just and you were like, I mean they were forced, they were forcing me, right, So they did the fully balloon? Oh yeah, I had is all of it. I have the most embarrassing story about the fully balloon what like I shouldn't say it, Okay, then don't, but if you want to, if you want to, you can. But there is absolutely no pressure here. I had a fully balloon to which, by the way, then I went to work on Scandal and I said to Scott fully is this from your fun? You like you? This medieval torture device that's in the shape of a balloon that's like put intoside my vagina and slowly, over time the balloon is blown up. Yeah, I'll tell you the story. Tell me. So when I went in, they gave me like the pill on your cervix to soften it and start opening, and then they inserted the fully balloon. And I had been there a while, and I, being a woman who had knocked one through birth before, I was terrified of pooping. Of great, I did not want to poop while giving birth. Now I could give two ships, but back then I was tear literally, I was terrified of it. So I had the fully balloon in and I was like, oh my god, I think you have to poop. This is great. I'll poop before I give birth and then I won't poop while giving birth. Great. I like, take my little ivy bag of potocin and the fully balloon and I'm like, babe, helped me get to the bathroom. Scott takes me to the bathroom and I sit down and I'm like, this is great poop and the fucking fully balloon comes out into the poop and I fully balloon. I am freaking out because one nobody told me it was supposed to come out, so I thought something wrong. So I'm like Scott, Scott, and he comes rushing it and I'm like, I pooped in the thing came out, and he's like, okay, and God bless him, God bless his knees, and he's like plucking the way. I think if I hold the balloon and we flushed the toilet, the poop will go down. But the jack we're devising this plan together to try and get out of this situation. I've gotten us in and the nurse walks around the corner and she's like, honey, what are you doing. Get up off the floor. This is my job. This is no big deal. O my god. Yes, and everybody fucking poops. Also the fully balloon, what it meant was that you were probably forced meters dilated and the fully balloon came out when it was supposed to. Yes, exactly, but we did not know that. And I love my husband so much because he did not care. He was going to get me out of the situation. I'd tell you know, he's the real deal. That was the only poop I had prior and then with Clover I had already had a c section, and I had already done forty four hours of labor, and I just didn't feel like doing it again. So I just scheduled a c section with her perfect And did you always know you wanted to? Yes, we always wanted to. At one point, Scott one at three and then we had one, and he's like two is good? Great? Great? Great? And how did you pay? Did you want a girl? Did you do the same thing to the to your doctor, like pick the healthiest one, or you were like, I want a girl. Yeah. We looked at it as our silver lining. We're just gonna choose the girl after all the crap I would have, Are you kidding? Yes, after all the like shit, I would like to be a mother of a girl. Also, you know, yes, please, thank so much. Yep, that's what we did. We love to say that my daughter is like very old for her age. She's very mature. Is she's always been that way, Like she's just very mature. And we we always say, well, she sat on ice for two years, so she just must she must have this old soult. Because her and McCoy were the same group. Oh yeah, they're kind of I mean it's so weird. That's so weird. They're the same embryonic age. Is that a thing? I don't know, but it's like, you know, they would have been if it would have been normal, they would have been fraternal twins. Wow, this is so weird. Cool, it's so cool. Have you and Scott, I mean they're so young, but like, have you guys talked to them at all about hunting this disease? They know what it is? How did those conversations happen? Do we have a plan for that? That's funny should say that because I was just telling Scott we needed to talk to our nursery school about how we're going to approach it kind of going forward. Because Scott and I am very open that I have Huntington's and always getting older, and he does not know that I have it. Um. He knows that my mom has it, and we've talked to him about what it does because she does have symptoms and we want him to be emphatic um more than anything. So he knows Gammy has it what he calls my mom cute um, but he doesn't know I have it, and Clover doesn't either, So there's so little they're so little, but they know so much. It's so wonderful. And I feel like everyone should use their teachers more because they I think if you have a teacher, you love getting their advice of how to approach kids with some big, big hard topics is always another avenue of where to get advice from. I'm sure they will be very helpful, you know. I feel that what you're saying goes back to just allowing your community to help you, right, Like reaching out and finding somebody in your community to help you navigate a tough subject is good. That's what we should be doing that with people in our community. For sure. You take such a better left turn at boundaries and limits than I do. You are so good at setting loving boundaries, which I've had to learn as a parent that that is a form of love. Like I was such a goody two shoe as a kid. I didn't need limits set. I was such a rule follower, and my son is really not. And it took me so long to understand that setting boundaries and limits is like a loving thing to do. It's not like a bad thing to do. I suck at it. So if you're no, you're great, Like, how are you so good at it, but it's not. I might be good at it, but one I've had more practice than you. My son is six years old and he's pushing the boundaries like crazy right now. But I am a huge, huge believer in boundaries because I feel like it's the only way where I actually get them to listen to me. And it sucks, and it sucks to say fifty times, I will not let you do that. I cannot let you do that. McCoy, I cannot let you do that, but I won't give in. And when that boundary is set, they know they're safe and they're secure in there, and they just feel better in life. I feel like they feel better in their emotions and their feelings. You can have the big cry. I am okay with you expressing your emotions. I'll hold you while you do it, but we're not going to do the thing you want to do. Can you give an example right now, like a boundary, Like tell me what I'm looking down the pipe? That's a six year old son. He's just very um, what's the word I'm looking for. So he's just very defiant right now. He's very not defiant. He's a very good kid. He's great in school, but defiant in I was like, okay, it's bed time, and now we've regressed back to like, no, I don't want to go to bed where it's like we've moved past that. It's been years since he did that, but it seems like the defiancy. Yep, so I'm in defiancy too. I don't know, but my four year I mean, Albie is unbelievably defiant, challenging, strategic. Give him an inch, she takes a mile. I mean it's like mastermindful. It's crazy well, and I feel like when I do give them an inch, it gets a million times worse. I just try to like lock down the boundaries and tighten them. And when I feel them really pushing, I pushed the boundary even farther and I almost make I almost pick a fight, if that makes sense. Like I can see that they're teetering on their emotions, that it's there, it's ready to come out, but it hasn't come out yet, and I will choose something to say no one, just out of the blue, like well, let's read this book tonight. Well we're not going to read that book tonight, just no, just so that we can get the feelings out, because I feel like once he cries and has the feelings, we can move past them. But until that moment of him having the outburst, they're just sitting at the surface, bubbling, and it disturbs everything we have for the day. I know, it's so true. I know, and you know the feeling has nothing to do with that. Oh my god, I'm like, so it's just like I just pick an arbitrary thing to pick the fight about. Wow, it's smart, just STI get it out. Yeah, that's really good. How are they and getting along? They love it too? And do they ever physically fight? I'm just asking because I'm like, is that what's coming? What am I gonna do? My kids don't physically fight? Is she trying to take choice from him? Him take choice from her? What does that look like? No, I think the pandemic had something to do with it, But my kids are insanely blips. They spend every night that they can't in a bed together. They have slumber parties on the weekends because that's what they want to do. Um. I told him no school nights, and like, you can't do it on a school night. Do they share a bedroom? Or no, No. We thought about moving Clover in because they wanted to. But I just want to be able to put them in separate beds if I need. It's all about that boundary, right, Like if I if they shared a bedroom, um, then I couldn't say, like if they're testing bed okay, well tonight, it's going to be a night. You can't sleep together if you can't follow the rules and listen to mom or progress forward in bedtime. But they want to be together. That is so cute that they are so close. You know what a blessing that is. I mean, it's just so wonderful that they have each other, you know, like through everything that will come their way, it's just got And that they're close and that they get along. You know, I'm really really close with my brother, and I'm so fucking grateful. I love that. I hope it sticks. And like I said, I think COVID then just look, if you're gonna play with them, your sister is the person you're gonna play with, so figure it out, you know. Wow. And also that they were in the same pod at school. They were in the same pod at school, they were together all the time. They didn't have time apart. Wow, Wow, parenting styles? Who is the disciplinarian? Because I think it's you? Is it you? Yeah, it's for sure. Scott can discipline as well. But I'm with them, you know, more more discient. I am with them, so I probably over explain everything, um to the point of them not and knowing what I'm talking about. No, you are very verbal. You don't talk to them like their babies. You respect them as individuals. Do you and Scott ever have major Are you guys always united? I mean we always try to be united front in front of our kids no matter what. But do you guys have major any like differing parenting styles that someone's had to budge on or move or learn change? I mean, for sure, we There's been quite a few. I think that that both of us have had to decide how we were going to move forward together with right and especially because when you become a parent, you don't know how to parent, You don't know what your parenting style is going to be. You couldn't even define that. So especially me, I am a I like knowledge. I like information, So I read books, I research everything, um, and then I send it to Scott and I'm like, hey, read this and then let's get on the same page, you know, because he doesn't have all that time. They get more as my job to try and figure out the right moves. Can you think of any like one or two favorite books or or resources that have been instrumental to you in parenting? Um? Yeah, but they're not even parenting book? Does that matter? Are they? It does not matter? What My one of my favorites is a book called Never an Anger, And it's what's that It's so obscure. It's so obscure. And you can blame Mary O'Malley for me even finding this book because she sent me this blurb from an article about like talking to your children calmly and the effect that it has on them versus raising your voice and being upset. And they were referencing back to like how Inuit family used to do it. And so of course I'm reading this article and I'm like, well, where is this information from? Because that's just who I am. So I'm like, bibliography and bibliography, and I go and I find this book and it's I don't know, it's probably like six hundred pages or something, and it's just the portrait of an Eskimo family from like the sixties and seventies, and an anthropologist went and lived with them, and she observed them, and she observed how they raised their children, and she wrote it all down. She had like a typewriter that she keeping the iglue like she lived with a god. And it not only is it a fascinating book because she's living with an Eskimo family. Yeah, in the sixties, right before before the internet, before the you know, the share of information and happened. And she dispensed this knowledge of how they raised their children. And they believe that a child does not have reason. You're born without reason, and so you should be treated as such. If you are acting out, it's not because you're being mean, it's because you have no reason. But as an adult, we have reason. We should be able to control our emotions because we are the older one, we have the experience to do so. And it really struck me. Right, It's like, yeah, you're right, And it could have been anybody telling me that, right, It didn't have to read this book. No, I I think you don't get rational thought till they're like seven. Yeah, they don't know what they're doing. No, you're negotiating with a terrorist so to like and also to put on them, like when I would say like, oh, he's manipulating the situation, it's like he doesn't know, he doesn't know what the funk he's doing, Like he has no idea. And is there anything else that is like a go to guide for you? Like were you like a big Magda Gerber reader? Janet Landsberry was always Janet Janetmazing, She's amazing. She's an amazing podcast called Unruffled. She's fucking brill Yeah, there's a Janet Landsbury book that I swear by called No Bad Kids. I Um, it's funny. I had a friend who had just the come a mom and she told me that she was at her friend's house and Janet Landsbury lived next door, and it was like celebrity siding right because it was Janet Landsbury. And she was so excited to tell me because I was the other mom, and I was like, you saw Janet Landsbury? It was like it was so funny. Is the best? I'm like, the best, the best? Okay, as we're wrapping up, what the heck is your parenting advice? And teach me how to be as good at it as you are. I think I have to have more play dates with you. Honestly, I think if I had more play dates, you would just rub off on me. Well, we will have you over when the other you want, please, Okay, okay. So my number one thing, my motto in life, which reflects down to my parenting, is everyone is different. I want to put it on a T shirt. I want to ride it on my kids walls. Everyone is different, and it literally works for any situation everything. Yes, so my son comes home, you know, why does my friend get to go to Disneyland all the time. Well, every family is different, and every family value is going to Disneyland different. So while you know they go often because it's something that's important to them, we treat it like a celebration. So we go list. Everyone is different, works for everything, works for everything, especially as they get older, like it really does. So everyone is different is my number one saying in life and in my family. I love it. I'm stealing that ship. It's good. Everyone is different. Everyone is different, different, I mean it works for everything. And you know, McCoy came home the other day and he wears his hair in a ponytail long and shaved underneath, and he wears in pony Town and he said, Mom, my friend. My friend said I have girl's hair, which I'm like, really like, aren't we And we live in l A. And I said, what did you say? And he said I just told him that everyone is different and everyone wears their hair afferently. And I said, yeah, buddy, that's right, Yeah, buddy, that's right. And then I said, also, it's only an insult if you think being a girl is an insult. Do you think being a girl is an insult? Like, no, Mom, you're cool glower school. Yeah, so we're all good. Great answer, great answer, um. And then I have three things that I want my children to be always kind, adaptable, intolerant. I don't care what else they learn in the world. They will academics and all that stuff. They'll figure it out, but I want them to be kind, adaptable. All right, big doors, see you guys listening. Do you see why Kelsey Porter is a fucking incredible mom. You're also just so grounded and strong. I'm just like so wishy washy. I'm like, what's happening. It's just it's great. We gotta hang out more. You gotta rub off on me a good best to you, this is amazing. Tell me, I think we touched on it a little bit, but again just to say it. You guys. HD Freeze is a yearly gala um. There's awesome stuff that's auctioned off every year, like awesome holiday like Hollywood celebrity ship, sports stuff, memorabilia, signed stuff, and all of the proceeds go to it. All goes to h d s A. And to date we've raised over one point three million dollars and just like the past seven years. So it's a huge event and it's actually changing people's lives because all of that money goes back to making centers and making sure that people and families have the support that they need to battle this awful disease. Because it's not just the person that has HD, right, it's the whole family. You all become caretakers. Everybody has a chance of having it and it just spreads like wildfire. No, it affects a lot of people. Do you know what the number how many people in America to have? So people in America are symptomatic with it and then another like four hundred thousand or are at risk of having it. Wow, most people don't get tested, so most people in my situation, they choose not to know. Um, it's very it's hard. I think you know you're saying I'm grounded. I think I think it grounds me. I think that's what it does for me. It's heavy, and I'm constantly reminded that the kids, the mother that my kids see right now is not the mother they will see you later in live and so I want to be a good mom to them now and I think that's why I put so much effort into it. You're unfucking believable. What made me feel so uncomfortable? No, I know so many moms, and let me tell you, you are fucking tops like you are. So you are doing an incredible job and your children are incredible, and um, they're so lucky to have you. Let's all work on getting some of these trials started, new ones, different ones. Figure this shit out, h d SA dot org, freeze HD. We're going to be linking to a bunch of stuff at the time when this podcast comes out, and I will also always be blasting and posting when the Gala happens every year. But come on, guys, let's get this going. Kelsey Porter, thank you so much for being on Katie's Crapy, You're fucking awesome. You have to come back on. Thank you for having me and making me feel like what I have to say is valuable because I don't look at you like that. I really what you have to say is so valuable. I'm thank you, Katie. Thank you guys so much for listening to today's episode. I want to hear from you. Let's chat questions, comments, concerns. Let me know. You can always find me at Katie's Crib at Shonda land dot com. Katie's Crib is a production of Shonda Land Audio in partnership with I Heart Radio. For more podcasts from shandaland Audio, visit the I Heart Radio app, Apple Podcasts, or wherever you listen to your favorite shows.

Welcome to Katie's Crib, a production of Shonda Land Audio in partnership with I Heart Radio. Have you and Scott, I mean they're so young, but like, have you guys talked to them at all about Huntington's disease? They know what it is. I was just telling Scott we needed to talk to our nursery's school about how we're going to approach it kind of going forward, because Scott and I am very open that I have Huntington's and always getting older, and he does not know that I have it. He knows Gammy has it. What do you call my mom um? But he doesn't know I have it. It's so wonderful and I feel like everyone should use their teachers more because they I think if you have a teacher, you love getting their advice of how to approach kids with some big, big hard topics is always another avenue of where to get advice from. I'm sure they will be very helpful, you know. I feel like that what you're saying goes back to just allowing your community to help you, right, Like reaching out and finding somebody in your community to help you navigate a tough subject is good. Hello, everybody, and welcome back to Katie's Crib. Today's episode fills my heart and I personally just love our guests so much. Her name is Kelsey Porter. Her and I have kids at the same preschool, and I've known Nerve for years. We have so many mutual friends, a lot of whom have been on Katie's Crib before. She is the wife of actor Scott Porter, who you guys might know is his portrayal of Jason Street in the NBC television drama Friday Night Lights, which is my favorite pilot ever. Kelsey previously worked as a casting director and a producer for a ton of shows, including Like The Biggest Loser and ABC is The Taste. Kelsey currently serves as a member of the National Board of Trustees at Huntington's Disease Society of America, and she raises money for the organization annually. She herself was diagnosed with Huntington's disease and has an absolutely fascinating story of how she became a mom knowing that she has a disease that could be passed on genetically. It's just a very interesting, amazing topic that I've wanted to get into for a while. She and her husband Scott have two children. Their son McCoy's six, their daughter Clover is four. And I am so proud of this episode and I'm so honored. Hi, Kelsey, Welcome to Katie's Crib. Kelsey and I go to the same preschool and that is how we first met, right, yes, yeah, yeah, it is right before you started. Because Rebecca in her duce stuff was Rebecca b and out of your dula too. Oh of course Rebecca was my dula and my mommy and me teacher through all of my pregnancies with both kids. Oh my god. Okay, so first tell the listeners, Okay, you have two kids with a muzing names. Tell him. I have two kids, my son McCoy who is six, and my daughter Clover is four. It's crazy how many people we have in common, you guys who are listening at who have been on the podcast. Rebecca and Nadi obviously was both of our dulas, and Jolie cabral is a mutual friend. Mary O'Malley is a mutual friend. Tally Moore, who we've had on for both postpartum depression anxiety talk but also for amazing nutrition. You and Scott met this is just my love loving anecdote. But like you guys met Friday night Lights. Scott Porter, as you know, was one of the leads of Friday Night Lights, which is literally my favorite pilot that I've ever seen. Um, and he played Jason Street. And you met because he shot it in Texas, and you're a little cheerleader in Texas where you like, I mean, you weren't five years old, you were over eighteen, but tell me that I was twenty two. But that's so young and cute I cannot. We met in Austin. He was there for our Finite Lights and I was going to college and we met playing beer pong against each other at a Halloween party. It is perfect, it writes itself. Was it love at first sight? It was love at first sight? Ye, it was like instantaneous. I bent and was it like so serious? Quickly? I moved in with him two weeks after knowing him. And funny story, I moved me and my bunny because I had a bunny, like a live bunny named I hop Um. I moved myself and my bunny genius okay, in with Scott Porter. In with Scott Porter, and guess what he had a roommate at the time, Zach Guildford. Oh, but Zach was traveling and out of town a lot, and so Scott and I would like basically stay in Scott's room and then Zach would come back and Zach's like, who is this? You have a new girlfriend? I mean bunny? Yeah? Got wow, wow, wow wow wow. Well, you guys are such a wonderful couple. You guys are such a great parenting couple. And just I just see how you guys work. We've been lucky enough that you guys have come over a few times for hangs, and I just feel like, you guys are great parents. Um, You're both so involved, and you both work. You just have it all going on. You guys are really supportive of each other. And god, I just feel like you guys have really been through something that you know, even my you know, my husband and I have been together sixteen years and we've never gone through anything like this, like anything even remotely as serious. I think we got like thrown into the deep end after the Huntington's. I think of our relationship as like before Huntington's and after Huntington's, just because of the effect it has had on our relationship. But honestly, it's tightened our bond. So it's like like a zipper, Like we were just inseparable after that, and we've depended on each other through so much that it has strengthened our relationship quite a bit. I've wanted you to come on forever because I think you're just such an amazing mom, but also you have such a wild story. Tell us about Huntington's disease, what it is, how you found out you had it, and how that affected your wanting to have babies. Yeah, um, okay, So for anybody that doesn't know, Huntington's disease is a genetic disorder and it causes the breakdown of nerve cells in the brain, so it deteriorates your physical and mental abilities at the same time. So people describe it. The easy way to say it is it's a l S and Parkinson's and Alzheimer's simultaneously. Come the fuck. Yeah, it's a really fucked up And like, how did you and we can curse, how did you find it? Wondering? I was like, yeah, I curse all the time, I have a mess, but but how did you find out that you had this? Right? So, um, the year after Scott and I got married, we were at Christmas with my family in San Antonio, Texas. My mom set us down and she had been seeing some doctors because she had she felt like she had numbness and she couldn't really understand what was going on. The neurologist diagnosed or with Huntington's disease, and she went and she got tested without telling any of us, and she had it. How do they test for it? Is it like they draw blood or how do you know? Yes, it's a blood draw and it cheeks blob I'm trying to remember. Um. But it's the kind of good thing is that we know where it comes from. So with Alzheimer's we don't really understand where it comes from. But with Huntington's, it's a specific gene and it's a defective gene, so it releases this protein that basically attacks everything from your body. There's a test for it. You can go get tested to see if you have this gene, and any child of a parent that has HD, which is what it's called, has a fifty chance of having it. Holy shit balls And not like, oh you might develop this thing later in life or no, you are going to develop it, and it's just you don't know when. Was it a big question for you whether or not to find out you were carrying the gene? No, you were like, I'm a finding out. Hundred was finding out. Like when we first found out, my biggest concern was my mom dealing with this progressive degenerative disease. It was earth shattering or you know our family earth shattering. Is there varying grades of how severe and also how quickly it comes on? So yes to all of those, but there's no way of knowing. So some people get it earlier in their life, some people get it later in their lives. Life. There is such a thing as juvenile Huntington's about ten people that have HD have juvenile Huntingtons, which is good and more devastating because now you're talking about it in children. Um. But the cognitive and the physical it's called Korea where your body has tips and movement. It's awful. There's an awful disease. There's not a cure. And that's why you know, Scott and I are super involved with the organizations. Now, yeah, you guys are super involved with and what is the organization called We are involved with HD s A and it's the Huntington's Disease Society of America. And I'm actually on the board of directors now ye are yeah, um, And we always participate very heavily and freeze h D, which is the gallop that we do for a year freeze HD. That's usually in the fall and then throughout the year. If you want to get involved find out more information. It's h D s A, which is Huntington's Disease Society of America. HM. When you got the earth shattering news that you're dealing with a your mom who has a very awful disease that will change her life. Now you're looking at it if for your own life, and you find out the news that you too carry the gene, how did you start to come around to the idea of I want to be a mom. I'm going to figure this out. What are my options? Because I think this is science, that it's best. This is unbelievable, for sure, it is. It's science. Is the only way that we had kids h D free like it is the only way. The second that we left Christmas with my parents, after finding out my mom how to h D, I looked at Scott and I said, I've got to go get tested. I want to be a mom for as long as I can. We've got to get tested so that we can have kids. That became my drive and the phoecus um And because of that, I think I was able to deal with everything that came along with it a little easier because I had a focus, had a purpose. I was gonna go get tested, and then if I didn't have it, whatever, we would have kids the good old fashioned fun way. And I had it, we could then focus on how to make it happen that way. And it's called UM pg D I VF right, which stands for guys, here we go. Pre am plantation, genetic diagnosis in vitro fertilization. Yes, you get a star. It's written down in my note. So basically you have an egg retrieval process. They shoot you up with hormones like you and I VF. You get put out for a short in it twenty minutes or whatever. They take out the eggs when it's they say it's go time, and then they test each embryo. They test the embryo, so they have to make the embryo because what happens is Scott also has that gene, but his gene is good. My gene is the faulty gene. So they have to make the embryo and then they have to test to see what embryo's inherited my faulty gene and what embryo's got Scott's good gene. Oh my god, this is so crazy. In order to do this, they explained it to us as they had to make a probe to stick into the embryos, and they needed the d n A of me, of Scott, of my mom, and my dad so that they could figure out what genes. Guys, are you listening to this? Like, what the fucking hell? This is unbelievable to me? And then how do you pick choose? What were the conversations you and Scott were having at this time? So then we got twelve embryos and seven had Huntington's and five were clear. So those seven that had Huntington's we actually donated back to Science for research because we were not going to use them um and Science had already given us a lot, so we did that, and then we were left with five. Think of it this way, it's a coin flip, right, So everyone is a coin flip. So it's just you don't know, the odds are not there fifty per embryo, so it could have swung all in that direction. Wow. But I was young and I didn't have fertility problems. That's why I wish because we had a lot of embryos, right, twelve. Yeah, I mean I've I've just been through egg freezing with like four of my friends this past year, and the lack of dating has put a real wake up call and a lot of my friends who don't have a significant others and they're over forty and let me tell you, twelve is a very good number, Like that is high as buck. Yeah. No, I had they retrieved thirty. I had thirty three follicles. Oh my god. Trying to remember how old I was. I was like in my twenties. So there, I was like, right, So the implantation process, did it take right away the first embryo that was chosen? Did you pick I don't know if you want to talk. Did you pick a boy on purpose? Did you just like, how do you do that? Yeah? Well, I don't know. I don't know what the right answer is. We just told our doctor, like, you choose one that you think is healthiest and put it in me and we'll see what happens. And so she did and it took and uh then it was a little boy and we were over the moon. How was your pregnancy? Does Huntington's show up at all when there's this many hormones and changes in fluctuation in your body or is it completely dormant and doesn't matter? No? Yeah, the Huntington's basically is just building up. The protein builds up inside your body until you finally see symptoms. So, but it doesn't affect until it's built up enough. Got it. So it didn't affect my pregnancies. My pregnancies weren't that. I had collistasis with McCoy. Do you even know what that is? That? What's that? Well? Are you ready for this? It's a weird disease seem to hit the lottery on um. It's basically where your liver stops processing the bile and your body. And so at thirty seven weeks I went in for my checkup and uh, my O B was like, uh, is there any symptoms that have been happening? You're feeling fine? I'm like, yeah, I'm fine. And Scott's like she's been really itchy on her hands and her feet, like crazy itchy, Like I would make him scratch my feet and weight me up at night. And I was like, maybe that's not anything. And my b said, well, just let's run this test. It's real rare, but we'll run it. They ran it, and sure enough, I had what's called cola stasis, and one of the symptoms is having insanely itchy hands and feet. I know one other person, Casey Wilson. Do you know this actress, Casey Wilson. No, she's been a guest on Katie scrib but she was on Happy Endings. She had cola stasis and her calfs and lower legs were itching like a fucking motherfucker. And rushed her in. They induced her, but like, so your liver just stops functioning. Yeah, it just stops, like the bio builds up in your body. Basically, it's bizarre. Good. They did the same thing. Rushed me in potosan forced it out forty forty four hours of labor and it ended in a section No what so And you're like the most so for you guys listening. You can't see her, but she's like literally the physically strongest woman. I know, I'm not kidding, Like how many you can run like a lot of miles like you are like very physically fit. Okay, I want you to picture like a hard core cheerleader, like you run, you do pilates, like you worked out so like the fact that you ended up in a C section, like was it just stopping? Like did you get the epidural in the potocon and your body was not responding or the baby was in stress? I got the potosan no epidural and then twenty four hours in ended up with the epidural and then uh yeah, he was just stuck. So you were dilating anymore and he just and you were like, I mean they were forced, they were forcing me, right, So they did the fully balloon? Oh yeah, I had is all of it. I have the most embarrassing story about the fully balloon what like I shouldn't say it, Okay, then don't, but if you want to, if you want to, you can. But there is absolutely no pressure here. I had a fully balloon to which, by the way, then I went to work on Scandal and I said to Scott fully is this from your fun? You like you? This medieval torture device that's in the shape of a balloon that's like put intoside my vagina and slowly, over time the balloon is blown up. Yeah, I'll tell you the story. Tell me. So when I went in, they gave me like the pill on your cervix to soften it and start opening, and then they inserted the fully balloon. And I had been there a while, and I, being a woman who had knocked one through birth before, I was terrified of pooping. Of great, I did not want to poop while giving birth. Now I could give two ships, but back then I was tear literally, I was terrified of it. So I had the fully balloon in and I was like, oh my god, I think you have to poop. This is great. I'll poop before I give birth and then I won't poop while giving birth. Great. I like, take my little ivy bag of potocin and the fully balloon and I'm like, babe, helped me get to the bathroom. Scott takes me to the bathroom and I sit down and I'm like, this is great poop and the fucking fully balloon comes out into the poop and I fully balloon. I am freaking out because one nobody told me it was supposed to come out, so I thought something wrong. So I'm like Scott, Scott, and he comes rushing it and I'm like, I pooped in the thing came out, and he's like, okay, and God bless him, God bless his knees, and he's like plucking the way. I think if I hold the balloon and we flushed the toilet, the poop will go down. But the jack we're devising this plan together to try and get out of this situation. I've gotten us in and the nurse walks around the corner and she's like, honey, what are you doing. Get up off the floor. This is my job. This is no big deal. O my god. Yes, and everybody fucking poops. Also the fully balloon, what it meant was that you were probably forced meters dilated and the fully balloon came out when it was supposed to. Yes, exactly, but we did not know that. And I love my husband so much because he did not care. He was going to get me out of the situation. I'd tell you know, he's the real deal. That was the only poop I had prior and then with Clover I had already had a c section, and I had already done forty four hours of labor, and I just didn't feel like doing it again. So I just scheduled a c section with her perfect And did you always know you wanted to? Yes, we always wanted to. At one point, Scott one at three and then we had one, and he's like two is good? Great? Great? Great? And how did you pay? Did you want a girl? Did you do the same thing to the to your doctor, like pick the healthiest one, or you were like, I want a girl. Yeah. We looked at it as our silver lining. We're just gonna choose the girl after all the crap I would have, Are you kidding? Yes, after all the like shit, I would like to be a mother of a girl. Also, you know, yes, please, thank so much. Yep, that's what we did. We love to say that my daughter is like very old for her age. She's very mature. Is she's always been that way, Like she's just very mature. And we we always say, well, she sat on ice for two years, so she just must she must have this old soult. Because her and McCoy were the same group. Oh yeah, they're kind of I mean it's so weird. That's so weird. They're the same embryonic age. Is that a thing? I don't know, but it's like, you know, they would have been if it would have been normal, they would have been fraternal twins. Wow, this is so weird. Cool, it's so cool. Have you and Scott, I mean they're so young, but like, have you guys talked to them at all about hunting this disease? They know what it is? How did those conversations happen? Do we have a plan for that? That's funny should say that because I was just telling Scott we needed to talk to our nursery school about how we're going to approach it kind of going forward. Because Scott and I am very open that I have Huntington's and always getting older, and he does not know that I have it. Um. He knows that my mom has it, and we've talked to him about what it does because she does have symptoms and we want him to be emphatic um more than anything. So he knows Gammy has it what he calls my mom cute um, but he doesn't know I have it, and Clover doesn't either, So there's so little they're so little, but they know so much. It's so wonderful. And I feel like everyone should use their teachers more because they I think if you have a teacher, you love getting their advice of how to approach kids with some big, big hard topics is always another avenue of where to get advice from. I'm sure they will be very helpful, you know. I feel that what you're saying goes back to just allowing your community to help you, right, Like reaching out and finding somebody in your community to help you navigate a tough subject is good. That's what we should be doing that with people in our community. For sure. You take such a better left turn at boundaries and limits than I do. You are so good at setting loving boundaries, which I've had to learn as a parent that that is a form of love. Like I was such a goody two shoe as a kid. I didn't need limits set. I was such a rule follower, and my son is really not. And it took me so long to understand that setting boundaries and limits is like a loving thing to do. It's not like a bad thing to do. I suck at it. So if you're no, you're great, Like, how are you so good at it, but it's not. I might be good at it, but one I've had more practice than you. My son is six years old and he's pushing the boundaries like crazy right now. But I am a huge, huge believer in boundaries because I feel like it's the only way where I actually get them to listen to me. And it sucks, and it sucks to say fifty times, I will not let you do that. I cannot let you do that. McCoy, I cannot let you do that, but I won't give in. And when that boundary is set, they know they're safe and they're secure in there, and they just feel better in life. I feel like they feel better in their emotions and their feelings. You can have the big cry. I am okay with you expressing your emotions. I'll hold you while you do it, but we're not going to do the thing you want to do. Can you give an example right now, like a boundary, Like tell me what I'm looking down the pipe? That's a six year old son. He's just very um, what's the word I'm looking for. So he's just very defiant right now. He's very not defiant. He's a very good kid. He's great in school, but defiant in I was like, okay, it's bed time, and now we've regressed back to like, no, I don't want to go to bed where it's like we've moved past that. It's been years since he did that, but it seems like the defiancy. Yep, so I'm in defiancy too. I don't know, but my four year I mean, Albie is unbelievably defiant, challenging, strategic. Give him an inch, she takes a mile. I mean it's like mastermindful. It's crazy well, and I feel like when I do give them an inch, it gets a million times worse. I just try to like lock down the boundaries and tighten them. And when I feel them really pushing, I pushed the boundary even farther and I almost make I almost pick a fight, if that makes sense. Like I can see that they're teetering on their emotions, that it's there, it's ready to come out, but it hasn't come out yet, and I will choose something to say no one, just out of the blue, like well, let's read this book tonight. Well we're not going to read that book tonight, just no, just so that we can get the feelings out, because I feel like once he cries and has the feelings, we can move past them. But until that moment of him having the outburst, they're just sitting at the surface, bubbling, and it disturbs everything we have for the day. I know, it's so true. I know, and you know the feeling has nothing to do with that. Oh my god, I'm like, so it's just like I just pick an arbitrary thing to pick the fight about. Wow, it's smart, just STI get it out. Yeah, that's really good. How are they and getting along? They love it too? And do they ever physically fight? I'm just asking because I'm like, is that what's coming? What am I gonna do? My kids don't physically fight? Is she trying to take choice from him? Him take choice from her? What does that look like? No, I think the pandemic had something to do with it, But my kids are insanely blips. They spend every night that they can't in a bed together. They have slumber parties on the weekends because that's what they want to do. Um. I told him no school nights, and like, you can't do it on a school night. Do they share a bedroom? Or no, No. We thought about moving Clover in because they wanted to. But I just want to be able to put them in separate beds if I need. It's all about that boundary, right, Like if I if they shared a bedroom, um, then I couldn't say, like if they're testing bed okay, well tonight, it's going to be a night. You can't sleep together if you can't follow the rules and listen to mom or progress forward in bedtime. But they want to be together. That is so cute that they are so close. You know what a blessing that is. I mean, it's just so wonderful that they have each other, you know, like through everything that will come their way, it's just got And that they're close and that they get along. You know, I'm really really close with my brother, and I'm so fucking grateful. I love that. I hope it sticks. And like I said, I think COVID then just look, if you're gonna play with them, your sister is the person you're gonna play with, so figure it out, you know. Wow. And also that they were in the same pod at school. They were in the same pod at school, they were together all the time. They didn't have time apart. Wow, Wow, parenting styles? Who is the disciplinarian? Because I think it's you? Is it you? Yeah, it's for sure. Scott can discipline as well. But I'm with them, you know, more more discient. I am with them, so I probably over explain everything, um to the point of them not and knowing what I'm talking about. No, you are very verbal. You don't talk to them like their babies. You respect them as individuals. Do you and Scott ever have major Are you guys always united? I mean we always try to be united front in front of our kids no matter what. But do you guys have major any like differing parenting styles that someone's had to budge on or move or learn change? I mean, for sure, we There's been quite a few. I think that that both of us have had to decide how we were going to move forward together with right and especially because when you become a parent, you don't know how to parent, You don't know what your parenting style is going to be. You couldn't even define that. So especially me, I am a I like knowledge. I like information, So I read books, I research everything, um, and then I send it to Scott and I'm like, hey, read this and then let's get on the same page, you know, because he doesn't have all that time. They get more as my job to try and figure out the right moves. Can you think of any like one or two favorite books or or resources that have been instrumental to you in parenting? Um? Yeah, but they're not even parenting book? Does that matter? Are they? It does not matter? What My one of my favorites is a book called Never an Anger, And it's what's that It's so obscure. It's so obscure. And you can blame Mary O'Malley for me even finding this book because she sent me this blurb from an article about like talking to your children calmly and the effect that it has on them versus raising your voice and being upset. And they were referencing back to like how Inuit family used to do it. And so of course I'm reading this article and I'm like, well, where is this information from? Because that's just who I am. So I'm like, bibliography and bibliography, and I go and I find this book and it's I don't know, it's probably like six hundred pages or something, and it's just the portrait of an Eskimo family from like the sixties and seventies, and an anthropologist went and lived with them, and she observed them, and she observed how they raised their children, and she wrote it all down. She had like a typewriter that she keeping the iglue like she lived with a god. And it not only is it a fascinating book because she's living with an Eskimo family. Yeah, in the sixties, right before before the internet, before the you know, the share of information and happened. And she dispensed this knowledge of how they raised their children. And they believe that a child does not have reason. You're born without reason, and so you should be treated as such. If you are acting out, it's not because you're being mean, it's because you have no reason. But as an adult, we have reason. We should be able to control our emotions because we are the older one, we have the experience to do so. And it really struck me. Right, It's like, yeah, you're right, And it could have been anybody telling me that, right, It didn't have to read this book. No, I I think you don't get rational thought till they're like seven. Yeah, they don't know what they're doing. No, you're negotiating with a terrorist so to like and also to put on them, like when I would say like, oh, he's manipulating the situation, it's like he doesn't know, he doesn't know what the funk he's doing, Like he has no idea. And is there anything else that is like a go to guide for you? Like were you like a big Magda Gerber reader? Janet Landsberry was always Janet Janetmazing, She's amazing. She's an amazing podcast called Unruffled. She's fucking brill Yeah, there's a Janet Landsbury book that I swear by called No Bad Kids. I Um, it's funny. I had a friend who had just the come a mom and she told me that she was at her friend's house and Janet Landsbury lived next door, and it was like celebrity siding right because it was Janet Landsbury. And she was so excited to tell me because I was the other mom, and I was like, you saw Janet Landsbury? It was like it was so funny. Is the best? I'm like, the best, the best? Okay, as we're wrapping up, what the heck is your parenting advice? And teach me how to be as good at it as you are. I think I have to have more play dates with you. Honestly, I think if I had more play dates, you would just rub off on me. Well, we will have you over when the other you want, please, Okay, okay. So my number one thing, my motto in life, which reflects down to my parenting, is everyone is different. I want to put it on a T shirt. I want to ride it on my kids walls. Everyone is different, and it literally works for any situation everything. Yes, so my son comes home, you know, why does my friend get to go to Disneyland all the time. Well, every family is different, and every family value is going to Disneyland different. So while you know they go often because it's something that's important to them, we treat it like a celebration. So we go list. Everyone is different, works for everything, works for everything, especially as they get older, like it really does. So everyone is different is my number one saying in life and in my family. I love it. I'm stealing that ship. It's good. Everyone is different. Everyone is different, different, I mean it works for everything. And you know, McCoy came home the other day and he wears his hair in a ponytail long and shaved underneath, and he wears in pony Town and he said, Mom, my friend. My friend said I have girl's hair, which I'm like, really like, aren't we And we live in l A. And I said, what did you say? And he said I just told him that everyone is different and everyone wears their hair afferently. And I said, yeah, buddy, that's right, Yeah, buddy, that's right. And then I said, also, it's only an insult if you think being a girl is an insult. Do you think being a girl is an insult? Like, no, Mom, you're cool glower school. Yeah, so we're all good. Great answer, great answer, um. And then I have three things that I want my children to be always kind, adaptable, intolerant. I don't care what else they learn in the world. They will academics and all that stuff. They'll figure it out, but I want them to be kind, adaptable. All right, big doors, see you guys listening. Do you see why Kelsey Porter is a fucking incredible mom. You're also just so grounded and strong. I'm just like so wishy washy. I'm like, what's happening. It's just it's great. We gotta hang out more. You gotta rub off on me a good best to you, this is amazing. Tell me, I think we touched on it a little bit, but again just to say it. You guys. HD Freeze is a yearly gala um. There's awesome stuff that's auctioned off every year, like awesome holiday like Hollywood celebrity ship, sports stuff, memorabilia, signed stuff, and all of the proceeds go to it. All goes to h d s A. And to date we've raised over one point three million dollars and just like the past seven years. So it's a huge event and it's actually changing people's lives because all of that money goes back to making centers and making sure that people and families have the support that they need to battle this awful disease. Because it's not just the person that has HD, right, it's the whole family. You all become caretakers. Everybody has a chance of having it and it just spreads like wildfire. No, it affects a lot of people. Do you know what the number how many people in America to have? So people in America are symptomatic with it and then another like four hundred thousand or are at risk of having it. Wow, most people don't get tested, so most people in my situation, they choose not to know. Um, it's very it's hard. I think you know you're saying I'm grounded. I think I think it grounds me. I think that's what it does for me. It's heavy, and I'm constantly reminded that the kids, the mother that my kids see right now is not the mother they will see you later in live and so I want to be a good mom to them now and I think that's why I put so much effort into it. You're unfucking believable. What made me feel so uncomfortable? No, I know so many moms, and let me tell you, you are fucking tops like you are. So you are doing an incredible job and your children are incredible, and um, they're so lucky to have you. Let's all work on getting some of these trials started, new ones, different ones. Figure this shit out, h d SA dot org, freeze HD. We're going to be linking to a bunch of stuff at the time when this podcast comes out, and I will also always be blasting and posting when the Gala happens every year. But come on, guys, let's get this going. Kelsey Porter, thank you so much for being on Katie's Crapy, You're fucking awesome. You have to come back on. Thank you for having me and making me feel like what I have to say is valuable because I don't look at you like that. I really what you have to say is so valuable. I'm thank you, Katie. Thank you guys so much for listening to today's episode. I want to hear from you. Let's chat questions, comments, concerns. Let me know. You can always find me at Katie's Crib at Shonda land dot com. Katie's Crib is a production of Shonda Land Audio in partnership with I Heart Radio. For more podcasts from shandaland Audio, visit the I Heart Radio app, Apple Podcasts, or wherever you listen to your favorite shows.