Parents and caregivers in the rare disease community often feel alone, overwhelmed and stressed in the journey of caring for their loved ones. This is the second part of a conversation where we find out about the mental health needs of caregivers in this situation, and why parental support is crucial. 

This conversation touches on suicide and self-harm. If you, or someone you know, needs emotional support, call 03-76272929 or email sam@befrienders.org.my, or reach out for help within your community. You can also contact Talian HEAL at 15 555, MIASA at 1-800-1800-66 or Thrive Well. You can also reach out to Malaysia Rare Disorders Society for support from the rare diseases community.

Listen to Part 1 here.

Image Credit: Malaysian Rare Disorders Society (Persatuan Penyakit Jarang Jumpa Malaysia) Facebook