In this third episode of Getting Clear on Psoriasis, host Jilly Carter is joined by Heather, who lives with Generalized Pustular Psoriasis (GPP), and Dalton, her husband and care partner. Together, they discuss what life is like living with GPP and the impact it has had on their family. Heather talks about her journey to diagnosis, as well as how she organizes her life to best manage her GPP. The couple explores how their community has reacted to their situation and how Heather advocates for education around GPP. Dalton also offers advice on how to best support a partner living with GPP.

Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.

More About the Show

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at patient.boehringer-ingelheim.com/gpp/

Learn more about the show at https://creakyjoints.org/getting-clear-on-psoriasis/ 

In this third episode of Getting Clear on Psoriasis, host Jilly Carter is joined by Heather, who lives with Generalized Pustular Psoriasis (GPP), and Dalton, her husband and care partner. Together, they discuss what life is like living with GPP and the impact it has had on their family. Heather talks about her journey to diagnosis, as well as how she organizes her life to best manage her GPP. The couple explores how their community has reacted to their situation and how Heather advocates for education around GPP. Dalton also offers advice on how to best support a partner living with GPP.
Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.
More About the Show
We want to hear what you think. Send your comments or questions to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at <a href="https://patient.boehringer-ingelheim.com/gpp/">patient.boehringer-ingelheim.com/gpp/</a>
Learn more about the show at <a href="https://creakyjoints.org/getting-clear-on-psoriasis/">https://creakyjoints.org/getting-clear-on-psoriasis/</a>&nbsp;

A podcast series about what it takes to live better with psoriasis — from the experts who treat it and the people who live with it.

Living with psoriasis isn’t easy. It can be physically and emotionally challenging, with symptoms that disrupt your daily life and leave you feeling disconnected. But with the right information, treatment plan, and support, managing psoriasis becomes a lot more possible — and hopeful.

This podcast series is here to help. Each episode features real stories from people living with psoriasis and expert insights from the healthcare professionals who care for them. Our goal is to provide helpful, relatable information that empowers you to take control of your care, explore treatment options, and live a fuller, more connected life.

This podcast is part of the Global Healthy Living Foundation Podcast Network.

A podcast series about what it takes to live better with psoriasis &mdash; from the experts who treat it and the people who live with it.
Living with psoriasis isn&rsquo;t easy. It can be physically and emotionally challenging, with symptoms that disrupt your daily life and leave you feeling disconnected. But with the right information, treatment plan, and support, managing psoriasis becomes a lot more possible &mdash; and hopeful.
This podcast series is here to help. Each episode features real stories from people living with psoriasis and expert insights from the healthcare professionals who care for them. Our goal is to provide helpful, relatable information that empowers you to take control of your care, explore treatment options, and live a fuller, more connected life.
This podcast is part of the&nbsp;<a href="https://ghlf.org">Global Healthy Living Foundation</a>&nbsp;Podcast Network.

Getting Clear On Psoriasis

A podcast series about what it takes to live better with psoriasis — from the experts who treat it and the people who live with it.

Living with psoriasis isn’t easy. It can be physically and emotionally challenging, with symptoms that disrupt your daily life and leave you feeling disconnected. But with the right information, treatment plan, and support, managing psoriasis becomes a lot more possible — and hopeful.

This podcast series is here to help. Each episode features real stories from people living with psoriasis and expert insights from the healthcare professionals who care for them. Our goal is to provide helpful, relatable information that empowers you to take control of your care, explore treatment options, and live a fuller, more connected life.

This podcast is part of the Global Healthy Living Foundation Podcast Network.

A podcast series about what it takes to live better with psoriasis &mdash; from the experts who treat it and the people who live with it.
Living with psoriasis isn&rsquo;t easy. It can be physically and emotionally challenging, with symptoms that disrupt your daily life and leave you feeling disconnected. But with the right information, treatment plan, and support, managing psoriasis becomes a lot more possible &mdash; and hopeful.
This podcast series is here to help. Each episode features real stories from people living with psoriasis and expert insights from the healthcare professionals who care for them. Our goal is to provide helpful, relatable information that empowers you to take control of your care, explore treatment options, and live a fuller, more connected life.
This podcast is part of the <a href="https://ghlf.org">Global Healthy Living Foundation</a>&nbsp;Podcast Network.

Living with GPP: The Impact It Can Have and Ways to Help Manage It

In the first episode of season 3, our host Naomi is joined by two guests: Jana, who was diagnosed as a teenager with guttate psoriasis and has worked her way through years of treatments to finally find a biologic that’s made a life-changing difference; and Krystal, who was diagnosed in childhood with plaque and guttate psoriasis and shares openly about the stigma she faced, the exhaustion of trial-and-error treatments, and her hopes for finally finding something that works.

Together, they reflect on the emotional toll of psoriasis, the financial and systemic barriers that can stand in the way of care, and the importance of trusting relationships with healthcare providers. This episode offers an honest look at what it means to keep advocating for yourself, and a reminder that even after years of trial and error, better options and renewed hope may still be within reach.

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This third season of Getting Clear On Psoriasis is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from BMS Australia.

For more information, visit https://creakyjoints.org/getting-clear-on-psoriasis

In the first episode of season 3, our host Naomi is joined by two guests: Jana, who was diagnosed as a teenager with guttate psoriasis and has worked her way through years of treatments to finally find a biologic that&rsquo;s made a life-changing difference; and Krystal, who was diagnosed in childhood with plaque and guttate psoriasis and shares openly about the stigma she faced, the exhaustion of trial-and-error treatments, and her hopes for finally finding something that works. Together, they reflect on the emotional toll of psoriasis, the financial and systemic barriers that can stand in the way of care, and the importance of trusting relationships with healthcare providers. This episode offers an honest look at what it means to keep advocating for yourself, and a reminder that even after years of trial and error, better options and renewed hope may still be within reach. Meet the Team Host: Naomi Creek, National Coordinator at CreakyJoints Australia. A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF. This third season of Getting Clear On Psoriasis is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from BMS Australia. For more information, visit <a href="https://creakyjoints.org/getting-clear-on-psoriasis">https://creakyjoints.org/getting-clear-on-psoriasis</a>

Walking the Treatment Path to a Brighter Future

In this second episode of Getting Clear on Psoriasis, we explore the physical toll of living with Generalized Pustular Psoriasis (GPP). Host Jilly Carter is joined by Nerea Moran, a nurse living with GPP, and Dr. Peter van de Kerkhof, a dermatologist from Radboud University Medical Center for a candid discussion about how GPP flares manifest and disrupt daily life. Nerea shares her personal experience with the pain, fatigue, and unpredictability of flares, while Dr. van de Kerkhof explains how GPP presents clinically, and what patients can expect during a GPP flare. From struggling to walk or sleep to navigating interactions with medical providers, this episode sheds light on the challenges—and the resilience—of living with a rare chronic condition like GPP.

Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.

More About the Show

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at patient.boehringer-ingelheim.com/gpp/

Learn more about the show at https://creakyjoints.org/getting-clear-on-psoriasis/ 

In this second episode of Getting Clear on Psoriasis, we explore the physical toll of living with Generalized Pustular Psoriasis (GPP). Host Jilly Carter is joined by Nerea Moran, a nurse living with GPP, and Dr. Peter van de Kerkhof, a dermatologist from Radboud University Medical Center for a candid discussion about how GPP flares manifest and disrupt daily life. Nerea shares her personal experience with the pain, fatigue, and unpredictability of flares, while Dr. van de Kerkhof explains how GPP presents clinically, and what patients can expect during a GPP flare. From struggling to walk or sleep to navigating interactions with medical providers, this episode sheds light on the challenges&mdash;and the resilience&mdash;of living with a rare chronic condition like GPP.
Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.
More About the Show
We want to hear what you think. Send your comments or questions to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at <a href="https://patient.boehringer-ingelheim.com/gpp/">patient.boehringer-ingelheim.com/gpp/</a>
Learn more about the show at <a href="https://creakyjoints.org/getting-clear-on-psoriasis/">https://creakyjoints.org/getting-clear-on-psoriasis/</a>&nbsp;

Understanding Flares: The Physical Reality of Living with GPP

In this first episode of season 2 of Getting Clear on Psoriasis, host Jilly Carter is joined by Nerea, a nurse living with Generalized Pustular Psoriasis (GPP), and Dr. Peter van de Kerkhof, a leading dermatologist and Head of Dermatology at Radboud University Medical Center. Together, they discuss the impact of GPP on daily life, the challenges of managing relationships, and the emotional toll of unpredictable flares. Throughout the conversation, Jilly, Nerea, and Dr. van de Kerkhof reflect on how GPP is a whole-body, lifelong condition, and why addressing mental health is just as important as managing physical symptoms.

Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.

More About the Show

We want to hear what you think. Send your comments or questions to podcasts@ghlf.org

This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at patient.boehringer-ingelheim.com/gpp/

Learn more about the show at https://creakyjoints.org/getting-clear-on-psoriasis/ 

In this first episode of season 2 of Getting Clear on Psoriasis, host Jilly Carter is joined by Nerea, a nurse living with Generalized Pustular Psoriasis (GPP), and Dr. Peter van de Kerkhof, a leading dermatologist and Head of Dermatology at Radboud University Medical Center. Together, they discuss the impact of GPP on daily life, the challenges of managing relationships, and the emotional toll of unpredictable flares. Throughout the conversation, Jilly, Nerea, and Dr. van de Kerkhof reflect on how GPP is a whole-body, lifelong condition, and why addressing mental health is just as important as managing physical symptoms.
Disclaimer: The experiences and opinions shared in this episode reflect those of the participants and should not be considered medical advice.
More About the Show
We want to hear what you think. Send your comments or questions to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
This podcast was produced on behalf of Boehringer Ingelheim and distributed by the Global Healthy Living Foundation. Discover more about GPP at <a href="https://patient.boehringer-ingelheim.com/gpp/">patient.boehringer-ingelheim.com/gpp/</a>
Learn more about the show at <a href="https://creakyjoints.org/getting-clear-on-psoriasis/">https://creakyjoints.org/getting-clear-on-psoriasis/</a>&nbsp;

Living with GPP: The Impact It Can Have and Ways to Help Manage It

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