For years, parents have been told their observations about their child's PANS/PANDAS symptoms don't match the "typical" pattern—leaving them confused, doubting themselves, and struggling to get proper treatment. But what if there isn't just one typical pattern? What if your child's unique journey is actually completely normal?
In this episode, we break down a groundbreaking Stanford University study that finally gives scientific validation to what parents have been experiencing all along. Licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth to translate the complex research into practical insights families can use today. Discover why having a common language for flares changes everything—from getting doctors to take you seriously to knowing what to expect in the months and years ahead.
Whether your child just had their first flare or you've been navigating this journey for years, this episode offers both validation and hope. Because when the research finally catches up to what parents have been saying, everything changes.
Read the full transcript of this episode at PANDASMichiana.com.
RESOURCES:
Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts
Claimable https://www.getclaimable.com/
PANDAS Michiana https://pandasmichiana.com/
PANDAS Physician Network https://www.pandasppn.org/
PANDAS Network https://pandasnetwork.org/understanding-pandas/
Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae
ASPIRE PANS PANDAS Advocacy, Community & Support Aspire
Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions
Mind Global Council https://www.mindglobalcouncil.com/
OCD Family Podcast https://www.ocdfamilypodcast.com/
Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/
Parenting Resources:
Dr. Ross Greene https://drrossgreene.com/
Dr. Becky Kennedy https://www.goodinside.com/about/
Dr. Dan Siegel https://drdansiegel.com/
Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/

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