In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial welcome internationally renowned intervention scientist, gerontologist, and Drexel University Dean Emerita Dr. Laura Gitlin. Together, they explore how tailored activities can transform dementia care, restore a sense of purpose for individuals living with cognitive decline, and alleviate caregiver stress. 

Episode Summary

Dr. Gitlin shares her nearly 40-year journey in gerontology, starting from early observations in nursing homes where residents living with dementia were left inactive and unengaged. Highlighting how family caregivers frequently struggle to find meaningful ways to engage their loved ones, Dr. Gitlin explains the origin and framework of the Tailored Activity Program (TAP). 

Rather than relying on one-size-fits-all activities, TAP focuses on identifying a person’s intrinsic interests and modifying tasks to match their current cognitive and physical abilities. The discussion covers practical examples across various stages of dementia, the role of occupational therapists (OTs) and other care providers, and the profound outcomes of tailored activities—from reducing hospitalizations to bringing moments of joy and happiness. 

Key Takeaways


Matching Interests to Current Capacities: Meaningful engagement requires connecting activities to intrinsic interests while adapting them to current functional levels. For example, a lifelong traveler with limited mobility might enjoy travel videos, color-focused visual programs, or photography books. 


The Enduring Need for Purpose: The fundamental need for a role, purpose, and identity remains throughout every stage of dementia. Engaging in tailored activities helps satisfy this need regardless of disease progression. 


Therapeutic Benefits for Caregivers & Recipients: Properly matched activities can reduce challenging behaviors (such as agitation, shadowing, or repetitive questioning), decrease hospitalizations, and lower caregiver burden and depression. 


Adaptation Across Disease Stages:


Early/Moderate Stages: Goal-directed activities like completing a crafted gift box. 


Severe/Late Stages: Sensory-rich experiences, including tactile materials, calming music, armchair exercises, procedural memory tasks (like holding or playing an instrument), or uplifting videos. 


The Role of Occupational Therapy: While TAP is designed around the expertise of OTs who assess cognitive capacity and environmental factors, elements of the program can be delivered by trained volunteers, nurses, social workers, and family caregivers. 


Focusing on What Remains: Traditional neurological tests evaluate lost capabilities, whereas TAP identifies remaining strengths to guide communication strategies, adapt environments, and set appropriate expectations. 

Key Moments & Highlights


Introduction: Hosts Ron Aaron and Carol Zernial introduce Dr. Laura Gitlin and set the stage for discussing engagement in dementia care. 


Origin of the Work: Dr. Gitlin discusses observing resident inactivity in long-term care facilities and hearing family caregivers ask, "What do I do with my loved one?"




Tailoring Activities: Why single solutions (like generic music or crafts) don't work, and how to adapt activities around intrinsic interests. 


Real-World Connections & "Wowzitude": Host Carol Zernial highlights the Wowzitude Memory Travels program and shares how recognizing a loved one's past professional role can explain and redirect behaviors. 


Stage-Specific Activity Examples: From goal-directed crafts in early stages to sensory and procedural memory activities in advanced stages. 


Measuring Success & The Priority of Joy: Shifting focus from standard clinical metrics toward fostering moments of joy, laughter, and personal satisfaction. 


Delivery & Payment Models: How OTs and other professionals integrate TAP into care plans, along with navigate prescription requirements and Medicare reimbursement considerations in the U.S. 


Caregiver Realizations & Lasting Impact: How caregivers gain new perspective on their loved one's abilities, featuring a moving story of a caregiver utilizing TAP strategies years later.

About Dr. Gitlin

Laura N. Gitlin, PhD, FGSA, FAAN is internationally and nationally ranked among the top social scientists. She is an intervention scientist, dean emerita, and a distinguished professor in the College of Nursing and Health Professions, Drexel University. She co-founds and is chief scientific officer of Plans4Care, Inc. She is the author/co-author of over 550 scientific publications and seven books. Her recent co-authored, Handbook of Intervention Science: From Design to Implementation (Academic Press), was reviewed as “lifting intervention science to new heights”. She works with numerous proven programs such as COPE, Adult Day Service Plus, Get Busy Get Better and the Tailored Activity Program.

Guest Contact: To learn more about Dr. Laura Gitlin's research and work, email her directly at LNG45@drexel.edu.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial welcome internationally renowned intervention scientist, gerontologist, and Drexel University Dean Emerita Dr. Laura Gitlin. Together, they explore how tailored activities can transform dementia care, restore a sense of purpose for individuals living with cognitive decline, and alleviate caregiver stress. 
Episode Summary
Dr. Gitlin shares her nearly 40-year journey in gerontology, starting from early observations in nursing homes where residents living with dementia were left inactive and unengaged. Highlighting how family caregivers frequently struggle to find meaningful ways to engage their loved ones, Dr. Gitlin explains the origin and framework of the Tailored Activity Program (TAP). 
Rather than relying on one-size-fits-all activities, TAP focuses on identifying a person&rsquo;s intrinsic interests and modifying tasks to match their current cognitive and physical abilities. The discussion covers practical examples across various stages of dementia, the role of occupational therapists (OTs) and other care providers, and the profound outcomes of tailored activities&mdash;from reducing hospitalizations to bringing moments of joy and happiness. 
Key Takeaways
<ul data-path-to-node="8">
<li>
Matching Interests to Current Capacities: Meaningful engagement requires connecting activities to intrinsic interests while adapting them to current functional levels. For example, a lifelong traveler with limited mobility might enjoy travel videos, color-focused visual programs, or photography books. 
</li>
<li>
The Enduring Need for Purpose: The fundamental need for a role, purpose, and identity remains throughout every stage of dementia. Engaging in tailored activities helps satisfy this need regardless of disease progression. 
</li>
<li>
Therapeutic Benefits for Caregivers &amp; Recipients: Properly matched activities can reduce challenging behaviors (such as agitation, shadowing, or repetitive questioning), decrease hospitalizations, and lower caregiver burden and depression. 
</li>
<li>
Adaptation Across Disease Stages:
<ul data-path-to-node="8,3,1">
<li>
Early/Moderate Stages: Goal-directed activities like completing a crafted gift box. 
</li>
<li>
Severe/Late Stages: Sensory-rich experiences, including tactile materials, calming music, armchair exercises, procedural memory tasks (like holding or playing an instrument), or uplifting videos. 
</li>
</ul>
</li>
<li>
The Role of Occupational Therapy: While TAP is designed around the expertise of OTs who assess cognitive capacity and environmental factors, elements of the program can be delivered by trained volunteers, nurses, social workers, and family caregivers. 
</li>
<li>
Focusing on What Remains: Traditional neurological tests evaluate lost capabilities, whereas TAP identifies remaining strengths to guide communication strategies, adapt environments, and set appropriate expectations. 
</li>
</ul>
Key Moments &amp; Highlights
<ul data-path-to-node="11">
<li>
Introduction: Hosts Ron Aaron and Carol Zernial introduce Dr. Laura Gitlin and set the stage for discussing engagement in dementia care. 
</li>
<li>
Origin of the Work: Dr. Gitlin discusses observing resident inactivity in long-term care facilities and hearing family caregivers ask, "What do I do with my loved one?"
 
</li>
<li>
Tailoring Activities: Why single solutions (like generic music or crafts) don't work, and how to adapt activities around intrinsic interests. 
</li>
<li>
Real-World Connections &amp; "Wowzitude": Host Carol Zernial highlights the Wowzitude Memory Travels program and shares how recognizing a loved one's past professional role can explain and redirect behaviors. 
</li>
<li>
Stage-Specific Activity Examples: From goal-directed crafts in early stages to sensory and procedural memory activities in advanced stages. 
</li>
<li>
Measuring Success &amp; The Priority of Joy: Shifting focus from standard clinical metrics toward fostering moments of joy, laughter, and personal satisfaction. 
</li>
<li>
Delivery &amp; Payment Models: How OTs and other professionals integrate TAP into care plans, along with navigate prescription requirements and Medicare reimbursement considerations in the U.S. 
</li>
<li>
Caregiver Realizations &amp; Lasting Impact: How caregivers gain new perspective on their loved one's abilities, featuring a moving story of a caregiver utilizing TAP strategies years later.
</li>
</ul>
About Dr. Gitlin
Laura N. Gitlin, PhD, FGSA, FAAN is internationally and nationally ranked among the top social scientists. She is an intervention scientist, dean emerita, and a distinguished professor in the College of Nursing and Health Professions, Drexel University. She co-founds and is chief scientific officer of Plans4Care, Inc. She is the author/co-author of over 550 scientific publications and seven books. Her recent co-authored, Handbook of Intervention Science: From Design to Implementation (Academic Press), was reviewed as &ldquo;lifting intervention science to new heights&rdquo;. She works with numerous proven programs such as COPE, Adult Day Service Plus, Get Busy Get Better and the Tailored Activity Program.
Guest Contact: To learn more about Dr. Laura Gitlin's research and work, email her directly at <a href="mailto:LNG45@drexel.edu">LNG45@drexel.edu</a>.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Unlocking Connection & Purpose for Persons Living with Dementia | Dr. Gitlin

In this moving and lighthearted episode of Caregiver S.O.S. On Air, host Ron Aaron and guest co-host Tina Smith (Senior Director of Caregiver Program Operations at the WellMed Charitable Foundation) welcome back comedian, actor, writer, and radio host Keith Price to discuss navigating the intense emotional weight of caregiving through humor and connection.

Keith shares his personal journey of managing long-distance caregiving from New York to Texas while supporting his aging parents. He reflects on the double loss of his mother and father just six weeks apart, the physical and mental toll of 24/7 caregiving routines, and how unexpected emotional triggers—like TV commercials—continue to surface years after a loss as a reminder of enduring love. Drawing on wisdom passed down from comedy icon Joan Rivers, Keith highlights how finding a "sliver of laughter" in the darkest moments can be a vital tool for survival, catharsis, and resilience.

Key Takeaways


The Dual Reality of Laughter and Tears: Crying and laughing stem from the same emotional place; finding humor during tragic times is not disrespectful, but rather a essential survival mechanism for healing.


Long-Distance Caregiving Demands: Balancing long-distance travel with 24/7 caregiving duties creates unique strain and exhaustion, underscoring the deep empathy needed for primary caregivers.


Grief is an Expression of Love: Sudden bursts of sorrow long after losing a loved one are natural reminders of the lasting bond and affection you still carry.


Joan Rivers' Advice on Survival: Finding even a tiny sliver of humor amid hardship provides the emotional relief necessary to keep going through loss.


Accepting Your Limits: Caregivers often wrestle with feelings of guilt or asking if they did enough; recognizing that you did the best you could with the tools you had is vital for peace of mind.

About Keith

Out Comedian, Actor, Writer, radio personality, Keith Price is a dynamic and diverse comic energy who brings every aspect of himself to the stage for the purpose of laughter and understanding. He was the first out, African-American personality on Sirius XM Satellite Radio. He produces and performs in comedy shows in and outside of New York City. He also is the host and executive producer of his own podcast, Keith Price’s Curtain Call available on Broadway World, ITunes, Google Play Music, as well as, MOCHAA with Bobby Rivers.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this moving and lighthearted episode of Caregiver S.O.S. On Air, host Ron Aaron and guest co-host Tina Smith (Senior Director of Caregiver Program Operations at the WellMed Charitable Foundation) welcome back comedian, actor, writer, and radio host Keith Price to discuss navigating the intense emotional weight of caregiving through humor and connection.
Keith shares his personal journey of managing long-distance caregiving from New York to Texas while supporting his aging parents. He reflects on the double loss of his mother and father just six weeks apart, the physical and mental toll of 24/7 caregiving routines, and how unexpected emotional triggers&mdash;like TV commercials&mdash;continue to surface years after a loss as a reminder of enduring love. Drawing on wisdom passed down from comedy icon Joan Rivers, Keith highlights how finding a "sliver of laughter" in the darkest moments can be a vital tool for survival, catharsis, and resilience.
Key Takeaways
<ul data-path-to-node="3">
<li>
The Dual Reality of Laughter and Tears: Crying and laughing stem from the same emotional place; finding humor during tragic times is not disrespectful, but rather a essential survival mechanism for healing.
</li>
<li>
Long-Distance Caregiving Demands: Balancing long-distance travel with 24/7 caregiving duties creates unique strain and exhaustion, underscoring the deep empathy needed for primary caregivers.
</li>
<li>
Grief is an Expression of Love: Sudden bursts of sorrow long after losing a loved one are natural reminders of the lasting bond and affection you still carry.
</li>
<li>
Joan Rivers' Advice on Survival: Finding even a tiny sliver of humor amid hardship provides the emotional relief necessary to keep going through loss.
</li>
<li>
Accepting Your Limits: Caregivers often wrestle with feelings of guilt or asking if they did enough; recognizing that you did the best you could with the tools you had is vital for peace of mind.
</li>
</ul>
About Keith
Out Comedian, Actor, Writer, radio personality, Keith Price is a dynamic and diverse comic energy who brings every aspect of himself to the stage for the purpose of laughter and understanding. He was the first out, African-American personality on Sirius XM Satellite Radio. He produces and performs in comedy shows in and outside of New York City. He also is the host and executive producer of his own podcast, Keith Price&rsquo;s Curtain Call available on Broadway World, ITunes, Google Play Music, as well as, MOCHAA with Bobby Rivers.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Laughter Through the Tears: Finding Joy in Caregiving & Grief | Keith Price

In this episode of Caregiver S.O.S. On Air, host Ron Aaron and guest co-host Tina Smith are joined by Caleb Balaraju from the Bethlehem Intergenerational Center. Caleb shares insights from his work supporting older adults, persons living with dementia, children, and family caregivers through a shared-space model that integrates adult day care with child care.

Episode Summary The discussion highlights how bridging generations enriches the lives of both children (ranging from infants to four-year-olds) and older adults (ranging from their early 50s to upper 80s). Caleb explains how the center provides essential respite care for family caregivers while creating an environment where young children and seniors engage in everyday routines together. The episode explores strategies for facilitating conversations between children and individuals with cognitive decline, overcoming the social isolation often felt by aging adults, and integrating local community partners.

Key Takeaways


Combating Senior Isolation: Social isolation can lead to a loss of community connections as health and cognitive challenges arise. Engaging seniors in purpose-driven, structured activities—such as plant watering, laundry folding, community garden drop-offs, and neighborhood cleanup walks—helps restore a sense of belonging and visibility.


Fostering Connection Amid Dementia: Children naturally hesitate when someone does not communicate as expected. Staff bridge this gap by offering prompt secondary or clarifying questions to keep conversations fluid.


Mutual Benefits: Intergenerational interaction fosters empathy and maturity in children, who often remember seniors' names and share weekend stories. For seniors with dementia, these interactions frequently trigger "sparks" of confidence, mental clarity, and energetic bursts of expression.


Community and Network Collaboration: Beyond internal programming, the center collaborates with local churches, youth groups, neighborhood playgrounds, and local non-profits, serving as a model for researchers and higher education interns studying public health and intergenerational care.

About Caleb

-Time with the Program: I have spent the past two years helping develop the Adult Day Center, providing direct care to participants, and supporting caregivers and their families. One of our key accomplishments has been achieving certification for our Adult Day Center through the Dementia Institute.

Education & Credentials: I earned my Bachelor of Social Work (BSW) from Calvin University and am currently pursuing my Master of Social Work (MSW) at Western Michigan University. I am also a Dementia Certified Professional through the Dementia Institute.

I would like to discuss how intergenerational relationships can benefit older adults, children, caregivers, and the broader community. We can explore how meaningful connections across generations can reduce isolation, create a sense of purpose and belonging, and provide unique opportunities for learning, companionship, and mutual support.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver S.O.S. On Air, host Ron Aaron and guest co-host Tina Smith are joined by Caleb Balaraju from the Bethlehem Intergenerational Center. Caleb shares insights from his work supporting older adults, persons living with dementia, children, and family caregivers through a shared-space model that integrates adult day care with child care.
Episode Summary The discussion highlights how bridging generations enriches the lives of both children (ranging from infants to four-year-olds) and older adults (ranging from their early 50s to upper 80s). Caleb explains how the center provides essential respite care for family caregivers while creating an environment where young children and seniors engage in everyday routines together. The episode explores strategies for facilitating conversations between children and individuals with cognitive decline, overcoming the social isolation often felt by aging adults, and integrating local community partners.
Key Takeaways
<ul data-path-to-node="3">
<li>
Combating Senior Isolation: Social isolation can lead to a loss of community connections as health and cognitive challenges arise. Engaging seniors in purpose-driven, structured activities&mdash;such as plant watering, laundry folding, community garden drop-offs, and neighborhood cleanup walks&mdash;helps restore a sense of belonging and visibility.
</li>
<li>
Fostering Connection Amid Dementia: Children naturally hesitate when someone does not communicate as expected. Staff bridge this gap by offering prompt secondary or clarifying questions to keep conversations fluid.
</li>
<li>
Mutual Benefits: Intergenerational interaction fosters empathy and maturity in children, who often remember seniors' names and share weekend stories. For seniors with dementia, these interactions frequently trigger "sparks" of confidence, mental clarity, and energetic bursts of expression.
</li>
<li>
Community and Network Collaboration: Beyond internal programming, the center collaborates with local churches, youth groups, neighborhood playgrounds, and local non-profits, serving as a model for researchers and higher education interns studying public health and intergenerational care.
</li>
</ul>
About Caleb
-Time with the Program: I have spent the past two years helping develop the Adult Day Center, providing direct care to participants, and supporting caregivers and their families. One of our key accomplishments has been achieving certification for our Adult Day Center through the Dementia Institute.
Education &amp; Credentials: I earned my Bachelor of Social Work (BSW) from Calvin University and am currently pursuing my Master of Social Work (MSW) at Western Michigan University. I am also a Dementia Certified Professional through the Dementia Institute.
I would like to discuss how intergenerational relationships can benefit older adults, children, caregivers, and the broader community. We can explore how meaningful connections across generations can reduce isolation, create a sense of purpose and belonging, and provide unique opportunities for learning, companionship, and mutual support.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Bridging the Gap: Fostering Hope and Purpose Through Intergenerational Caregiving | Caleb Balaraju

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial sit down with Richard "Dick" Tips, Chairman and CEO of RD Tips Inc. and owner of Mission Park Funeral Chapels and Cemeteries in San Antonio. Together, they tackle a topic many families avoid until it's too late: end-of-life planning and funeral logistics. Drawing from decades of experience in the funeral industry and deep roots in Texas, Dick shares how making end-of-life decisions ahead of time transforms potential crisis into one of the greatest gifts you can leave for your loved ones.

Key Topics Covered


Overcoming the Stigma of End-of-Life Talks: Why families—and men in particular—tend to shy away from final planning, and how starting the conversation early removes emotional wear and tear.


The Logistics of Funeral Planning: An overview of the 250 to 300 decisions required when a death occurs and how pre-arranging locks in pricing, prevents high-pressure decisions, and fits individual budgets.


Modern Trends & Personalization: How funeral services have evolved into "Life Centers" offer diverse choices, ranging from traditional burials and military honors to modern natural burials and tree pods.


Post-Funeral Assistance & Administrative Support: What to expect after the service, including help with death certificates, Social Security notification, insurance filings, and grief concierge services.

Key Takeaways


Planning Ahead is a Gift: Pre-planning allows you to make calm, rational financial and personal choices on your own schedule rather than forcing grieving family members to guess under stress.


Pre-Planning Supersedes a Will at Death: Power of Attorney ends at death, and wills are rarely read immediately. Pre-arranged funeral plans take immediate precedence and ensure final wishes are met right away.


Order Extra Death Certificates: Caregivers should always request double the number of certified copies of death certificates they think they will need to handle all necessary legal and financial affairs.

About Richard

Richard D. "Dick" Tips is the chairman and CEO of R.D. Tips, Inc. and owner of Mission Park Funeral Chapels and Cemeteries in San Antonio, Texas. A prominent and eccentric local business figure, he expanded his family's multi-generational funeral business into the largest family-owned provider in the state while engaging in local landmark preservation, real estate, and public appointments.

Tips has led or funded the restoration of numerous Texas landmarks, including the Fairmount Hotel (1906), known as the “Jewel of San Antonio” and recognized by the Guinness Book of World Records as the largest structure ever moved on wheels.

He attended Texas A&M University and The University of Texas.

Tips is married to Kristin Tips, who serves as President of Mission Park. They share twins, Peggy and Robert. He is a seventh generation Texan.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial sit down with Richard "Dick" Tips, Chairman and CEO of RD Tips Inc. and owner of Mission Park Funeral Chapels and Cemeteries in San Antonio. Together, they tackle a topic many families avoid until it's too late: end-of-life planning and funeral logistics. Drawing from decades of experience in the funeral industry and deep roots in Texas, Dick shares how making end-of-life decisions ahead of time transforms potential crisis into one of the greatest gifts you can leave for your loved ones.
Key Topics Covered
<ul data-path-to-node="2">
<li>
Overcoming the Stigma of End-of-Life Talks: Why families&mdash;and men in particular&mdash;tend to shy away from final planning, and how starting the conversation early removes emotional wear and tear.
</li>
<li>
The Logistics of Funeral Planning: An overview of the 250 to 300 decisions required when a death occurs and how pre-arranging locks in pricing, prevents high-pressure decisions, and fits individual budgets.
</li>
<li>
Modern Trends &amp; Personalization: How funeral services have evolved into "Life Centers" offer diverse choices, ranging from traditional burials and military honors to modern natural burials and tree pods.
</li>
<li>
Post-Funeral Assistance &amp; Administrative Support: What to expect after the service, including help with death certificates, Social Security notification, insurance filings, and grief concierge services.
</li>
</ul>
Key Takeaways
<ul data-path-to-node="4">
<li>
Planning Ahead is a Gift: Pre-planning allows you to make calm, rational financial and personal choices on your own schedule rather than forcing grieving family members to guess under stress.
</li>
<li>
Pre-Planning Supersedes a Will at Death: Power of Attorney ends at death, and wills are rarely read immediately. Pre-arranged funeral plans take immediate precedence and ensure final wishes are met right away.
</li>
<li>
Order Extra Death Certificates: Caregivers should always request double the number of certified copies of death certificates they think they will need to handle all necessary legal and financial affairs.
</li>
</ul>
About Richard
Richard D. "Dick" Tips is the chairman and CEO of R.D. Tips, Inc. and owner of Mission Park Funeral Chapels and Cemeteries in San Antonio, Texas. A prominent and eccentric local business figure, he expanded his family's multi-generational funeral business into the largest family-owned provider in the state while engaging in local landmark preservation, real estate, and public appointments.
Tips has led or funded the restoration of numerous Texas landmarks, including the Fairmount Hotel (1906), known as the &ldquo;Jewel of San Antonio&rdquo; and recognized by the Guinness Book of World Records as the largest structure ever moved on wheels.
He attended Texas A&amp;M University and The University of Texas.
Tips is married to Kristin Tips, who serves as President of Mission Park. They share twins, Peggy and Robert. He is a seventh generation Texan.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Taking the Stress Out of Saying Goodbye: A Guide to End-of-Life Planning | Richard Tips

In this episode of Caregiver SOS On Air, hosts Carol Zernial and Ron Aaron are joined by caregiving expert, court-appointed fiduciary, and certified mediator Pamela D. Wilson to address one of the most stressful challenges facing families today: navigating and resolving caregiving disputes.

When an aging parent requires assistance, family dynamics, generational expectations, and unexpressed wishes often lead to heated conflicts among siblings and relatives. Pamela breaks down why these disagreements arise—ranging from emotional ties and financial strain to unsolicited advice—and explains how proactive communication can prevent devastating family rifts.

Key Takeaways:


The Power of Proactive Communication: Why families and parents need to discuss caregiving expectations early and continuously, long before a crisis occurs.


Understanding Private Family Elder Care Mediation: How voluntary, third-party mediation offers a structured, unbiased alternative to legal battles, helping families agree on problem priorities and sign binding written solutions.


Virtual Convenience & Stress Reduction: How conducting mediation online via Zoom lowers emotional tension by allowing distant or estranged family members to participate equally without being in the same room.


Mediation vs. Legal Action: The difference between attorney-led litigation (a win-lose court battle) and private mediation (a collaborative, win-win outcome focused on preserving family relationships).


Proactive Estate Planning: How parents with sound minds can utilize mediation to clearly state their estate plans, financial power of attorney choices, and care wishes to set expectations and prevent future sibling disputes. 

About Pamela

Pamela D. Wilson, MS, BS/BA, CG, CSA, NPCM, is a caregiving expert, expert witness, private family elder care mediator, consultant, and speaker. Twenty-five years of direct experience supporting older adults, persons with disabilities, and caregivers serve as Wilson’s platform for virtual and on-site consulting, education, and support for aging adults and their families. Wilson offers comprehensive and practical advice for families navigating family dynamics, health, healthcare, the financial costs of care, and legal responsibilities.

Wilson hosts and produces The Caring Generation® podcast, answers caregiver questions on herYouTube Channel, serves as an expert witness for law firms and families, speaks, and offers individual and family consultations. She is the author of The Caregiving Trap: Solutions for Life’s Unexpected Changes and the creator of three online programs, including Support Caring for Aging Parents. She can be contacted through her website, https://www.pameladwilson.com.

Listeners will gain actionable advice on how to start tough family conversations using information sharing rather than demands, and learn when it is time to bring in professional mediator support.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, hosts Carol Zernial and Ron Aaron are joined by caregiving expert, court-appointed fiduciary, and certified mediator Pamela D. Wilson to address one of the most stressful challenges facing families today: navigating and resolving caregiving disputes.
When an aging parent requires assistance, family dynamics, generational expectations, and unexpressed wishes often lead to heated conflicts among siblings and relatives. Pamela breaks down why these disagreements arise&mdash;ranging from emotional ties and financial strain to unsolicited advice&mdash;and explains how proactive communication can prevent devastating family rifts.
Key Takeaways:
<ul data-path-to-node="3">
<li>
The Power of Proactive Communication: Why families and parents need to discuss caregiving expectations early and continuously, long before a crisis occurs.
</li>
<li>
Understanding Private Family Elder Care Mediation: How voluntary, third-party mediation offers a structured, unbiased alternative to legal battles, helping families agree on problem priorities and sign binding written solutions.
</li>
<li>
Virtual Convenience &amp; Stress Reduction: How conducting mediation online via Zoom lowers emotional tension by allowing distant or estranged family members to participate equally without being in the same room.
</li>
<li>
Mediation vs. Legal Action: The difference between attorney-led litigation (a win-lose court battle) and private mediation (a collaborative, win-win outcome focused on preserving family relationships).
</li>
<li>
Proactive Estate Planning: How parents with sound minds can utilize mediation to clearly state their estate plans, financial power of attorney choices, and care wishes to set expectations and prevent future sibling disputes.&nbsp;
</li>
</ul>
About Pamela
Pamela D. Wilson, MS, BS/BA, CG, CSA, NPCM, is a caregiving expert, expert witness, private family elder care mediator, consultant, and speaker. Twenty-five years of direct experience supporting older adults, persons with disabilities, and caregivers serve as Wilson&rsquo;s platform for virtual and on-site consulting, education, and support for aging adults and their families. Wilson offers comprehensive and practical advice for families navigating family dynamics, health, healthcare, the financial costs of care, and legal responsibilities.
Wilson hosts and produces The Caring Generation&reg; podcast, answers caregiver questions on herYouTube Channel, serves as an expert witness for law firms and families, speaks, and offers individual and family consultations. She is the author of The Caregiving Trap: Solutions for Life&rsquo;s Unexpected Changes and the creator of three online programs, including Support Caring for Aging Parents. She can be contacted through her website, https://www.pameladwilson.com.
Listeners will gain actionable advice on how to start tough family conversations using information sharing rather than demands, and learn when it is time to bring in professional mediator support.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Resolving Family Caregiving Disagreements with Elder Care Mediation | Pamela Wilson

In this episode of the podcast, we dive into a transformative, human-centered approach to supporting individuals living with dementia. Traditional dementia care often relies on redirection, isolation, or medical sedation to manage challenging behaviors. However, this conversation shifts the focus toward understanding what those behaviors are actually trying to communicate—unmet physical, emotional, and psychological needs.

Key Topics Covered:


Moving Beyond Redirection: Why traditional management strategies often fail to address the root causes of distress, and how to transition toward empathetic, needs-based support.


Decoding Behavior as Communication: Learning to interpret non-verbal cues, expressions of frustration, and sensory overload when words are no longer accessible.


The Systemic Gaps in Care: Examining the harsh realities of isolation, over-sedation, and emotional neglect within care environments—and how care providers can actively drive change.


Fostering Freedom and Belonging: Practical methods for creating environments where individuals with dementia retain a sense of autonomy, safety, and community connection.

Key Takeaways:


Behavior is Communication: Distressing behaviors are rarely unprovoked; they are frequently attempts to express pain, fear, loneliness, or sensory discomfort.


Empathy Over Control: Prioritizing genuine human connection and validation yields far better long-term outcomes than attempting to redirect or overpower the individual.


Actionable Care Strategies: Simple shifts in environment, routine, and staff engagement can drastically reduce the reliance on chemical or physical restraints.

Whether you are a professional care provider, a family caregiver, or a healthcare advocate, this episode provides actionable insights and a powerful new lens for supporting those living with cognitive decline.

About Dr. Carson

Dr. Jennifer Carson is a critical gerontologist and the Founding Director of the Dementia Engagement, Education and Research (DEER) Program in the School of Public Health at the University of Nevada, Reno. Her work focuses on combatting ageism and improving quality of life in long-term care. Dr Carson is teaches professional and family care partners as the author and facilitator of Bravo Zulu: Achieving Excellence in Relationship-Centered Dementia Care, a comprehensive, 12-hour dementia education program developed in partnership with the Nevada Department of Veterans Services. Bravo Zulu was recently nominated for an Abraham Lincoln Pillars of Excellence Award from the Department of Veterans Affairs. Carson brings a commitment to service, collaboration and innovation built upon more than 35 years of practical experience in long-term care and aging services.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of the podcast,&nbsp;we dive into a transformative, human-centered approach to supporting individuals living with dementia. Traditional dementia care often relies on redirection, isolation, or medical sedation to manage challenging behaviors. However, this conversation shifts the focus toward understanding what those behaviors are actually trying to communicate&mdash;unmet physical, emotional, and psychological needs.
Key Topics Covered:
<ul data-path-to-node="2">
<li>
Moving Beyond Redirection: Why traditional management strategies often fail to address the root causes of distress, and how to transition toward empathetic, needs-based support.
</li>
<li>
Decoding Behavior as Communication: Learning to interpret non-verbal cues, expressions of frustration, and sensory overload when words are no longer accessible.
</li>
<li>
The Systemic Gaps in Care: Examining the harsh realities of isolation, over-sedation, and emotional neglect within care environments&mdash;and how care providers can actively drive change.
</li>
<li>
Fostering Freedom and Belonging: Practical methods for creating environments where individuals with dementia retain a sense of autonomy, safety, and community connection.
</li>
</ul>
Key Takeaways:
<ol data-path-to-node="4">
<li>
Behavior is Communication: Distressing behaviors are rarely unprovoked; they are frequently attempts to express pain, fear, loneliness, or sensory discomfort.
</li>
<li>
Empathy Over Control: Prioritizing genuine human connection and validation yields far better long-term outcomes than attempting to redirect or overpower the individual.
</li>
<li>
Actionable Care Strategies: Simple shifts in environment, routine, and staff engagement can drastically reduce the reliance on chemical or physical restraints.
</li>
</ol>
Whether you are a professional care provider, a family caregiver, or a healthcare advocate, this episode provides actionable insights and a powerful new lens for supporting those living with cognitive decline.
About Dr. Carson
Dr. Jennifer Carson is a critical gerontologist and the Founding Director of the Dementia Engagement, Education and Research (DEER) Program in the School of Public Health at the University of Nevada, Reno. Her work focuses on combatting ageism and improving quality of life in long-term care. Dr Carson is teaches professional and family care partners as the author and facilitator of Bravo Zulu: Achieving Excellence in Relationship-Centered Dementia Care, a comprehensive, 12-hour dementia education program developed in partnership with the Nevada Department of Veterans Services. Bravo Zulu was recently nominated for an Abraham Lincoln Pillars of Excellence Award from the Department of Veterans Affairs. Carson brings a commitment to service, collaboration and innovation built upon more than 35 years of practical experience in long-term care and aging services.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Listening Beyond Words: Understanding Unmet Needs in Dementia Care | Dr. Jennifer Carson

In this inspiring episode of Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial sit down with Carol Rosenstein, an educator, pioneer in holistic mind-body medicine, and the founder of Music Mends Minds, Inc. Carol shares her deeply personal story as a caregiver for her late husband, Erwin, who lived with Parkinson’s disease and dementia for 15 years. After discovering how sitting at the piano instantly awakened Erwin's brain chemistry and restored his vitality without pharmaceuticals, Carol launched "The Fifth Dementia"—a band where seniors with neurodegenerative diseases make music alongside their caregivers.

Together, the hosts and Carol explore how music acts as a universal, boundary-crossing language. They discuss the profound biological impact of melody and rhythm on the brain, how music can be used strategically to combat caregiver burnout, and how a global partnership with Rotary International is bringing free music programs to communities worldwide.

Key Topics Covered:


The Inspiration Behind Music Mends Minds: Carol Port Rosenstein recounts how her husband's dramatic positive response to playing the piano—even after being taken off synthetic Parkinson's medication—led to the discovery that music actively stimulates natural dopamine and changes brain chemistry.


The Origin of "The Fifth Dementia" Band: How a launch gathering of strangers instantly united four seniors as "music brothers," spawning a flagship band and a national movement featured on PBS.


The Resilience of Music Storage Cells: Why musical memory stays intact late into neurodegenerative conditions like Alzheimer's and Parkinson's. Carol explains how music storage cells formed in the human fetus remain hardy and resistant to brain cell destruction.


Music as a Daily Caregiver Tool: Practical ways caregivers can use a loved one's favorite personalized playlist to regulate mood, manage agitation, improve compliance, and ease morning routines.


Restoring Gait, Speech, and Movement: How rhythm acts as an internal metronome for Parkinson's patients, helping restore vocal cadence, physical movement, and confidence.


Global Outreach and Free Resources: Details on Music Mends Minds' partnership with the Alzheimer's Dementia Rotary Action Group to scale in-person music groups globally, as well as their free tri-weekly Zoom music therapy sessions.

Key Takeaways for Caregivers:


Music Changes Brain Chemistry: Playing or listening to familiar music stimulates the remaining dopamine-producing cells in the brain, helping re-engage individuals with their environment.


Music is "Medicine for the Mind": Unlike synthetic medications that come with complex side effects, music offers therapeutic benefits with only one side effect: pure joy.


Use Personal Playlists for Daily Care: Caregivers can control the "mental temperature" of their care recipients by using upbeat music to encourage energetic wake-ups or calming music to soothe agitation.


Rhythm Restores Function: Parkinson's patients lose their natural cadence; introducing rhythmic beats and shakers can help restore gait and assist with vocal exercise.


A Daily Moment of Joy: Integrating music into caregiving creates an accessible opportunity for loved ones and caregivers to share a moment of joy every single day.

About Carol

Music Mends Minds, Inc. President and Founder, Carol Port Rosenstein, is an educator and pioneer in the field of holistic mind-body medicine. After her career as a chiropractor, she became interested in total mind-body health and acquired a Master's in Transformational Psychology to help her further delve into alternative and complementary medicine.

Carol became very interested in the power of music as a form of acoustic art and therapy. After observing Irwin, her husband who had Parkinson’s and dementia, playing the piano on minimal medication, she watched him revive like a wilted flower being watered. Carol recognized the power of music changing brain chemistry, which eventually led to the formation of Music Mends Minds, Inc., and their flagship band the 5th Dementia.

Carol continues to advocate for the power of music as medicine, which is corroborated by the scientific community to bring pure joy and increased brain function to patients suffering from neurodegenerative diseases, traumatic brain injury, stroke and PTSD, caregivers, and families at large.

Resources & Links Mentioned:


Website:musicmensminds.org

 


Free Live-Streamed Zoom Sessions: Global music and socialization sessions held every Monday, Wednesday, and Friday (11:30 AM – 12:30 PM PST).


Flagship Band Live Streams: Broadcasts of "The Fifth Dementia" band sessions available every Thursday via their website.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this inspiring episode of Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial sit down with Carol Rosenstein, an educator, pioneer in holistic mind-body medicine, and the founder of Music Mends Minds, Inc. Carol shares her deeply personal story as a caregiver for her late husband, Erwin, who lived with Parkinson&rsquo;s disease and dementia for 15 years. After discovering how sitting at the piano instantly awakened Erwin's brain chemistry and restored his vitality without pharmaceuticals, Carol launched "The Fifth Dementia"&mdash;a band where seniors with neurodegenerative diseases make music alongside their caregivers.
Together, the hosts and Carol explore how music acts as a universal, boundary-crossing language. They discuss the profound biological impact of melody and rhythm on the brain, how music can be used strategically to combat caregiver burnout, and how a global partnership with Rotary International is bringing free music programs to communities worldwide.
Key Topics Covered:
<ul data-path-to-node="5">
<li>
The Inspiration Behind Music Mends Minds: Carol Port Rosenstein recounts how her husband's dramatic positive response to playing the piano&mdash;even after being taken off synthetic Parkinson's medication&mdash;led to the discovery that music actively stimulates natural dopamine and changes brain chemistry.
</li>
<li>
The Origin of "The Fifth Dementia" Band: How a launch gathering of strangers instantly united four seniors as "music brothers," spawning a flagship band and a national movement featured on PBS.
</li>
<li>
The Resilience of Music Storage Cells: Why musical memory stays intact late into neurodegenerative conditions like Alzheimer's and Parkinson's. Carol explains how music storage cells formed in the human fetus remain hardy and resistant to brain cell destruction.
</li>
<li>
Music as a Daily Caregiver Tool: Practical ways caregivers can use a loved one's favorite personalized playlist to regulate mood, manage agitation, improve compliance, and ease morning routines.
</li>
<li>
Restoring Gait, Speech, and Movement: How rhythm acts as an internal metronome for Parkinson's patients, helping restore vocal cadence, physical movement, and confidence.
</li>
<li>
Global Outreach and Free Resources: Details on Music Mends Minds' partnership with the Alzheimer's Dementia Rotary Action Group to scale in-person music groups globally, as well as their free tri-weekly Zoom music therapy sessions.
</li>
</ul>
Key Takeaways for Caregivers:
<ol data-path-to-node="8">
<li>
Music Changes Brain Chemistry: Playing or listening to familiar music stimulates the remaining dopamine-producing cells in the brain, helping re-engage individuals with their environment.
</li>
<li>
Music is "Medicine for the Mind": Unlike synthetic medications that come with complex side effects, music offers therapeutic benefits with only one side effect: pure joy.
</li>
<li>
Use Personal Playlists for Daily Care: Caregivers can control the "mental temperature" of their care recipients by using upbeat music to encourage energetic wake-ups or calming music to soothe agitation.
</li>
<li>
Rhythm Restores Function: Parkinson's patients lose their natural cadence; introducing rhythmic beats and shakers can help restore gait and assist with vocal exercise.
</li>
<li>
A Daily Moment of Joy: Integrating music into caregiving creates an accessible opportunity for loved ones and caregivers to share a moment of joy every single day.
</li>
</ol>
About Carol
Music Mends Minds, Inc. President and Founder, Carol Port Rosenstein, is an educator and pioneer in the field of holistic mind-body medicine. After her career as a chiropractor, she became interested in total mind-body health and acquired a Master's in Transformational Psychology to help her further delve into alternative and complementary medicine.
Carol became very interested in the power of music as a form of acoustic art and therapy. After observing Irwin, her husband who had Parkinson&rsquo;s and dementia, playing the piano on minimal medication, she watched him revive like a wilted flower being watered. Carol recognized the power of music changing brain chemistry, which eventually led to the formation of Music Mends Minds, Inc., and their flagship band the 5th Dementia.
Carol continues to advocate for the power of music as medicine, which is corroborated by the scientific community to bring pure joy and increased brain function to patients suffering from neurodegenerative diseases, traumatic brain injury, stroke and PTSD, caregivers, and families at large.
Resources &amp; Links Mentioned:
<ul data-path-to-node="11">
<li>
Website: <a href="https://www.google.com/search?q=https://www.musicmensminds.org" data-hveid="0" data-ved="0CAAQ_4QMahcKEwjx-9G_6ZuWAxUAAAAAHQAAAAAQcA">musicmensminds.org</a>
&nbsp;
</li>
<li>
Free Live-Streamed Zoom Sessions: Global music and socialization sessions held every Monday, Wednesday, and Friday (11:30 AM &ndash; 12:30 PM PST).
</li>
<li>
Flagship Band Live Streams: Broadcasts of "The Fifth Dementia" band sessions available every Thursday via their website.
</li>
</ul>
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

The 5th Dementia: How Music Mends Minds | Carol Rosenstein

In this poignant episode of Caregiver SOS On Air, host Ron Aaron and guest co-host Tina Smith are joined by Peter Dare to discuss his deeply moving journey as a caregiver to his husband of over four decades, John Goodnett.

John—an ultra-runner with an irrepressible spirit and a sharp sense of humor—was diagnosed with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. When the COVID-19 pandemic hit, Peter found himself in near-total isolation, navigating the physical and emotional weight of John’s declining health as his sole, round-the-clock caregiver. Their journey, captured in the documentary Loving John, is a powerful testament to commitment, resilience, and love in the face of progressive illness.

Key Highlights & Topics Covered:


The Path to Diagnosis: Peter shares the long, difficult process of diagnosing ALS—what he calls a "downhill glide path"—and how he and John faced the diagnosis by taking life one day at a time.


Caregiving in Isolation: How the onset of the COVID-19 pandemic impacted their daily lives, turning Peter into a full-time, 24/7 caregiver while relying on creative support from friends outside their windows.


The Behind-the-Scenes Story of Loving John: How a local filmmaker’s interest in an ultra-runner evolved into an inspiring documentary capturing John's life, humor, and legacy.


Honoring Final Wishes: Peter reflects on bringing John’s ashes back to his home in American Samoa, where he was laid to rest next to his mother surrounded by family.

Key Takeaways for Caregivers:


Accept and Invite Help: Even when isolated, leaning on a support system—friends, community, or local organizations like the VA—is essential to sustaining caregiving.


Maintain Perspective and Positivity: Focusing on the present day rather than worrying about an uncertain timeline can make overwhelming diagnoses more manageable.


Caregiver Respite is Necessary: Taking short breaks and accepting outside care for a loved one is not a failure; it is crucial for maintaining your own mental and physical stamina.

About Peter

Peter Dare spent over four decades with his husband, John Godinet, an ultra-runner known for his humor and irrepressible spirit. When John was diagnosed with ALS, Peter became his caregiver, and that role expanded when the pandemic hit. Cut off from most outside help, Peter became John's sole, around-the-clock caregiver, shouldering the physical and emotional weight of ALS in near-total isolation. Their story anchors Loving John, a feature documentary. In it, Peter offers an honest, firsthand account of caring for the person he loved most. In the years A.J. (After John), he spends a few weeks of the year in American Samoa visiting John's family while also caretaking their last fur baby and John's running partner, Ginger, their 17+-year-old border collie. After Ginger passes away to go run with John and Piglet, he'll start thinking about where to go and what to do. "Lo que será, será"!

To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.

In this poignant episode of Caregiver SOS On Air, host Ron Aaron and guest co-host Tina Smith are joined by Peter Dare to discuss his deeply moving journey as a caregiver to his husband of over four decades, John Goodnett.
John&mdash;an ultra-runner with an irrepressible spirit and a sharp sense of humor&mdash;was diagnosed with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. When the COVID-19 pandemic hit, Peter found himself in near-total isolation, navigating the physical and emotional weight of John&rsquo;s declining health as his sole, round-the-clock caregiver. Their journey, captured in the documentary Loving John, is a powerful testament to commitment, resilience, and love in the face of progressive illness.
Key Highlights &amp; Topics Covered:
<ul data-path-to-node="6">
<li>
The Path to Diagnosis: Peter shares the long, difficult process of diagnosing ALS&mdash;what he calls a "downhill glide path"&mdash;and how he and John faced the diagnosis by taking life one day at a time.
</li>
<li>
Caregiving in Isolation: How the onset of the COVID-19 pandemic impacted their daily lives, turning Peter into a full-time, 24/7 caregiver while relying on creative support from friends outside their windows.
</li>
<li>
The Behind-the-Scenes Story of Loving John: How a local filmmaker&rsquo;s interest in an ultra-runner evolved into an inspiring documentary capturing John's life, humor, and legacy.
</li>
<li>
Honoring Final Wishes: Peter reflects on bringing John&rsquo;s ashes back to his home in American Samoa, where he was laid to rest next to his mother surrounded by family.
</li>
</ul>
Key Takeaways for Caregivers:
<ul data-path-to-node="8">
<li>
Accept and Invite Help: Even when isolated, leaning on a support system&mdash;friends, community, or local organizations like the VA&mdash;is essential to sustaining caregiving.
</li>
<li>
Maintain Perspective and Positivity: Focusing on the present day rather than worrying about an uncertain timeline can make overwhelming diagnoses more manageable.
</li>
<li>
Caregiver Respite is Necessary: Taking short breaks and accepting outside care for a loved one is not a failure; it is crucial for maintaining your own mental and physical stamina.
</li>
</ul>
About Peter
Peter Dare spent over four decades with his husband, John Godinet, an ultra-runner known for his humor and irrepressible spirit. When John was diagnosed with ALS, Peter became his caregiver, and that role expanded when the pandemic hit. Cut off from most outside help, Peter became John's sole, around-the-clock caregiver, shouldering the physical and emotional weight of ALS in near-total isolation. Their story anchors Loving John, a feature documentary. In it, Peter offers an honest, firsthand account of caring for the person he loved most. In the years A.J. (After John), he spends a few weeks of the year in American Samoa visiting John's family while also caretaking their last fur baby and John's running partner, Ginger, their 17+-year-old border collie. After Ginger passes away to go run with John and Piglet, he'll start thinking about where to go and what to do. "Lo que ser&aacute;, ser&aacute;"!
To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.
To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.

Loving John: A Story of Caregiving, ALS, & Unconditional Love | Peter Dare

In this episode of Caregiver SOS On Air, guest host Tina Smith and co-host Ron Aaron are joined by Dr. Ethelle Lorde, founding president of the International Caregivers Association. Drawing from her background in counseling, organizational leadership, and her 21 years as a primary caregiver for her late husband, Dr. Lorde offers a fresh, compassionate perspective on supporting loved ones living with dementia.

Together, they explore why communication is the foundational challenge in dementia care and why traditional strategies like "redirection" often fall short. Dr. Lorde breaks down the psychology of the dementia brain, explaining how caregivers—both family members and healthcare professionals—can drop ineffective methods, build authentic connections, and reset difficult moments to drastically improve quality of life.

Key Topics Discussed


The Communication Priority: Why communication is the single most critical hurdle to master before addressing other aspects of dementia care.


Moving Beyond Redirection: Why traditional redirection can feel offensive or confusing to someone with dementia, and why authenticity and agreement build deeper trust.


Understanding Vascular Dementia: How vascular factors play a role in cognitive decline and how routines help provide structure for both the individual and the caregiver.


"Resetting the Brain": Real-world examples of how validating a person’s reality, rather than arguing or interrupting, can lower anxiety and de-escalate challenging behavior.


Connecting Through History & Hobbies: How drawing on a person's life work, deep-seated habits, and favorite music can engage someone even when they become non-verbal.


Training Healthcare Professionals: The importance of equipping frontline workers and organizations with specialized dementia communication techniques to create a more supportive care environment.

Key Takeaways for Caregivers


Follow Before You Lead: Never interrupt or force a logic-based reality. Meet the person in their current state of mind, validate their feelings, and agree with their perspective to help calm their central nervous system.


Be Authentic, Not Deceptive: Redirection often relies on distraction or untruths, which can be exhausting for caregivers and disrespectful to care recipients. Authentic engagement builds trust.


Leverage Lifelong Memories & Music: Tap into deep-seated interests—such as past professions, favorite games, or familiar music—to maintain connections and slow down cognitive frustration.


Maintain Consistent Routines: Establishing steady daily habits around sleeping, meals, and activities gives both the caregiver and the care recipient a predictable, reassuring daily rhythm.

Resource Mentioned: To learn more about Dr. Ethelle Lorde’s work and caregiver resources, visit ICA Cares.

About Dr. Lorde

Dr. Éthelle Lorde is the founding president of the International Caregivers Association LLC (ICA). She earned a Master of Education in Counseling from the University of Maine at Orono in 1992 and her Doctor of Management in Organizational Leadership from the University of Phoenix in 2010. She is an author, a professor, and a keynote speaker. Dr. Lorde was married to the late Major Larry S. Potter, who was officially diagnosed with Vascular Dementia in 2000. She shares that she has 21 years of experience as a “pack leader” for her husband. As a family caregiver, she realized early on that there is an urgent need for a change in the way dementia care is delivered. She created the Transactional Dementia Intelligence Model, a systemic approach to dementia care. Her latest book is “Alzheimer and Dementia Coaching: Taking a Systems Approach to Creating an Alzheimer/Dementia-Friendly Healthcare Workforce” is in its 3rd edition; with her

1st Alzheimer’s primer entitled “How in the World…and Now What Do I Do?” has been referred to an Alzheimer’s Bible.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, guest host Tina Smith and co-host Ron Aaron are joined by Dr. Ethelle Lorde, founding president of the International Caregivers Association. Drawing from her background in counseling, organizational leadership, and her 21 years as a primary caregiver for her late husband, Dr. Lorde offers a fresh, compassionate perspective on supporting loved ones living with dementia.
Together, they explore why communication is the foundational challenge in dementia care and why traditional strategies like "redirection" often fall short. Dr. Lorde breaks down the psychology of the dementia brain, explaining how caregivers&mdash;both family members and healthcare professionals&mdash;can drop ineffective methods, build authentic connections, and reset difficult moments to drastically improve quality of life.
Key Topics Discussed
<ul data-path-to-node="7">
<li>
The Communication Priority: Why communication is the single most critical hurdle to master before addressing other aspects of dementia care.
</li>
<li>
Moving Beyond Redirection: Why traditional redirection can feel offensive or confusing to someone with dementia, and why authenticity and agreement build deeper trust.
</li>
<li>
Understanding Vascular Dementia: How vascular factors play a role in cognitive decline and how routines help provide structure for both the individual and the caregiver.
</li>
<li>
"Resetting the Brain": Real-world examples of how validating a person&rsquo;s reality, rather than arguing or interrupting, can lower anxiety and de-escalate challenging behavior.
</li>
<li>
Connecting Through History &amp; Hobbies: How drawing on a person's life work, deep-seated habits, and favorite music can engage someone even when they become non-verbal.
</li>
<li>
Training Healthcare Professionals: The importance of equipping frontline workers and organizations with specialized dementia communication techniques to create a more supportive care environment.
</li>
</ul>
Key Takeaways for Caregivers
<ol data-path-to-node="10">
<li>
Follow Before You Lead: Never interrupt or force a logic-based reality. Meet the person in their current state of mind, validate their feelings, and agree with their perspective to help calm their central nervous system.
</li>
<li>
Be Authentic, Not Deceptive: Redirection often relies on distraction or untruths, which can be exhausting for caregivers and disrespectful to care recipients. Authentic engagement builds trust.
</li>
<li>
Leverage Lifelong Memories &amp; Music: Tap into deep-seated interests&mdash;such as past professions, favorite games, or familiar music&mdash;to maintain connections and slow down cognitive frustration.
</li>
<li>
Maintain Consistent Routines: Establishing steady daily habits around sleeping, meals, and activities gives both the caregiver and the care recipient a predictable, reassuring daily rhythm.
</li>
</ol>
Resource Mentioned: To learn more about Dr. Ethelle Lorde&rsquo;s work and caregiver resources, visit <a href="https://www.icacares.com/" data-hveid="0" data-ved="0CAAQ_4QMahcKEwixlfyCu_aVAxUAAAAAHQAAAAAQUw">ICA Cares</a>.
About Dr. Lorde
Dr. &Eacute;thelle Lorde is the founding president of the International Caregivers Association LLC (ICA). She earned a Master of Education in Counseling from the University of Maine at Orono in 1992 and her Doctor of Management in Organizational Leadership from the University of Phoenix in 2010. She is an author, a professor, and a keynote speaker. Dr. Lorde was married to the late Major Larry S. Potter, who was officially diagnosed with Vascular Dementia in 2000. She shares that she has 21 years of experience as a &ldquo;pack leader&rdquo; for her husband. As a family caregiver, she realized early on that there is an urgent need for a change in the way dementia care is delivered. She created the Transactional Dementia Intelligence Model, a systemic approach to dementia care. Her latest book is &ldquo;Alzheimer and Dementia Coaching: Taking a Systems Approach to Creating an Alzheimer/Dementia-Friendly Healthcare Workforce&rdquo; is in its 3rd edition; with her
1st Alzheimer&rsquo;s primer entitled &ldquo;How in the World&hellip;and Now What Do I Do?&rdquo; has been referred to an Alzheimer&rsquo;s Bible.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Language of Care: Rethinking Dementia Communication | Dr. Lorde

Here is a detailed episode description for the episode:

Prevention is the Best Medicine: Daily Habits for Healthy FeetEpisode Summary

With summer heatwaves sweeping the country, caring for our feet is more critical—and more complicated—than ever. In this episode of Caregiver SOS On Air, host Ron Aaron is joined by certified wound specialist physician Dr. Allison Larkin to discuss practical, everyday strategies for avoiding foot injuries, chronic wounds, and serious complications.

From the hidden dangers of walking barefoot on scorching surfaces to the unexpected items hiding inside your footwear, Dr. Larkin breaks down why wound care is often misunderstood and how simple, budget-friendly daily habits can keep you—and those you care for—out of the wound clinic. Whether you are managing diabetes, helping an aging loved one with daily hygiene, or just trying to navigate the summer heat safely, this episode delivers essential guidance to protect your health from the ground up.

Key Takeaways & Highlights


The Three Pillars of Preventative Foot Care: Dr. Larkin outlines the fundamental elements of long-term foot health: good hygiene, supportive shoes, and consistent monitoring.


The Summer Barefoot Trap: Walking barefoot outdoors during extreme heat—even for a quick trip across the pool deck—can lead to severe, slow-healing burns on the soles of your feet.


Safe Daily Hygiene Practices: Learn the right way to wash and thoroughly dry your feet (especially between the toes) to prevent blisters, fungal infections, and skin breakdown. Plus, discover why plain moisturizers like Vaseline, CeraVe, or Aquaphor work best, and why you should never put moisturizer between your toes.


Proper Nail Care & Pedicure Rules: Discover the proper technique for trimming toenails straight across to prevent painful ingrown nails. Dr. Larkin warns against using sharp objects like toothpicks under nails and shares important precautions for individuals with diabetes or peripheral arterial disease.


Footwear Essentials: Get expert tips on choosing shoes with a wide toe box and thick, flexible soles. Learn why you should always shop for shoes in the afternoon, break new pairs in slowly, and shake your shoes out before putting them on.


Basic Wound First Aid: Understand why wounds actually heal faster and stay safer when kept clean, slightly moist, and covered—debunking the common myth that "airing out" a wound is best.

About Dr. Larkin

Dr. Allyson Larkin earned her BA Magna Cum Laude in Zoology from Iowa State University and her Medical Degree with honors from Texas A&M University College of Medicine. She is board certified in Family Medicine and Undersea and Hyperbaric Medicine and is a Certified Wound Specialist Physician. Her specialty is healing chronic and complicated wounds, which she enjoys because it requires great attention to detail.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Here is a detailed episode description for the episode:
Prevention is the Best Medicine: Daily Habits for Healthy FeetEpisode Summary
With summer heatwaves sweeping the country, caring for our feet is more critical&mdash;and more complicated&mdash;than ever. In this episode of Caregiver SOS On Air, host Ron Aaron is joined by certified wound specialist physician Dr. Allison Larkin to discuss practical, everyday strategies for avoiding foot injuries, chronic wounds, and serious complications.
From the hidden dangers of walking barefoot on scorching surfaces to the unexpected items hiding inside your footwear, Dr. Larkin breaks down why wound care is often misunderstood and how simple, budget-friendly daily habits can keep you&mdash;and those you care for&mdash;out of the wound clinic. Whether you are managing diabetes, helping an aging loved one with daily hygiene, or just trying to navigate the summer heat safely, this episode delivers essential guidance to protect your health from the ground up.
Key Takeaways &amp; Highlights
<ul data-path-to-node="8">
<li>
The Three Pillars of Preventative Foot Care: Dr. Larkin outlines the fundamental elements of long-term foot health: good hygiene, supportive shoes, and consistent monitoring.
</li>
<li>
The Summer Barefoot Trap: Walking barefoot outdoors during extreme heat&mdash;even for a quick trip across the pool deck&mdash;can lead to severe, slow-healing burns on the soles of your feet.
</li>
<li>
Safe Daily Hygiene Practices: Learn the right way to wash and thoroughly dry your feet (especially between the toes) to prevent blisters, fungal infections, and skin breakdown. Plus, discover why plain moisturizers like Vaseline, CeraVe, or Aquaphor work best, and why you should never put moisturizer between your toes.
</li>
<li>
Proper Nail Care &amp; Pedicure Rules: Discover the proper technique for trimming toenails straight across to prevent painful ingrown nails. Dr. Larkin warns against using sharp objects like toothpicks under nails and shares important precautions for individuals with diabetes or peripheral arterial disease.
</li>
<li>
Footwear Essentials: Get expert tips on choosing shoes with a wide toe box and thick, flexible soles. Learn why you should always shop for shoes in the afternoon, break new pairs in slowly, and shake your shoes out before putting them on.
</li>
<li>
Basic Wound First Aid: Understand why wounds actually heal faster and stay safer when kept clean, slightly moist, and covered&mdash;debunking the common myth that "airing out" a wound is best.
</li>
</ul>
About Dr. Larkin
Dr. Allyson Larkin earned her BA Magna Cum Laude in Zoology from Iowa State University and her Medical Degree with honors from Texas A&amp;M University College of Medicine. She is board certified in Family Medicine and Undersea and Hyperbaric Medicine and is a Certified Wound Specialist Physician. Her specialty is healing chronic and complicated wounds, which she enjoys because it requires great attention to detail.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Prevention is the Best Medicine: Daily Habits for Healthy Feet | Allyson Larkin

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Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS

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