In this episode of the award-winning Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial sit down with Dr. Grace Macalino, a public health researcher and the founder and CEO of CAPWA AllCare. Drawing from her personal experience navigating the complex journey of caring for her aging parents, Dr. Macalino discusses a critical yet often overlooked aspect of caregiving: the massive shift in personal identity.

When we become caregivers, we easily get swallowed up by "the doing"—the endless list of daily tasks, doctor appointments, and logistics. But what happens to who we are? Dr. Macalino introduces her Evidence-Informed Caregiver Identity Framework, offering listeners a much-needed language to understand the emotional evolution, isolation, and unspoken guilt that comes with stepping into a caregiving role. Whether you are balancing a career, managing long-distance care, or learning how to transition a loved one into memory care, this episode offers a compassionate roadmap to finding agency, setting boundaries, and reclaiming moments of joy.

Key Takeaways


The Distinction Between 'The Doing' and 'The Being': Caregiver burnout and isolation often don't stem from the physical tasks themselves, but from the unaddressed emotional toll of an eroding personal identity.


The 'Deafening Silence' of Caregiving: Unlike becoming a parent, society rarely acknowledges or celebrates the massive identity shift of becoming a caregiver, leaving many to feel entirely alone.


Reclaiming Your Original Role: When the scale tips and you forget you are a daughter, son, or spouse because you are only acting as a caregiver, it is a sign of trouble. Transitioning a loved one to professional care (like memory care) can painfully but beautifully allow family members to step back into their original roles as husbands, wives, or children.


The Power of Bahala Na: Embracing a cultural mindset of letting go of control—acknowledging that you have done your absolute best and accepting that "it is what it is"—is essential for releasing caregiving guilt and shame.


Moving from Survival to Agency: By understanding the stages of the caregiver identity, individuals can move past mere survival and gain the agency to keep themselves in control of their own journey.

About Dr. Schauf

Dr. Grace Macalino Schauf, PhD, MPH, is the Founder and CEO of Kapwa AllCare. Drawing on her background in public health and her personal caregiving experiences, she developed the Caregiver Identity Framework, an evidence-informed approach that helps caregivers better understand their journey, reclaim agency, and build sustainable support systems for themselves and their loved ones.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of the award-winning Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial sit down with Dr. Grace Macalino, a public health researcher and the founder and CEO of CAPWA AllCare. Drawing from her personal experience navigating the complex journey of caring for her aging parents, Dr. Macalino discusses a critical yet often overlooked aspect of caregiving: the massive shift in personal identity.
When we become caregivers, we easily get swallowed up by "the doing"&mdash;the endless list of daily tasks, doctor appointments, and logistics. But what happens to who we are? Dr. Macalino introduces her Evidence-Informed Caregiver Identity Framework, offering listeners a much-needed language to understand the emotional evolution, isolation, and unspoken guilt that comes with stepping into a caregiving role. Whether you are balancing a career, managing long-distance care, or learning how to transition a loved one into memory care, this episode offers a compassionate roadmap to finding agency, setting boundaries, and reclaiming moments of joy.
Key Takeaways
<ul data-path-to-node="7">
<li>
The Distinction Between 'The Doing' and 'The Being': Caregiver burnout and isolation often don't stem from the physical tasks themselves, but from the unaddressed emotional toll of an eroding personal identity.
</li>
<li>
The 'Deafening Silence' of Caregiving: Unlike becoming a parent, society rarely acknowledges or celebrates the massive identity shift of becoming a caregiver, leaving many to feel entirely alone.
</li>
<li>
Reclaiming Your Original Role: When the scale tips and you forget you are a daughter, son, or spouse because you are only acting as a caregiver, it is a sign of trouble. Transitioning a loved one to professional care (like memory care) can painfully but beautifully allow family members to step back into their original roles as husbands, wives, or children.
</li>
<li>
The Power of Bahala Na: Embracing a cultural mindset of letting go of control&mdash;acknowledging that you have done your absolute best and accepting that "it is what it is"&mdash;is essential for releasing caregiving guilt and shame.
</li>
<li>
Moving from Survival to Agency: By understanding the stages of the caregiver identity, individuals can move past mere survival and gain the agency to keep themselves in control of their own journey.
</li>
</ul>
About Dr. Schauf
Dr. Grace Macalino Schauf, PhD, MPH, is the Founder and CEO of Kapwa AllCare. Drawing on her background in public health and her personal caregiving experiences, she developed the Caregiver Identity Framework, an evidence-informed approach that helps caregivers better understand their journey, reclaim agency, and build sustainable support systems for themselves and their loved ones.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

The Caregiver Identity | Dr. Grace Macalino Schauf

In this episode of the award-winning Caregiver SOS On Air podcast, hosts Ron Aaron and Carol Zernial sit down with board-certified geriatric psychiatrist Dr. Thomas Weiss to tackle one of the most challenging chapters in caregiving: identifying and managing early-onset dementia. 

Dr. Weiss shares his unique perspective—shaped by both 44 years of psychiatric practice and his own deeply personal family history with Alzheimer’s disease. Together, the panel explores how early-onset conditions alter family dynamics, why behavior shifts are often misdiagnosed, and how modern medicine is finally shifting from a state of demoralization to a new era of hope. Plus, stick around until the end of the episode as Dr. Weiss introduces a brief but powerful look into another growing health crisis for older adults: the physical toll of loneliness. 

Key Topics Covered


Understanding Early-Onset & Rare Dementias: Dr. Weiss breaks down why early-onset dementia (occurring in a person's 40s or 50s) is uniquely difficult for families. He highlights frontotemporal dementia, explaining how it presents not with memory loss, but with dramatic, sudden behavioral changes. 


The Evolution of Diagnosis: Discover how the medical field has evolved from invasive brain biopsies and spinal taps to modern, highly specific blood-based biomarkers that can identify Alzheimer’s disease early. 


"When the Disease Talks": Carol and Dr. Weiss discuss the vital mindset shift caregivers must make: recognizing that aggressive or uncharacteristic behaviors are a physical symptom of a neurodegenerative illness, not intentional actions. 


The Medical Toll of Loneliness: In a striking closing segment, the discussion turns to the isolation epidemic, highlighting research that equates the physical impact of chronic loneliness to smoking 15 cigarettes a day. 

Key Takeaways for Caregivers


Take Your Own Pulse First: Borrowing a medical aphorism, Dr. Weiss reminds caregivers that the first rule of managing an emotional or tense situation with a loved one is to keep calm and manage your own emotions first. 


Pivot to Positive Prompts: When met with resistance (such as a loved one refusing a bath or medication), avoid sharp words. Instead, lead with a compliment, use gentle physical prompts, or lean into music and aromatherapy. 


Accept the Present Reality: One of the hardest parts of caregiving is letting go of past expectations and accepting your loved one exactly as they are right now, rather than fighting the reality of the disease. 


Lean on Community Support: Don't be a "Lone Ranger." Lean on organizations like the Alzheimer's Association to find support groups where you can brainstorm solutions with peers who truly understand the journey.

About Dr. Weiss

Dr Thomas Weiss is a geriatric psychiatrist in solo private practice. He is a graduate of the USAF Academy, UTHSCSA Medical School and completed a fellowship in consultation psychiatry at MGH/Harvard. He is board-certified in four specialties: adult, geriatric, addiction, and consultation psychiatry.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of the award-winning Caregiver SOS On Air podcast, hosts Ron Aaron and Carol Zernial sit down with board-certified geriatric psychiatrist Dr. Thomas Weiss to tackle one of the most challenging chapters in caregiving: identifying and managing early-onset dementia. 
Dr. Weiss shares his unique perspective&mdash;shaped by both 44 years of psychiatric practice and his own deeply personal family history with Alzheimer&rsquo;s disease. Together, the panel explores how early-onset conditions alter family dynamics, why behavior shifts are often misdiagnosed, and how modern medicine is finally shifting from a state of demoralization to a new era of hope. Plus, stick around until the end of the episode as Dr. Weiss introduces a brief but powerful look into another growing health crisis for older adults: the physical toll of loneliness. 
Key Topics Covered
<ul data-path-to-node="10">
<li>
Understanding Early-Onset &amp; Rare Dementias: Dr. Weiss breaks down why early-onset dementia (occurring in a person's 40s or 50s) is uniquely difficult for families. He highlights frontotemporal dementia, explaining how it presents not with memory loss, but with dramatic, sudden behavioral changes. 
</li>
<li>
The Evolution of Diagnosis: Discover how the medical field has evolved from invasive brain biopsies and spinal taps to modern, highly specific blood-based biomarkers that can identify Alzheimer&rsquo;s disease early. 
</li>
<li>
"When the Disease Talks": Carol and Dr. Weiss discuss the vital mindset shift caregivers must make: recognizing that aggressive or uncharacteristic behaviors are a physical symptom of a neurodegenerative illness, not intentional actions. 
</li>
<li>
The Medical Toll of Loneliness: In a striking closing segment, the discussion turns to the isolation epidemic, highlighting research that equates the physical impact of chronic loneliness to smoking 15 cigarettes a day. 
</li>
</ul>
Key Takeaways for Caregivers
<ul data-path-to-node="13">
<li>
Take Your Own Pulse First: Borrowing a medical aphorism, Dr. Weiss reminds caregivers that the first rule of managing an emotional or tense situation with a loved one is to keep calm and manage your own emotions first. 
</li>
<li>
Pivot to Positive Prompts: When met with resistance (such as a loved one refusing a bath or medication), avoid sharp words. Instead, lead with a compliment, use gentle physical prompts, or lean into music and aromatherapy. 
</li>
<li>
Accept the Present Reality: One of the hardest parts of caregiving is letting go of past expectations and accepting your loved one exactly as they are right now, rather than fighting the reality of the disease. 
</li>
<li>
Lean on Community Support: Don't be a "Lone Ranger." Lean on organizations like the Alzheimer's Association to find support groups where you can brainstorm solutions with peers who truly understand the journey.
</li>
</ul>
About Dr. Weiss
Dr Thomas Weiss is a geriatric psychiatrist in solo private practice. He is a graduate of the USAF Academy, UTHSCSA Medical School and completed a fellowship in consultation psychiatry at MGH/Harvard.&nbsp;He is board-certified in four specialties: adult, geriatric, addiction, and consultation psychiatry.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Keep Calm and Carry On: A Caregiver's Guide to Early Onset Dementia | Dr. Thomas Weiss

Is it possible to not just slow down, but actually reverse advanced Alzheimer’s disease? In this groundbreaking episode of Caregiver SOS On Air, co-hosts Ron Aaron and Carol Zernial sit down with two visionary researchers from Case Western Reserve University who are challenging decades of medical dogma.

Dr. Andrew Pieper, a board-certified psychiatrist and neuroscientist, alongside postdoctoral researcher Dr. Kalyana Chauvi, share the astonishing results of their latest study. Traditionally, Alzheimer’s has been viewed as a chronic, strictly irreversible condition. However, using a class of neuroprotective compounds known as P7C3, their lab has demonstrated that symptomatic, cognitively impaired mice can actually recover their function and clear out brain pathology.

Tune in to discover how targeting cellular energy could completely change the future of dementia care and provide long-awaited hope to millions of families and caregivers worldwide.

Key Takeaways & Highlights


Shifting the Dogma: For decades, the scientific community believed the best we could hope for was slowing down Alzheimer's progression. This new research proves that the brain is dynamically capable of recovering from advanced neurodegenerative states—even after some cell death has occurred.


The Power of Cellular Energy: Instead of focusing purely on traditional amyloid plaques and tangles, the P7C3 compound targets the mitochondria. By restoring the brain’s energy levels, the brain is equipped to fight off damage, repair itself, and restore lost memory and learning capabilities.


The "Aha" Moment: Dr. Chauvi describes the thrilling moment she witnessed advanced, symptomatic mice successfully navigate the Morris Water Maze test after treatment, behaving just like mice that never had the disease.


Looking to the Future: Learn about the next steps for this research, including the formation of Glengarry Brain Health and the timeline for moving these life-changing discoveries into Phase 1 human clinical safety trials.

About Dr. Pieper

Andrew A. Pieper, MD, PhD, is a board-certified psychiatrist and neuroscientist whose work sits at the intersection of clinical medicine and translational neuroscience. Dr. Pieper earned his MD and PhD degrees from Johns Hopkins University School of Medicine, where his doctoral work in neuroscience under Solomon H. Snyder focused on mechanisms of cell death.

He holds the Rebecca E. Barchas University Professorship in Translational Psychiatry and the University Hospitals Morley-Mather Chair of Neuropsychiatry at Case Western Reserve University, where he also directs the Center for Brain Health Medicines at the Harrington Discovery Institute. His laboratory is best known for pioneering the discovery and development of the P7C3 class of neuroprotective compounds. These energy stabilizing molecules have demonstrated the capacity to prevent pathological hallmarks of Alzheimer’s disease in preclinical models and to restore brain resilience such that pathology is reversed and cognitive function is recovered even with advanced neurodegenerative disease.

About Dr. Chaubey

Dr. Kalyani Chaubey, PhD, completed her Bachelors and Masters degrees in Biological Sciences and Biotechnology, followed by a PhD in Neurotoxicology in India, with her PhD focused on the impact of organophosphorus toxins on the brain.

She joined the Pieper lab for her postdoctoral work, focused on Alzheimer’s disease and related forms of neurodegeneration, and is currently a Research Scientist in the lab working with Dr. Andrew Pieper. Her most recent discovery is

the phenomenon that restoring and maintaining energy balance in the brain is sufficient to both prevent and reverse Alzheimer’s disease in animal models. This is the first demonstration of the ability to achieve recovery and restore cognitive function in animal models of Alzheimer’s disease has prompted a new way for the field to consider this condition.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Is it possible to not just slow down, but actually reverse advanced Alzheimer&rsquo;s disease? In this groundbreaking episode of Caregiver SOS On Air, co-hosts Ron Aaron and Carol Zernial sit down with two visionary researchers from Case Western Reserve University who are challenging decades of medical dogma.
Dr. Andrew Pieper, a board-certified psychiatrist and neuroscientist, alongside postdoctoral researcher Dr. Kalyana Chauvi, share the astonishing results of their latest study. Traditionally, Alzheimer&rsquo;s has been viewed as a chronic, strictly irreversible condition. However, using a class of neuroprotective compounds known as P7C3, their lab has demonstrated that symptomatic, cognitively impaired mice can actually recover their function and clear out brain pathology.
Tune in to discover how targeting cellular energy could completely change the future of dementia care and provide long-awaited hope to millions of families and caregivers worldwide.
Key Takeaways &amp; Highlights
<ul data-path-to-node="9">
<li>
Shifting the Dogma: For decades, the scientific community believed the best we could hope for was slowing down Alzheimer's progression. This new research proves that the brain is dynamically capable of recovering from advanced neurodegenerative states&mdash;even after some cell death has occurred.
</li>
<li>
The Power of Cellular Energy: Instead of focusing purely on traditional amyloid plaques and tangles, the P7C3 compound targets the mitochondria. By restoring the brain&rsquo;s energy levels, the brain is equipped to fight off damage, repair itself, and restore lost memory and learning capabilities.
</li>
<li>
The "Aha" Moment: Dr. Chauvi describes the thrilling moment she witnessed advanced, symptomatic mice successfully navigate the Morris Water Maze test after treatment, behaving just like mice that never had the disease.
</li>
<li>
Looking to the Future: Learn about the next steps for this research, including the formation of Glengarry Brain Health and the timeline for moving these life-changing discoveries into Phase 1 human clinical safety trials.
</li>
</ul>
About Dr. Pieper
Andrew A. Pieper, MD, PhD, is a board-certified psychiatrist and neuroscientist whose work sits at the intersection of clinical medicine and translational neuroscience. Dr. Pieper earned his MD and PhD degrees from Johns Hopkins University School of Medicine, where his doctoral work in neuroscience under Solomon H. Snyder focused on mechanisms of cell death.
He holds the Rebecca E. Barchas University Professorship in Translational Psychiatry and the University Hospitals Morley-Mather Chair of Neuropsychiatry at Case Western Reserve University, where he also directs the Center for Brain Health Medicines at the Harrington Discovery Institute. His laboratory is best known for pioneering the discovery and development of the P7C3 class of neuroprotective compounds. These energy stabilizing molecules have demonstrated the capacity to prevent pathological hallmarks of Alzheimer&rsquo;s disease in preclinical models and to restore brain resilience such that pathology is reversed and cognitive function is recovered even with advanced neurodegenerative disease.
About Dr. Chaubey
Dr. Kalyani Chaubey, PhD, completed her Bachelors and Masters degrees in Biological Sciences and Biotechnology, followed by a PhD in Neurotoxicology in India, with her PhD focused on the impact of organophosphorus toxins on the brain.
She joined the Pieper lab for her postdoctoral work, focused on Alzheimer&rsquo;s disease and related forms of neurodegeneration, and is currently a Research Scientist in the lab working with Dr. Andrew Pieper. Her most recent discovery is
the phenomenon that restoring and maintaining energy balance in the brain is sufficient to both prevent and reverse Alzheimer&rsquo;s disease in animal models. This is the first demonstration of the ability to achieve recovery and restore cognitive function in animal models of Alzheimer&rsquo;s disease has prompted a new way for the field to consider this condition.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Reversing the "Irreversible": A New Breakthrough in Alzheimer’s Research | Dr. Andrew Pieper & Dr. Kalyani Chaubey

What do you do when a loved one begins showing signs of mental illness? For many families, identifying the warning signs, finding accessible care, and overcoming deep-rooted cultural stigmas can feel like an overwhelming, uphill battle. In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial sit down with Maria Honigman (Director of Programs) and Olga Rodriguez (Director of Education) from NAMI (National Alliance on Mental Illness) Greater San Antonio to discuss how families can navigate these complex emotional and practical challenges.

Drawing from professional expertise and deeply personal "lived experiences," Maria and Olga break down the subtle behavioral shifts caregivers should look out for, the unique stresses of the "sandwich generation," and the vital importance of prioritizing your own mental well-being while supporting someone else. They also highlight NAMI's extensive, completely free educational programs and support groups designed to ensure no caregiver ever has to walk this journey alone.

Key Takeaways & Main Topics


Recognizing the Warning Signs: Learn how to identify early indicators of mental health struggles, including sudden mood changes, social withdrawal, increased anxiety or sadness, changes in sleep and appetite, and feelings of hopelessness.


The "Oxygen Mask" Rule of Self-Care: Why taking care of your own mental and physical health isn’t selfish—it’s necessary. The guests share actionable advice on establishing healthy boundaries, managing caregiver guilt, and using simple grounding techniques to recharge.


The Sandwich Generation Dynamics: An exploration of the unique communication challenges that arise whether you are an adult parent advocating for a child, or an adult child navigating the resistance of a parent experiencing mental health issues.


Breaking the Stigma in Faith and Culture: A candid conversation on overcoming cultural barriers—such as the Hispanic proverb "la ropa sucia se lava en casa" (don't air dirty laundry)—and how faith communities can safely bridge religious beliefs with professional mental health advocacy.


Free NAMI Resources Explained: Discover NAMI’s tailored, cost-free educational classes, including Family-to-Family (for relatives of adults), NAMI Basics (for parents of children under 17), and Home Front (for military and veteran families).

Featured Guests


Maria Honigman – Director of Programs, NAMI Greater San Antonio


Olga Rodriguez – Director of Education, NAMI Greater San Antonio

To find a free NAMI support group or educational program near you, search for your local NAMI chapter online or visit caregiversos.org.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

What do you do when a loved one begins showing signs of mental illness? For many families, identifying the warning signs, finding accessible care, and overcoming deep-rooted cultural stigmas can feel like an overwhelming, uphill battle. In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial sit down with Maria Honigman (Director of Programs) and Olga Rodriguez (Director of Education) from NAMI (National Alliance on Mental Illness) Greater San Antonio to discuss how families can navigate these complex emotional and practical challenges.
Drawing from professional expertise and deeply personal "lived experiences," Maria and Olga break down the subtle behavioral shifts caregivers should look out for, the unique stresses of the "sandwich generation," and the vital importance of prioritizing your own mental well-being while supporting someone else. They also highlight NAMI's extensive, completely free educational programs and support groups designed to ensure no caregiver ever has to walk this journey alone.
Key Takeaways &amp; Main Topics
<ul data-path-to-node="9">
<li>
Recognizing the Warning Signs: Learn how to identify early indicators of mental health struggles, including sudden mood changes, social withdrawal, increased anxiety or sadness, changes in sleep and appetite, and feelings of hopelessness.
</li>
<li>
The "Oxygen Mask" Rule of Self-Care: Why taking care of your own mental and physical health isn&rsquo;t selfish&mdash;it&rsquo;s necessary. The guests share actionable advice on establishing healthy boundaries, managing caregiver guilt, and using simple grounding techniques to recharge.
</li>
<li>
The Sandwich Generation Dynamics: An exploration of the unique communication challenges that arise whether you are an adult parent advocating for a child, or an adult child navigating the resistance of a parent experiencing mental health issues.
</li>
<li>
Breaking the Stigma in Faith and Culture: A candid conversation on overcoming cultural barriers&mdash;such as the Hispanic proverb "la ropa sucia se lava en casa" (don't air dirty laundry)&mdash;and how faith communities can safely bridge religious beliefs with professional mental health advocacy.
</li>
<li>
Free NAMI Resources Explained: Discover NAMI&rsquo;s tailored, cost-free educational classes, including Family-to-Family (for relatives of adults), NAMI Basics (for parents of children under 17), and Home Front (for military and veteran families).
</li>
</ul>
Featured Guests
<ul data-path-to-node="12">
<li>
Maria Honigman &ndash; Director of Programs, NAMI Greater San Antonio
</li>
<li>
Olga Rodriguez &ndash; Director of Education, NAMI Greater San Antonio
</li>
</ul>
To find a free NAMI support group or educational program near you, search for your local NAMI chapter online or visit caregiversos.org.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

When Mental Illness Hits Home: A Caregiver’s Guide to Support, Self-Care, & NAMI Resources | Olga Rodriguez & Maria Hoenigman

When a family member chooses to live an isolated life, it can be incredibly difficult to know when—and how—to step in. It becomes even more challenging when that loved one flatly refuses medical help, hides their symptoms, or is dealing with cognitive decline.

In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial sit down with Alzheimer’s advocate, researcher, and clinical trial participant Nancy Meserve. Nancy shares a deeply personal and eye-opening account of intervening in the life of her 77-year-old sister, Marie, who had spent years living isolated as a functional hoarder and avoiding medical professionals since 2018.

Through Nancy’s journey—navigating a surprise heart failure diagnosis, massive caffeine misuse, and early-stage dementia—listeners will learn actionable strategies for breaking through a loved one's denial, handling long specialist wait times, and managing the emotional toll of caregiving.

About Nancy

Nancy Meserve is an Alzheimer's disease advocate, researcher, clinical trial participant, and author of The Lived Experience of Participants in Preclinical Alzheimer's Intervention Research, published in the Alzheimer's Association journal, Alzheimer's & Dementia. She is widely recognized for her dedicated focus on documenting and improving the day-to-day lived experiences of those participating in early Alzheimer's research.

Key Topics Covered in This Episode:


Trusting Your Instincts: Why noticing that "something is off" is your most powerful tool, even when experts or the individual tell you otherwise.


The Stealth of Isolation: How older adults living alone successfully mask severe physical and cognitive changes, from shuffling gaits to extreme word-finding difficulties.


Using Urgent Care as a Gateway: How a single trip to an urgent care clinic can bypass years of medical avoidance and unlock critical hospital and specialist referrals.


Navigating the Neurology Bottleneck: Reality-tested advice on managing long wait times for cognitive care (including 9-month or year-long delays for neurologist appointments).


Creative Memory Scaffolding: Nancy's brilliant "Staples folder" method using provider photos and bios to build trust and comfort for a loved one who resists strangers or forgets appointments.

Key Caregiver Takeaways:

📌 Scale Back What's "Ideal" — Don't force a radical lifestyle change. Instead, figure out what a healthy, safe "new normal" looks like while still respecting their chosen way of life.

📌 Meet Them Where They Are — Build rapport through things that bring them joy first. Taking a moment to visit a favorite building or park can completely shift a resistant loved one into an agreeable mood for a doctor's visit.

📌 Investigate the Basket & Routine — Take your loved one to the grocery or supplement store. Watching what they buy can reveal hidden issues, such as dangerous amounts of hidden caffeine or unmanaged physical fatigue.

📌 Give Yourself Grace — Intervening with a resistant family member is emotionally exhausting. It is okay to step away, cry, and practice self-care.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

When a family member chooses to live an isolated life, it can be incredibly difficult to know when&mdash;and how&mdash;to step in. It becomes even more challenging when that loved one flatly refuses medical help, hides their symptoms, or is dealing with cognitive decline.
In this episode of Caregiver SOS On Air, hosts Ron Aaron and Carol Zernial sit down with Alzheimer&rsquo;s advocate, researcher, and clinical trial participant Nancy Meserve. Nancy shares a deeply personal and eye-opening account of intervening in the life of her 77-year-old sister, Marie, who had spent years living isolated as a functional hoarder and avoiding medical professionals since 2018.
Through Nancy&rsquo;s journey&mdash;navigating a surprise heart failure diagnosis, massive caffeine misuse, and early-stage dementia&mdash;listeners will learn actionable strategies for breaking through a loved one's denial, handling long specialist wait times, and managing the emotional toll of caregiving.
About Nancy
Nancy Meserve is an Alzheimer's disease advocate, researcher, clinical trial participant, and author of The Lived Experience of Participants in Preclinical Alzheimer's Intervention Research, published in the Alzheimer's Association journal, Alzheimer's &amp; Dementia. She is widely recognized for her dedicated focus on documenting and improving the day-to-day lived experiences of those participating in early Alzheimer's research.
Key Topics Covered in This Episode:
<ul data-path-to-node="9">
<li>
Trusting Your Instincts: Why noticing that "something is off" is your most powerful tool, even when experts or the individual tell you otherwise.
</li>
<li>
The Stealth of Isolation: How older adults living alone successfully mask severe physical and cognitive changes, from shuffling gaits to extreme word-finding difficulties.
</li>
<li>
Using Urgent Care as a Gateway: How a single trip to an urgent care clinic can bypass years of medical avoidance and unlock critical hospital and specialist referrals.
</li>
<li>
Navigating the Neurology Bottleneck: Reality-tested advice on managing long wait times for cognitive care (including 9-month or year-long delays for neurologist appointments).
</li>
<li>
Creative Memory Scaffolding: Nancy's brilliant "Staples folder" method using provider photos and bios to build trust and comfort for a loved one who resists strangers or forgets appointments.
</li>
</ul>
Key Caregiver Takeaways:
📌 Scale Back What's "Ideal" &mdash; Don't force a radical lifestyle change. Instead, figure out what a healthy, safe "new normal" looks like while still respecting their chosen way of life.
📌 Meet Them Where They Are &mdash; Build rapport through things that bring them joy first. Taking a moment to visit a favorite building or park can completely shift a resistant loved one into an agreeable mood for a doctor's visit.
📌 Investigate the Basket &amp; Routine &mdash; Take your loved one to the grocery or supplement store. Watching what they buy can reveal hidden issues, such as dangerous amounts of hidden caffeine or unmanaged physical fatigue.
📌 Give Yourself Grace &mdash; Intervening with a resistant family member is emotionally exhausting. It is okay to step away, cry, and practice self-care.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

How to Help an Isolated Loved One Who Is Resistant to Medical Care | Nancy Meserve

Amy Fuchs joins host Ron Aaron and co-host Carol Zernial to talk about boundaries in caregiving on this edition of Caregiver SOS.

About Amy

Amy Fuchs, is a licensed clinical social worker and certified aging life care manager. She has decades of clinical experience helping older adults and their families navigate the highs and lows of the aging process. In 2008 she created The Elder Expert, a consulting firm which provides education, care management and coaching services. Amy is an alumni of the University of Michigan, where she received a Bachelor of Arts degree in psychology and then went on to obtain her Master of Social Work from the Wurzweiler School of Social Work in New York City. Amy is an active member of the National Association of Social Workers as well as the Aging Life Care Association. 

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Amy Fuchs joins host Ron Aaron and co-host Carol Zernial to talk about boundaries in caregiving on this edition of Caregiver SOS.
About Amy
Amy Fuchs, is a licensed clinical social worker and certified aging life care manager. She has decades of clinical experience helping older adults and their families navigate the highs and lows of the aging process. In 2008 she created The Elder Expert, a consulting firm which provides education, care management and coaching services. Amy is an alumni of the University of Michigan, where she received a Bachelor of Arts degree in psychology and then went on to obtain her Master of Social Work from the Wurzweiler School of Social Work in New York City. Amy is an active member of the National Association of Social Workers as well as the Aging Life Care Association.&nbsp;
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Boundaries in Caregiving | Amy Fuchs

Donna Butts joins host Ron Aaron and co-host Carol Zernial to talk about grandfamilies and kinship caregivers on this edition of Caregiver SOS.

About Donna

 Donna Butts is an award-winning nonprofit executive, author, and trusted voice frequently quoted in the national media. As executive director of Generations United, a role she served in for more than twenty-seven years, she was invited to testify before Congress, address the United Nations, speak before the Federal Reserve Board, and present in more than a dozen countries, including at the World Human Rights Cities Forum in South Korea. She blogged for the Huffington Post for four years, covering intergenerational relations, grandfamilies, and health. Her writing also has appeared in several books and more than a dozen publications. Appointed in 1998 to the first Kinship Care Advisory Panel by then–Department of Health and Human Services Secretary Donna Shalala, Donna has helped pave the way for crucial legislation and support for grandfamilies. She has been a part of eight United Nations expert group meetings on intergenerational solidarity and dialogue, focusing on the changing demographics and the value of older adults. For more information about Donna and Grandfamilies, please visit www.donnambutts.com.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Donna Butts joins host Ron Aaron and co-host Carol Zernial to talk about grandfamilies and kinship caregivers on this edition of Caregiver SOS.
About Donna
&nbsp;Donna Butts is an award-winning nonprofit executive, author, and trusted voice frequently quoted in the national media. As executive director of Generations United, a role she served in for more than twenty-seven years, she was invited to testify before Congress, address the United Nations, speak before the Federal Reserve Board, and present in more than a dozen countries, including at the World Human Rights Cities Forum in South Korea. She blogged for the Huffington Post for four years, covering intergenerational relations, grandfamilies, and health. Her writing also has appeared in several books and more than a dozen publications. Appointed in 1998 to the first Kinship Care Advisory Panel by then&ndash;Department of Health and Human Services Secretary Donna Shalala, Donna has helped pave the way for crucial legislation and support for grandfamilies. She has been a part of eight United Nations expert group meetings on intergenerational solidarity and dialogue, focusing on the changing demographics and the value of older adults. For more information about Donna and Grandfamilies, please visit www.donnambutts.com.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

 Grandfamilies & Kinship Caregivers | Donna Butts

Neal Shaw joins host Ron Aaron and co-host Carol Zernial to talk about the lack of caregiving training caregivers receive and caring for the older population on this edition of Caregiver SOS.

About Neal 

Neal K. Shah is a healthcare researcher focused on caregiving for the aging population. He is an NIH-funded Principal Investigator on the YayaGuide AI for Caregiver Training project that he started at Johns Hopkins. Neal is also CEO of CareYaya, a social enterprise providing affordable eldercare and bringing thousands of college students into the caregiving workforce. He serves on North Carolina's Steering Committee on Aging. Neal previously managed a $250 million hedge fund in New York City in his mid-30s, when he suddenly became a family caregiver through dementia and cancer, which led him to shift the focus of his career and work to better supporting caregivers. He is active on social media across Instagram and LinkedIn with an audience of over 250,000 caregivers across America.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Neal Shaw joins host Ron Aaron and co-host Carol Zernial to talk about the lack of caregiving training caregivers receive and caring for the older population on this edition of Caregiver SOS.
About Neal&nbsp;
Neal K. Shah is a healthcare researcher focused on caregiving for the aging population. He is an NIH-funded Principal Investigator on the YayaGuide AI for Caregiver Training project that he started at Johns Hopkins. Neal is also CEO of CareYaya, a social enterprise providing affordable eldercare and bringing thousands of college students into the caregiving workforce. He serves on North Carolina's Steering Committee on Aging. Neal previously managed a $250 million hedge fund in New York City in his mid-30s, when he suddenly became a family caregiver through dementia and cancer, which led him to shift the focus of his career and work to better supporting caregivers. He is active on social media across Instagram and LinkedIn with an audience of over 250,000 caregivers across America.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiving for the Older Population | Neal Shaw 

Suzy McNamara joins host Ron Aaron and co-host Carol Zernial to talk about caregiving loss on this edition of Caregiver SOS.

About Suzy

 Suzy McNamara is an author, speaker, and caregiving and grief advocate whose work explores the emotional realities of loving someone through loss. She is the author of The Silkworm, The Magician, and The Sister Tree, a deeply human reflection on caregiving, faith, and enduring connection.

In 2024, Suzy lost her husband of 37 years after caring for him at home through early-onset Alzheimer’s, while also grieving the loss of her sister within the same year. These overlapping experiences shape her voice and give her a rare perspective on what it means to lose someone both gradually and all at once.

A mother of four, lawyer, and fundraiser, Suzy writes for those carrying the often invisible weight of caregiving and grief. Her work offers language, companionship, and meaning for people navigating life’s most difficult transitions.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Suzy McNamara joins host Ron Aaron and co-host Carol Zernial to talk about caregiving loss on this edition of Caregiver SOS.
About Suzy
&nbsp;Suzy McNamara is an author, speaker, and caregiving and grief advocate whose work explores the emotional realities of loving someone through loss. She is the author of The Silkworm, The Magician, and The Sister Tree, a deeply human reflection on caregiving, faith, and enduring connection.
In 2024, Suzy lost her husband of 37 years after caring for him at home through early-onset Alzheimer&rsquo;s, while also grieving the loss of her sister within the same year. These overlapping experiences shape her voice and give her a rare perspective on what it means to lose someone both gradually and all at once.
A mother of four, lawyer, and fundraiser, Suzy writes for those carrying the often invisible weight of caregiving and grief. Her work offers language, companionship, and meaning for people navigating life&rsquo;s most difficult transitions.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiving Loss | Suzy McNamara

Karee White joins host Ron Aaron and guest co-host Tina Smith to talk about her caregiving story on this edition of Caregiver SOS.

About Karee

Karee White is a veteran, military mother, and Elizabeth Dole Foundation Caregiver Fellow based in Apex, North Carolina. She and her husband Jim are both veterans. Seven of their nine children have served or are currently serving in the United States Armed Forces—a legacy of service that stretches back nearly 250 years in their family.

Her Story: Karee's daughter Kimmy, an Army paratrooper, suffered a severe traumatic brain injury at 25 years old while forward stationed in Italy following a deployment to Afghanistan. Kimmy was in a coma for a year. When doctors told the family there was nothing more they could do, they brought her home. Fifteen years later, Kimmy is relearning to

walk and can speak a few words. Karee has been her primary caregiver throughout.

Her Book: Ash Woven is officially released April 23, 2026. Karee's memoir traces her family's journey through generational service, sacrifice, and healing. It explores how strength is not newly found in crisis—it is remembered, drawn from those who came before. A portion of the proceeds supports the I Love Everyone Foundation. Available on Amazon.

Her Work with the Elizabeth Dole Foundation: As a Dole Caregiver Fellow with the Elizabeth Dole Foundation, Karee is part of a national network of military and veteran caregivers who share their stories to drive awareness, policy, and support. There are 14.3 million military and veteran caregivers in the U.S. (2024 RAND report), and millions more—including an estimated 2.3 million children—quietly providing unpaid care in those homes. 

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Karee White joins host Ron Aaron and guest co-host Tina Smith to talk about her caregiving story on this edition of Caregiver SOS.
About Karee
Karee White is a veteran, military mother, and Elizabeth Dole Foundation Caregiver Fellow based in Apex, North Carolina. She and her husband Jim are both veterans. Seven of their nine children have served or are currently serving in the United States Armed Forces&mdash;a legacy of service that stretches back nearly 250 years in their family.
Her Story: Karee's daughter Kimmy, an Army paratrooper, suffered a severe traumatic brain injury at 25 years old while forward stationed in Italy following a deployment to Afghanistan. Kimmy was in a coma for a year. When doctors told the family there was nothing more they could do, they brought her home. Fifteen years later, Kimmy is relearning to
walk and can speak a few words. Karee has been her primary caregiver throughout.
Her Book: Ash Woven is officially released April 23, 2026. Karee's memoir traces her family's journey through generational service, sacrifice, and healing. It explores how strength is not newly found in crisis&mdash;it is remembered, drawn from those who came before. A portion of the proceeds supports the I Love Everyone Foundation. Available on Amazon.
Her Work with the Elizabeth Dole Foundation: As a Dole Caregiver Fellow with the Elizabeth Dole Foundation, Karee is part of a national network of military and veteran caregivers who share their stories to drive awareness, policy, and support. There are 14.3 million military and veteran caregivers in the U.S. (2024 RAND report), and millions more&mdash;including an estimated 2.3 million children&mdash;quietly providing unpaid care in those homes.&nbsp;
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

A Family Caregiving Journey with Karee White

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Caregiver SOS

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS

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