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Caregiver SOS

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Hosts: Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS 5-16-20 & 5-17-20 w/ J.W. Freiberg

In this inspiring episode of Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial sit down with Carol Rosenstein, an educator, pioneer in holistic mind-body medicine, and the founder of Music Mends Minds, Inc. Carol shares her deeply personal story as a caregiver for her late husband, Erwin, who lived with Parkinson’s disease and dementia for 15 years. After discovering how sitting at the piano instantly awakened Erwin's brain chemistry and restored his vitality without pharmaceuticals, Carol launched "The Fifth Dementia"—a band where seniors with neurodegenerative diseases make music alongside their caregivers.

Together, the hosts and Carol explore how music acts as a universal, boundary-crossing language. They discuss the profound biological impact of melody and rhythm on the brain, how music can be used strategically to combat caregiver burnout, and how a global partnership with Rotary International is bringing free music programs to communities worldwide.

Key Topics Covered:


The Inspiration Behind Music Mends Minds: Carol Port Rosenstein recounts how her husband's dramatic positive response to playing the piano—even after being taken off synthetic Parkinson's medication—led to the discovery that music actively stimulates natural dopamine and changes brain chemistry.


The Origin of "The Fifth Dementia" Band: How a launch gathering of strangers instantly united four seniors as "music brothers," spawning a flagship band and a national movement featured on PBS.


The Resilience of Music Storage Cells: Why musical memory stays intact late into neurodegenerative conditions like Alzheimer's and Parkinson's. Carol explains how music storage cells formed in the human fetus remain hardy and resistant to brain cell destruction.


Music as a Daily Caregiver Tool: Practical ways caregivers can use a loved one's favorite personalized playlist to regulate mood, manage agitation, improve compliance, and ease morning routines.


Restoring Gait, Speech, and Movement: How rhythm acts as an internal metronome for Parkinson's patients, helping restore vocal cadence, physical movement, and confidence.


Global Outreach and Free Resources: Details on Music Mends Minds' partnership with the Alzheimer's Dementia Rotary Action Group to scale in-person music groups globally, as well as their free tri-weekly Zoom music therapy sessions.

Key Takeaways for Caregivers:


Music Changes Brain Chemistry: Playing or listening to familiar music stimulates the remaining dopamine-producing cells in the brain, helping re-engage individuals with their environment.


Music is "Medicine for the Mind": Unlike synthetic medications that come with complex side effects, music offers therapeutic benefits with only one side effect: pure joy.


Use Personal Playlists for Daily Care: Caregivers can control the "mental temperature" of their care recipients by using upbeat music to encourage energetic wake-ups or calming music to soothe agitation.


Rhythm Restores Function: Parkinson's patients lose their natural cadence; introducing rhythmic beats and shakers can help restore gait and assist with vocal exercise.


A Daily Moment of Joy: Integrating music into caregiving creates an accessible opportunity for loved ones and caregivers to share a moment of joy every single day.

About Carol

Music Mends Minds, Inc. President and Founder, Carol Port Rosenstein, is an educator and pioneer in the field of holistic mind-body medicine. After her career as a chiropractor, she became interested in total mind-body health and acquired a Master's in Transformational Psychology to help her further delve into alternative and complementary medicine.

Carol became very interested in the power of music as a form of acoustic art and therapy. After observing Irwin, her husband who had Parkinson’s and dementia, playing the piano on minimal medication, she watched him revive like a wilted flower being watered. Carol recognized the power of music changing brain chemistry, which eventually led to the formation of Music Mends Minds, Inc., and their flagship band the 5th Dementia.

Carol continues to advocate for the power of music as medicine, which is corroborated by the scientific community to bring pure joy and increased brain function to patients suffering from neurodegenerative diseases, traumatic brain injury, stroke and PTSD, caregivers, and families at large.

Resources & Links Mentioned:


Website:musicmensminds.org

 


Free Live-Streamed Zoom Sessions: Global music and socialization sessions held every Monday, Wednesday, and Friday (11:30 AM – 12:30 PM PST).


Flagship Band Live Streams: Broadcasts of "The Fifth Dementia" band sessions available every Thursday via their website.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this inspiring episode of Caregiver S.O.S. On Air, hosts Ron Aaron and Carol Zernial sit down with Carol Rosenstein, an educator, pioneer in holistic mind-body medicine, and the founder of Music Mends Minds, Inc. Carol shares her deeply personal story as a caregiver for her late husband, Erwin, who lived with Parkinson&rsquo;s disease and dementia for 15 years. After discovering how sitting at the piano instantly awakened Erwin's brain chemistry and restored his vitality without pharmaceuticals, Carol launched "The Fifth Dementia"&mdash;a band where seniors with neurodegenerative diseases make music alongside their caregivers.
Together, the hosts and Carol explore how music acts as a universal, boundary-crossing language. They discuss the profound biological impact of melody and rhythm on the brain, how music can be used strategically to combat caregiver burnout, and how a global partnership with Rotary International is bringing free music programs to communities worldwide.
Key Topics Covered:
<ul data-path-to-node="5">
<li>
The Inspiration Behind Music Mends Minds: Carol Port Rosenstein recounts how her husband's dramatic positive response to playing the piano&mdash;even after being taken off synthetic Parkinson's medication&mdash;led to the discovery that music actively stimulates natural dopamine and changes brain chemistry.
</li>
<li>
The Origin of "The Fifth Dementia" Band: How a launch gathering of strangers instantly united four seniors as "music brothers," spawning a flagship band and a national movement featured on PBS.
</li>
<li>
The Resilience of Music Storage Cells: Why musical memory stays intact late into neurodegenerative conditions like Alzheimer's and Parkinson's. Carol explains how music storage cells formed in the human fetus remain hardy and resistant to brain cell destruction.
</li>
<li>
Music as a Daily Caregiver Tool: Practical ways caregivers can use a loved one's favorite personalized playlist to regulate mood, manage agitation, improve compliance, and ease morning routines.
</li>
<li>
Restoring Gait, Speech, and Movement: How rhythm acts as an internal metronome for Parkinson's patients, helping restore vocal cadence, physical movement, and confidence.
</li>
<li>
Global Outreach and Free Resources: Details on Music Mends Minds' partnership with the Alzheimer's Dementia Rotary Action Group to scale in-person music groups globally, as well as their free tri-weekly Zoom music therapy sessions.
</li>
</ul>
Key Takeaways for Caregivers:
<ol data-path-to-node="8">
<li>
Music Changes Brain Chemistry: Playing or listening to familiar music stimulates the remaining dopamine-producing cells in the brain, helping re-engage individuals with their environment.
</li>
<li>
Music is "Medicine for the Mind": Unlike synthetic medications that come with complex side effects, music offers therapeutic benefits with only one side effect: pure joy.
</li>
<li>
Use Personal Playlists for Daily Care: Caregivers can control the "mental temperature" of their care recipients by using upbeat music to encourage energetic wake-ups or calming music to soothe agitation.
</li>
<li>
Rhythm Restores Function: Parkinson's patients lose their natural cadence; introducing rhythmic beats and shakers can help restore gait and assist with vocal exercise.
</li>
<li>
A Daily Moment of Joy: Integrating music into caregiving creates an accessible opportunity for loved ones and caregivers to share a moment of joy every single day.
</li>
</ol>
About Carol
Music Mends Minds, Inc. President and Founder, Carol Port Rosenstein, is an educator and pioneer in the field of holistic mind-body medicine. After her career as a chiropractor, she became interested in total mind-body health and acquired a Master's in Transformational Psychology to help her further delve into alternative and complementary medicine.
Carol became very interested in the power of music as a form of acoustic art and therapy. After observing Irwin, her husband who had Parkinson&rsquo;s and dementia, playing the piano on minimal medication, she watched him revive like a wilted flower being watered. Carol recognized the power of music changing brain chemistry, which eventually led to the formation of Music Mends Minds, Inc., and their flagship band the 5th Dementia.
Carol continues to advocate for the power of music as medicine, which is corroborated by the scientific community to bring pure joy and increased brain function to patients suffering from neurodegenerative diseases, traumatic brain injury, stroke and PTSD, caregivers, and families at large.
Resources &amp; Links Mentioned:
<ul data-path-to-node="11">
<li>
Website: <a href="https://www.google.com/search?q=https://www.musicmensminds.org" data-hveid="0" data-ved="0CAAQ_4QMahcKEwjx-9G_6ZuWAxUAAAAAHQAAAAAQcA">musicmensminds.org</a>
&nbsp;
</li>
<li>
Free Live-Streamed Zoom Sessions: Global music and socialization sessions held every Monday, Wednesday, and Friday (11:30 AM &ndash; 12:30 PM PST).
</li>
<li>
Flagship Band Live Streams: Broadcasts of "The Fifth Dementia" band sessions available every Thursday via their website.
</li>
</ul>
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

The 5th Dementia: How Music Mends Minds | Carol Rosenstein

In this poignant episode of Caregiver SOS On Air, host Ron Aaron and guest co-host Tina Smith are joined by Peter Dare to discuss his deeply moving journey as a caregiver to his husband of over four decades, John Goodnett.

John—an ultra-runner with an irrepressible spirit and a sharp sense of humor—was diagnosed with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. When the COVID-19 pandemic hit, Peter found himself in near-total isolation, navigating the physical and emotional weight of John’s declining health as his sole, round-the-clock caregiver. Their journey, captured in the documentary Loving John, is a powerful testament to commitment, resilience, and love in the face of progressive illness.

Key Highlights & Topics Covered:


The Path to Diagnosis: Peter shares the long, difficult process of diagnosing ALS—what he calls a "downhill glide path"—and how he and John faced the diagnosis by taking life one day at a time.


Caregiving in Isolation: How the onset of the COVID-19 pandemic impacted their daily lives, turning Peter into a full-time, 24/7 caregiver while relying on creative support from friends outside their windows.


The Behind-the-Scenes Story of Loving John: How a local filmmaker’s interest in an ultra-runner evolved into an inspiring documentary capturing John's life, humor, and legacy.


Honoring Final Wishes: Peter reflects on bringing John’s ashes back to his home in American Samoa, where he was laid to rest next to his mother surrounded by family.

Key Takeaways for Caregivers:


Accept and Invite Help: Even when isolated, leaning on a support system—friends, community, or local organizations like the VA—is essential to sustaining caregiving.


Maintain Perspective and Positivity: Focusing on the present day rather than worrying about an uncertain timeline can make overwhelming diagnoses more manageable.


Caregiver Respite is Necessary: Taking short breaks and accepting outside care for a loved one is not a failure; it is crucial for maintaining your own mental and physical stamina.

About Peter

Peter Dare spent over four decades with his husband, John Godinet, an ultra-runner known for his humor and irrepressible spirit. When John was diagnosed with ALS, Peter became his caregiver, and that role expanded when the pandemic hit. Cut off from most outside help, Peter became John's sole, around-the-clock caregiver, shouldering the physical and emotional weight of ALS in near-total isolation. Their story anchors Loving John, a feature documentary. In it, Peter offers an honest, firsthand account of caring for the person he loved most. In the years A.J. (After John), he spends a few weeks of the year in American Samoa visiting John's family while also caretaking their last fur baby and John's running partner, Ginger, their 17+-year-old border collie. After Ginger passes away to go run with John and Piglet, he'll start thinking about where to go and what to do. "Lo que será, será"!

To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.

In this poignant episode of Caregiver SOS On Air, host Ron Aaron and guest co-host Tina Smith are joined by Peter Dare to discuss his deeply moving journey as a caregiver to his husband of over four decades, John Goodnett.
John&mdash;an ultra-runner with an irrepressible spirit and a sharp sense of humor&mdash;was diagnosed with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. When the COVID-19 pandemic hit, Peter found himself in near-total isolation, navigating the physical and emotional weight of John&rsquo;s declining health as his sole, round-the-clock caregiver. Their journey, captured in the documentary Loving John, is a powerful testament to commitment, resilience, and love in the face of progressive illness.
Key Highlights &amp; Topics Covered:
<ul data-path-to-node="6">
<li>
The Path to Diagnosis: Peter shares the long, difficult process of diagnosing ALS&mdash;what he calls a "downhill glide path"&mdash;and how he and John faced the diagnosis by taking life one day at a time.
</li>
<li>
Caregiving in Isolation: How the onset of the COVID-19 pandemic impacted their daily lives, turning Peter into a full-time, 24/7 caregiver while relying on creative support from friends outside their windows.
</li>
<li>
The Behind-the-Scenes Story of Loving John: How a local filmmaker&rsquo;s interest in an ultra-runner evolved into an inspiring documentary capturing John's life, humor, and legacy.
</li>
<li>
Honoring Final Wishes: Peter reflects on bringing John&rsquo;s ashes back to his home in American Samoa, where he was laid to rest next to his mother surrounded by family.
</li>
</ul>
Key Takeaways for Caregivers:
<ul data-path-to-node="8">
<li>
Accept and Invite Help: Even when isolated, leaning on a support system&mdash;friends, community, or local organizations like the VA&mdash;is essential to sustaining caregiving.
</li>
<li>
Maintain Perspective and Positivity: Focusing on the present day rather than worrying about an uncertain timeline can make overwhelming diagnoses more manageable.
</li>
<li>
Caregiver Respite is Necessary: Taking short breaks and accepting outside care for a loved one is not a failure; it is crucial for maintaining your own mental and physical stamina.
</li>
</ul>
About Peter
Peter Dare spent over four decades with his husband, John Godinet, an ultra-runner known for his humor and irrepressible spirit. When John was diagnosed with ALS, Peter became his caregiver, and that role expanded when the pandemic hit. Cut off from most outside help, Peter became John's sole, around-the-clock caregiver, shouldering the physical and emotional weight of ALS in near-total isolation. Their story anchors Loving John, a feature documentary. In it, Peter offers an honest, firsthand account of caring for the person he loved most. In the years A.J. (After John), he spends a few weeks of the year in American Samoa visiting John's family while also caretaking their last fur baby and John's running partner, Ginger, their 17+-year-old border collie. After Ginger passes away to go run with John and Piglet, he'll start thinking about where to go and what to do. "Lo que ser&aacute;, ser&aacute;"!
To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.
To learn more about the documentary featured in this episode, look for Loving John on Google or stream it on select public broadcasting channels like WETA.

Loving John: A Story of Caregiving, ALS, & Unconditional Love | Peter Dare

In this episode of Caregiver SOS On Air, guest host Tina Smith and co-host Ron Aaron are joined by Dr. Ethelle Lorde, founding president of the International Caregivers Association. Drawing from her background in counseling, organizational leadership, and her 21 years as a primary caregiver for her late husband, Dr. Lorde offers a fresh, compassionate perspective on supporting loved ones living with dementia.

Together, they explore why communication is the foundational challenge in dementia care and why traditional strategies like "redirection" often fall short. Dr. Lorde breaks down the psychology of the dementia brain, explaining how caregivers—both family members and healthcare professionals—can drop ineffective methods, build authentic connections, and reset difficult moments to drastically improve quality of life.

Key Topics Discussed


The Communication Priority: Why communication is the single most critical hurdle to master before addressing other aspects of dementia care.


Moving Beyond Redirection: Why traditional redirection can feel offensive or confusing to someone with dementia, and why authenticity and agreement build deeper trust.


Understanding Vascular Dementia: How vascular factors play a role in cognitive decline and how routines help provide structure for both the individual and the caregiver.


"Resetting the Brain": Real-world examples of how validating a person’s reality, rather than arguing or interrupting, can lower anxiety and de-escalate challenging behavior.


Connecting Through History & Hobbies: How drawing on a person's life work, deep-seated habits, and favorite music can engage someone even when they become non-verbal.


Training Healthcare Professionals: The importance of equipping frontline workers and organizations with specialized dementia communication techniques to create a more supportive care environment.

Key Takeaways for Caregivers


Follow Before You Lead: Never interrupt or force a logic-based reality. Meet the person in their current state of mind, validate their feelings, and agree with their perspective to help calm their central nervous system.


Be Authentic, Not Deceptive: Redirection often relies on distraction or untruths, which can be exhausting for caregivers and disrespectful to care recipients. Authentic engagement builds trust.


Leverage Lifelong Memories & Music: Tap into deep-seated interests—such as past professions, favorite games, or familiar music—to maintain connections and slow down cognitive frustration.


Maintain Consistent Routines: Establishing steady daily habits around sleeping, meals, and activities gives both the caregiver and the care recipient a predictable, reassuring daily rhythm.

Resource Mentioned: To learn more about Dr. Ethelle Lorde’s work and caregiver resources, visit ICA Cares.

About Dr. Lorde

Dr. Éthelle Lorde is the founding president of the International Caregivers Association LLC (ICA). She earned a Master of Education in Counseling from the University of Maine at Orono in 1992 and her Doctor of Management in Organizational Leadership from the University of Phoenix in 2010. She is an author, a professor, and a keynote speaker. Dr. Lorde was married to the late Major Larry S. Potter, who was officially diagnosed with Vascular Dementia in 2000. She shares that she has 21 years of experience as a “pack leader” for her husband. As a family caregiver, she realized early on that there is an urgent need for a change in the way dementia care is delivered. She created the Transactional Dementia Intelligence Model, a systemic approach to dementia care. Her latest book is “Alzheimer and Dementia Coaching: Taking a Systems Approach to Creating an Alzheimer/Dementia-Friendly Healthcare Workforce” is in its 3rd edition; with her

1st Alzheimer’s primer entitled “How in the World…and Now What Do I Do?” has been referred to an Alzheimer’s Bible.

Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.

Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

In this episode of Caregiver SOS On Air, guest host Tina Smith and co-host Ron Aaron are joined by Dr. Ethelle Lorde, founding president of the International Caregivers Association. Drawing from her background in counseling, organizational leadership, and her 21 years as a primary caregiver for her late husband, Dr. Lorde offers a fresh, compassionate perspective on supporting loved ones living with dementia.
Together, they explore why communication is the foundational challenge in dementia care and why traditional strategies like "redirection" often fall short. Dr. Lorde breaks down the psychology of the dementia brain, explaining how caregivers&mdash;both family members and healthcare professionals&mdash;can drop ineffective methods, build authentic connections, and reset difficult moments to drastically improve quality of life.
Key Topics Discussed
<ul data-path-to-node="7">
<li>
The Communication Priority: Why communication is the single most critical hurdle to master before addressing other aspects of dementia care.
</li>
<li>
Moving Beyond Redirection: Why traditional redirection can feel offensive or confusing to someone with dementia, and why authenticity and agreement build deeper trust.
</li>
<li>
Understanding Vascular Dementia: How vascular factors play a role in cognitive decline and how routines help provide structure for both the individual and the caregiver.
</li>
<li>
"Resetting the Brain": Real-world examples of how validating a person&rsquo;s reality, rather than arguing or interrupting, can lower anxiety and de-escalate challenging behavior.
</li>
<li>
Connecting Through History &amp; Hobbies: How drawing on a person's life work, deep-seated habits, and favorite music can engage someone even when they become non-verbal.
</li>
<li>
Training Healthcare Professionals: The importance of equipping frontline workers and organizations with specialized dementia communication techniques to create a more supportive care environment.
</li>
</ul>
Key Takeaways for Caregivers
<ol data-path-to-node="10">
<li>
Follow Before You Lead: Never interrupt or force a logic-based reality. Meet the person in their current state of mind, validate their feelings, and agree with their perspective to help calm their central nervous system.
</li>
<li>
Be Authentic, Not Deceptive: Redirection often relies on distraction or untruths, which can be exhausting for caregivers and disrespectful to care recipients. Authentic engagement builds trust.
</li>
<li>
Leverage Lifelong Memories &amp; Music: Tap into deep-seated interests&mdash;such as past professions, favorite games, or familiar music&mdash;to maintain connections and slow down cognitive frustration.
</li>
<li>
Maintain Consistent Routines: Establishing steady daily habits around sleeping, meals, and activities gives both the caregiver and the care recipient a predictable, reassuring daily rhythm.
</li>
</ol>
Resource Mentioned: To learn more about Dr. Ethelle Lorde&rsquo;s work and caregiver resources, visit <a href="https://www.icacares.com/" data-hveid="0" data-ved="0CAAQ_4QMahcKEwixlfyCu_aVAxUAAAAAHQAAAAAQUw">ICA Cares</a>.
About Dr. Lorde
Dr. &Eacute;thelle Lorde is the founding president of the International Caregivers Association LLC (ICA). She earned a Master of Education in Counseling from the University of Maine at Orono in 1992 and her Doctor of Management in Organizational Leadership from the University of Phoenix in 2010. She is an author, a professor, and a keynote speaker. Dr. Lorde was married to the late Major Larry S. Potter, who was officially diagnosed with Vascular Dementia in 2000. She shares that she has 21 years of experience as a &ldquo;pack leader&rdquo; for her husband. As a family caregiver, she realized early on that there is an urgent need for a change in the way dementia care is delivered. She created the Transactional Dementia Intelligence Model, a systemic approach to dementia care. Her latest book is &ldquo;Alzheimer and Dementia Coaching: Taking a Systems Approach to Creating an Alzheimer/Dementia-Friendly Healthcare Workforce&rdquo; is in its 3rd edition; with her
1st Alzheimer&rsquo;s primer entitled &ldquo;How in the World&hellip;and Now What Do I Do?&rdquo; has been referred to an Alzheimer&rsquo;s Bible.
Hosts Ron Aaron and Carol Zernial, and their guests talk about Caregiving and how to best cope with the stresses associated with it. Learn about "Caregiver SOS" and the "Teleconnection Hotline" programs.
Caregiver SOS On Air is a presentation of the WellMed Charitable Foundation. For more resources, tips, and past episodes, visit caregiversos.org or email your questions to radio@wellmed.net.

Caregiver SOS 5-16-20 & 5-17-20 w/ J.W. Freiberg

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