Last year, seven-year-old Jack was diagnosed with hereditary spastic paraplegia type four (SPG4), a disease that affects less than 0.01 per cent of the population.

Although there is currently no treatment or cure, his parents Anna and Richard Laidlaw have been fundraising since March to help fund one.

Anna and Richard join Patricia Boal to talk about the progression of SPG4 and their response to it as well as the outpouring of community support and how more folks can get involved.