Last year, seven-year-old Jack was diagnosed with hereditary spastic paraplegia type four (SPG4), a disease that affects less than 0.01 per cent of the population.

Although there is currently no treatment or cure, his parents Anna and Richard Laidlaw have been fundraising since March to help fund one.

Anna and Richard join Patricia Boal to talk about the progression of SPG4 and their response to it as well as the outpouring of community support and how more folks can get involved.

Last year, seven-year-old Jack was diagnosed with hereditary spastic paraplegia type four (SPG4), a disease that affects less than 0.01 per cent of the population.
Although there is currently no treatment or cure, his parents Anna and Richard Laidlaw have been fundraising since March to help fund one.
Anna and Richard join Patricia Boal to talk about the progression of SPG4 and their response to it as well as the outpouring of community support and how more folks can get involved.

All the best audio from Ottawa at Work!

Ottawa at Work with Patricia Boal - Sound Bites

Daily full show audio from Ottawa at Work with Patricia Boal on 580 CFRA

Daily full show audio from Ottawa at Work with Patricia Boal on 580 CFRA

Ottawa at Work with Patricia Boal

580 CFRA

'Huge uphill battle' — Parents to local boy with rare disease on community support, Taylor Swift ticket auction, and other fundraisers

An Ottawa mayoral candidate is pledging to require one-page rural assessments from City Staff before City Council adopts any citywide standard. Alex Lawson says that Canada’s Capital applies a single set of standards to two different operating environments – and rural communities live with the results. In a sitdown with CFRA’s Kristy Cameron, he says there has to be greater consideration for all parts of the city when it comes to policymaking. He also indicated he would reverse at least some of the recent changes made to parking regulations, citing complaints from local businesses.

An Ottawa mayoral candidate is pledging to require one-page rural assessments from City Staff before City Council adopts any citywide standard. Alex Lawson says that Canada&rsquo;s Capital applies a single set of standards to two different operating environments &ndash; and rural communities live with the results. In a sitdown with CFRA&rsquo;s Kristy Cameron, he says there has to be greater consideration for all parts of the city when it comes to policymaking. He also indicated he would reverse at least some of the recent changes made to parking regulations, citing complaints from local businesses.

Ottawa Now - Mayoral candidate Alex Lawson talks policymaking adaptations in sitdown with Kristy Cameron

Dozens of homes in Greely were evacuated Tuesday night after a crash involving a propane tanker truck. Ottawa Police say it happened just before 7 o’clock on Parkway Road. The truck was carrying approximately 7,000 litres of liquified propane when it rolled onto its side. And once the leak started, a series of evacuations were ordered near Parkway Road and Cedar Lane. Eventually, a Hazmat crew was brought in to mitigate the situation, and the mess was cleaned up. Trisha Presley lives in Greely, close to where the tanker crashed. She called 9-1-1, was one of the first to evacuate, and was one of the last to return. Presley joins Kristy Cameron to summarize a stressful 24 hours.

Dozens of homes in Greely were evacuated Tuesday night after a crash involving a propane tanker truck. Ottawa Police say it happened just before 7 o&rsquo;clock on Parkway Road. The truck was carrying approximately 7,000 litres of liquified propane when it rolled onto its side. And once the leak started, a series of evacuations were ordered near Parkway Road and Cedar Lane. Eventually, a Hazmat crew was brought in to mitigate the situation, and the mess was cleaned up. Trisha Presley lives in Greely, close to where the tanker crashed. She called 9-1-1, was one of the first to evacuate, and was one of the last to return. Presley joins Kristy Cameron to summarize a stressful 24 hours.

Ottawa Now - Greely residents catching up on sleep after a propane truck crash creates a stressful Tuesday night

As the return-to-office mandate ramps up, many federal workers are still looking for parking. CTV's Austin Lee has the latest on what the City of Ottawa is doing to remedy the lack of spots. Then, we preview tonight’s CTV Ottawa supper-hour newscast with Jackie Perez and Stefan Keyes. And if news breaks in real time, you’ll hear it live on CFRA’s Ottawa Now.

As the return-to-office mandate ramps up, many federal workers are still looking for parking. CTV's Austin Lee has the latest on what the City of Ottawa is doing to remedy the lack of spots. Then, we preview tonight&rsquo;s CTV Ottawa supper-hour newscast with Jackie Perez and Stefan Keyes. And if news breaks in real time, you&rsquo;ll hear it live on CFRA&rsquo;s Ottawa Now.

'Huge uphill battle' — Parents to local boy with rare disease on community support, Taylor Swift ticket auction, and other fundraisers

In 2 playlist(s)

580 CFRA

Social links

Recent clips