In this episode of When Life Gives You Parkinson's, I explore how the collision of health, technology and innovation in the private sector is revolutionizing approaches to measuring brain activity and treat brain related issues from Parkinson’s to major brain injuries and concussions.

A major part of having Parkinson's disease is finding out what matches you in terms of diet, exercise, pharmaceuticals, therapies and relationships so you can manage your symptoms and maintain the best quality of life for as long as possible. But, are you aware of everything that's out there that you could be using? I wasn't. From hand-made, steel stationary bikes designed especially for people with Parkinson’s to a tongue stimulator to improve your balance and walking gait, I feel as if I’ve found a secret Bat-cave of cool, technology that I never knew existed. All of it comes with a price tag and insurance does not cover it.

DISCLAIMER: I am not a spokesperson for these companies or products, they are not clients and have not paid for this placement. These products and services are part of my journey in exploring all the ways to live my best life with Parkinson’s.

First, the stationary bike. It is called the Theracycle. Joe Possenti bought a Theracycle a year ago and uses it most days. He has had Parkinson’s for 12-years. He told me it’s a game-changer for him. The 200-pound, motorized cycle is designed to improve the lives of people with degenerative brain diseases and works by having assisted pedaling and handlebars that move like an elliptical machine and a the rowing machine.

The most popular Theracycle costs $4,800 ($6,700 CAD), is delivered free in the continental United States and comes with a money-back guarantee.

There is quite an operation underway in Surrey B.C. Recently, I toured The Health and Technology District, which is located across the street from Surrey Memorial Hospital. It is the brainchild of Dr. Ryan D’Arcy, a neuroscientist and entrepreneur.

Dr. D’Arcy says there are 75 tech companies and 96 medical specialists integrated, collaborating and bumping into each other in one building alone.

As I toured the facility, I realized I was not aware how many available treatments there are for the symptomatic issues of Parkinson’s. For instance, I saw two really cool therapies for treating gait issues so people can learn to walk normally again. The Lokomat, at NeuroMotion Physical Therapy, reminds me of Iron Man. Patients slip on these huge robotic legs strapped to a treadmill. Through forced and repeated motion, new neuropathways are created which retrains your brain’s communication to your legs and feet.

The second treatment is called PoNS, which is short for Portable Neuro-modulation Stimulator. This lightweight portable device slips around your neck rather snug and hanging off one end is a rectangle pad which goes into your mouth. It stimulates your tongue. Sonya Brody is a neuroscientist and the Vice President of services at the Surrey Neuroplasticity Clinic, and she told me we all have 12 cranial nerves that come off the back of our brain and two of them connect to the front, one-third of your tongue.

One of the ongoing issues with treating Parkinson’s is the measurement tools for the disease progression and executive function are too subjective. Dr. D’Arcy created The NeuroCatch™ to take the guesswork out of measuring what is going on inside your head. It’s a six-minute test that measures auditory sensation, basic attention, and cognitive processing. Not only helpful with measuring brain function in people with Parkinson’s, but D’Arcy is working with hockey clubs to conduct the 6-minute test during games to determine if a player has a concussion or not.

Another machine affectionately referred to as the “barf box,” measures balance. The NeuroCom® SMART Balance Master® measures how well your eyes, inner ear and muscles and joints are working together to maintain balance. The client stands in the center of a metal plate surrounded by three colourful walls. Through a series of short tests the plate moves, the walls tilt, and eyes are sometimes open and sometimes closed.

During my tour, I tested both my brain function and my balance. My scores on both systems were less than impressive, which is no surprise. But, what is a surprise is that these treatments and tools exist and I was oblivious to them until now. It makes me wonder what else is out there and available to the Parkinson’s community.

The different tests and treatments cost anywhere from $150 for one test on the NeuroCom® SMART Balance Master® or reportedly between $14,000 to $16, 000 for 14 weeks of treatments with the PoNS device.

Please comment by leaving us a voice message here: https://www.speakpipe.com/WhenLifeGivesYouParkinsons.

Follow me, Larry Gifford

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

Thank you to:

The Health & Technology District

Dr. Ryan D’Arcy, Neuroscientist and Co-Founder of the Health and Technology District

Anne Shaw, Clinic Manager at Neuromotion Physiotherapy and Rehabilitation

Sonia Brodie, Neuroscientist and VP of Services at the Surrey Neuroplasticity Clinic

Matieu Gagnon, Kinesiologist at the Surrey Neuroplasticity Clinic

Theracycle

Rich Bloomenthal, Head of Sales at Theracyle

Joe and Sarah Possenti

Al Coen, Coen Communications; Cameraman, Video and Audio producer, Editor, big supporter of the pod, and all around great guy.

and to my wife and partner in Parkinson’s Rebecca Gifford.

Our presenting partner is Parkinson Canada.

Its toll-free hotline is 1-800-565-3000.

Follow Parkinson Canada on Twitter @ParkinsonCanada.

Find the new Parkinson Clinical Guideline at www.parkinsonclinicalguideline.ca.

Our content and promotional partners

Parkinson’s IQ + You — A free, series of Parkinson’s events from the Michael J. Fox Foundation

Spotlight YOPD — The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.

WPC2022 — Save the date for the sixth World Parkinson Congress, June 7 to 10, 2022 in Barcelona, Spain. The only inclusive scientific conference opens its doors to people with Parkinson’s and families.

No clips