Voices of VYVGART
Voices of VYVGART
Playlist by Voices of VYVGARTAn estimated 30 million Americans are living with a rare disease. If you’re one of them, you aren’t alone. Join Andra Stratton, a leading advocate and strategist in the rare disease community, as she …Follow the podcast:
7 clip(s) in playlist
Stories That Bring Us Together
Every patient's journey is unique—but some experiences are universal. The moment something feels off. The search for answers. Working with your doctor to find the right treatment. In this episode, four patients—Fred, Karon, Pam, and Mary Beth—come together to share their stories. From diagnosis to …
36:45
Monica Seles: A Different Kind of Match
Monica Seles has never stopped moving. She came to the United States as a young woman with a singular focus—tennis—and went on to become one of the greatest players the sport has ever seen. But reinvention has always been part of her story. After retiring from professional tennis, she channeled tha…
26:32
Karon: A New Recipe for Connection
Karon learned early that some of life's sweetest moments are shared around the table. Her grandmother taught her to bake, and between measuring ingredients and kneading dough, Karon learned about patience, perseverance, and caring for others. When Karon began experiencing symptoms, those same value…
25:12
Mary Beth: A Journey to Remember
For Mary Beth, life was an adventure worth chasing. Her love for travel inspired a goal to visit all 50 states. So, when she started experiencing symptoms, she was determined to find out what was causing them. In this episode, Mary Beth shares her diagnosis, treatment journey, and what she’s chasin…
25:52
Fred: A Community Leader Who Loves to BBQ
If something needed doing, Fred was the one who raised his hand for his community and for his family. He was often behind the BBQ sharing his passion for grilling with family and friends. So, when he started experiencing symptoms, he wanted to understand what was going on. In this episode, Fred sha…
25:04
Pam: Her Favorite Place
Pam has always done things her way–raising her son as a single mother, staying independent, showing up for the people she loves. So when she started experiencing concerning symptoms, the losses were deeply personal. In this episode, Pam shares her journey with rare disease and reflects on the role …
23:43
Introducing: Voices of VYVGART
01:32