Living with antisynthetase syndrome, a subtype of myositis, means Waiyee’s care doesn’t fit neatly into one doctor’s office. She’s learned how to ask questions, keep multiple specialists connected, and advocate for what she needs. Along the way, she found an unexpected outlet in art and an online community that transformed her own search for support into a way to help others feel seen.

<p>Living with antisynthetase syndrome, a subtype of myositis, means Waiyee&rsquo;s care doesn&rsquo;t fit neatly into one doctor&rsquo;s office. She&rsquo;s learned how to ask questions, keep multiple specialists connected, and advocate for what she needs. Along the way, she found an unexpected outlet in art and an online community that transformed her own search for support into a way to help others feel seen.</p>

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

<p>For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.</p>

Untold Stories: Life with a Severe Autoimmune Condition

Waiyee: The Power of Connecting Your Myositis Care Team

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/847123c0-b21c-4110-a371-b4ea01444d79/transcript