Act One

Act Two

Act Three

In 1880, a French physician described a patient having up to 200 sleep attacks a day, some triggered by nothing more than a good hand of cards or the sight of his own wine barrels. That case, and an earlier 1877 description from German psychiatrist Carl Westphal, gave the condition its name and its first clinical picture. Dr Travis Brown reads from both original case reports before turning to two guests for where narcolepsy stands today.

Di Spillaine, an Australian narcolepsy advocate and lived experience educator, describes going almost 40 years undiagnosed, mistaking her symptoms (childhood hallucinations, cataplexy triggered by laughter, sleep paralysis) for ordinary tiredness until a multiple sleep latency test finally confirmed narcolepsy. Professor Robert Adams, a respiratory and sleep physician at Flinders Medical Centre and medical director of the Adelaide Institute for Sleep Health, explains the underlying orexin deficiency behind narcolepsy type 1, how it differs from everyday tiredness and other sleep disorders, and the diagnostic pathway, including the Epworth Sleepiness Scale and multiple sleep latency testing.

What to listen for: the questions Professor Adams suggests a GP ask beyond “are you tired”, and why narcolepsy sits, in his words, at the end of the queue of likely causes but should still be considered in young patients with long-standing, profound sleepiness.

This is the story of narcolepsy.

Useful Link:

Epworth sleepiness scale: https://www.cdc.gov/niosh/work-hour-training-for-nurses/02/epworth.pdf

Our Special Guests:

Di Spillaine is an Australian narcolepsy advocate, lived experience educator and creator of the podcast Waking Up Tired: Narcolepsy Symptoms Explained

Professor Robert Adams is a respiratory and sleep physician at Flinders Medical Centre and medical director of the Adelaide Institute for Sleep Health at Flinders University

Listen:

This Medical Life podcast is available on all podcasting services, Apple Podcasts, YouTube, and Spotify. Members of the RACGP are able to log the hours as CPD (Education) that they listen to the episodes under self record via Quick log. We invite you to help support us on our donation page.

In 1880, a French physician described a patient having up to 200 sleep attacks a day, some triggered by nothing more than a good hand of cards or the sight of his own wine barrels. That case, and an earlier 1877 description from German psychiatrist Carl Westphal, gave the condition its name and its first clinical picture. Dr Travis Brown reads from both original case reports before turning to two guests for where narcolepsy stands today.
Di Spillaine, an Australian narcolepsy advocate and lived experience educator, describes going almost 40 years undiagnosed, mistaking her symptoms (childhood hallucinations, cataplexy triggered by laughter, sleep paralysis) for ordinary tiredness until a multiple sleep latency test finally confirmed narcolepsy. Professor Robert Adams, a respiratory and sleep physician at Flinders Medical Centre and medical director of the Adelaide Institute for Sleep Health, explains the underlying orexin deficiency behind narcolepsy type 1, how it differs from everyday tiredness and other sleep disorders, and the diagnostic pathway, including the Epworth Sleepiness Scale and multiple sleep latency testing.
What to listen for:&nbsp;the questions Professor Adams suggests a GP ask beyond &ldquo;are you tired&rdquo;, and why narcolepsy sits, in his words, at the end of the queue of likely causes but should still be considered in young patients with long-standing, profound sleepiness.
This is the story of narcolepsy.
Useful Link:
Epworth sleepiness scale:&nbsp;<a href="https://www.cdc.gov/niosh/work-hour-training-for-nurses/02/epworth.pdf">https://www.cdc.gov/niosh/work-hour-training-for-nurses/02/epworth.pdf</a>
Our Special Guests:
Di Spillaine is an Australian narcolepsy advocate, lived experience educator and creator of the podcast&nbsp;<a href="https://podcasts.apple.com/au/podcast/waking-up-tired-narcolepsy-symptoms-explained/id1839149512">Waking Up Tired: Narcolepsy Symptoms Explained</a>
Professor Robert Adams is a respiratory and sleep physician at Flinders Medical Centre and medical director of the&nbsp;<a href="https://www.flinders.edu.au/fhmri/research/sleep-health">Adelaide Institute for Sleep Health at Flinders University</a>
Listen:
This Medical Life podcast is available on all podcasting services,&nbsp;<a href="https://podcasts.apple.com/us/podcast/this-medical-life/id1601195297">Apple Podcasts</a>,&nbsp;<a href="https://www.youtube.com/channel/UCOxm-I73JjiBowEMp6JWxSA">YouTube</a>, and&nbsp;<a href="https://open.spotify.com/show/6K8MFiahgDLbYg5uelXS2w">Spotify</a>. Members of the RACGP are able to log the hours as&nbsp;<a href="https://thismedicallife.com.au/cpd-hours/" data-type="page" data-id="437">CPD (Education)</a>&nbsp;that they listen to the episodes under self record via Quick log.&nbsp;<a href="https://thismedicallife.com.au/buy/donation">We invite you to help support us on our donation page</a>.

Welcome to the This Medical Life podcast. Our mission is to share stories about the triumphs and tragedies of diseases and illnesses from ancient times up until what we know today. It is about those scientific and medical minds who came before us and how, every single day, we stand on the shoulders of giants. This is a podcast about the stories of medicine. Hosted by Dr. Travis Brown and Steve Davis, our target audience is General Practitioners, medical students, and other health professionals. We hope to educate, inspire and celebrate those who choose to care for others in their profession. From experience, we know that our audience extends beyond these fields and would like to welcome anyone to listen. The stories of those who came before us are nothing short of remarkable and we hope you enjoy them as much as we do. Production by Steve Davis

Welcome to the This Medical Life podcast. Our mission is to share stories about the triumphs and tragedies of diseases and illnesses from ancient times up until what we know today. It is about those scientific and medical minds who came before us and how, every single day, we stand on the shoulders of giants. This is a podcast about the stories of medicine. Hosted by Dr. Travis Brown and Steve Davis, our target audience is General Practitioners, medical students, and other health professionals. We hope to educate, inspire and celebrate those who choose to care for others in their profession. From experience, we know that our audience extends beyond these fields and would like to welcome anyone to listen. The stories of those who came before us are nothing short of remarkable and we hope you enjoy them as much as we do. Production by Steve Davis

This Medical Life

Welcome to the This Medical Life podcast. Our mission is to share stories about the triumphs and tragedies of diseases and illnesses from ancient times up until what we know today. It is about those scientific and medical minds who came before us and how, every single day, we stand on the shoulders of giants. This is a podcast about the stories of medicine.


Hosted by Dr. Travis Brown and Steve Davis, our target audience is General Practitioners, medical students, and other health professionals. We hope to educate, inspire and celebrate those who choose to care for others in their profession. From experience, we know that our audience extends beyond these fields and would like to welcome anyone to listen. The stories of those who came before us are nothing short of remarkable and we hope you enjoy them as much as we do.

Production by Tim Whiffen

Design by Tom Buzz

A patient with 200 sleep attacks a day helped define narcolepsy in 1880. Di Spillaine and Professor Robert Adams on symptoms, diagnosis and treatment today.