This is the episode that I realised I needed to pay for zoom so we didn't get cut off, hence why we have a part 1 and a part 2. Forgive me Charlene.

What do you do when you are a new Mum and you just know something isn't right? 

How do you get the doctors to listen? Maybe you are 'just tired' grrrrrrrrrrr!

This is Charlene. No fuss, no drama just getting on with it.

This is her and her daughter Goldie. Navigating CDKL5, hemispherectomy, infantile spasms/west syndrome, Lennox Gastaut syndrome, drug resistant epilepsy. 

If you have never heard of this diagnosis that is ok. Charlene will explain and wants to. This is as much about Charlene and Goldie's story as it is about awareness. 

This is part one. 

*This episode was recorded via Zoom & is unedited.
#ads placed by @arn_media_au and out of control of the producer & presenter

This is the episode that I realised I needed to pay for zoom so we didn't get cut off, hence why we have a part 1 and a part 2. Forgive me Charlene.
What do you do when you are a new Mum and you just know something isn't right?&nbsp;
How do you get the doctors to listen? Maybe you are 'just tired' grrrrrrrrrrr!
This is Charlene. No fuss, no drama just getting on with it.
This is her and her daughter Goldie. Navigating CDKL5, hemispherectomy, infantile spasms/west syndrome, Lennox Gastaut syndrome, drug resistant epilepsy.&nbsp;
If you have never heard of this diagnosis that is ok. Charlene will explain and wants to. This is as much about Charlene and Goldie's story as it is about awareness.&nbsp;
This is part one.&nbsp;
*This episode was recorded via Zoom &amp; is unedited. #ads placed by @arn_media_au and out of control of the producer &amp; presenter

Women of Influence, with Kate Meade. We are on a mission to find the most incredible women. Some we will know, others are going about their daily lives. Everyone has a story. She is a CEO, She is a volunteer, She is a TV host, She is a doctor, an educator, a scientist, a leader. She is just getting on with it. What can we learn from her, what’s her message? Join me to celebrate incredible, inspiring women and shine a great big beacon of light on their stories. Let’s learn from the women that are paving the way for us. I love to learn and my favorite way is through storytelling. I am curious - absolutely fascinated - with people's stories. I can’t wait to get to KNOW the person in front of me and HOW they got to be where they are today. Where did they grow up, what gets them excited, why do they do what they do and, when it gets tough… why do they do what they do? This is the Women of Influence Podcast.
Hosted by Kate Meade Produced by Sophie Jackson

The Women of Influence Podcast with Kate Meade

Women of Influence, with Kate Meade. We are on a mission to find the most incredible women. Some we will know, others are going about their daily lives. Everyone has a story. She is a CEO, She is a volunteer, She is a TV host, She is a doctor, an educator, a scientist, a leader. She is just getting on with it. What can we learn from her, what’s her message? Join me to celebrate incredible, inspiring women and shine a great big beacon of light on their stories. Let’s learn from the women that are paving the way for us. I love to learn and my favorite way is through storytelling. I am curious - absolutely fascinated - with people's stories. I can’t wait to get to KNOW the person in front of me and HOW they got to be where they are today. Where did they grow up, what gets them excited, why do they do what they do and, when it gets tough… why do they do what they do? This is the Women of Influence Podcast.
Hosted by Kate Meade Produced by Sophie Jackson

The Women of Influence Podcast

7/100 TAKE 2 PART 1: Charlene Elsum. You can't order your kid

https://api.omny.fm/orgs/fa326977-3de5-4283-9b8b-af3500c58607/clips/fa0d978e-13d3-404b-b2c0-b403005149b6/transcript