Recently, the Ministry of Health released a draft policy on rare disease. The policy mentions providing a one-time financial assistance of 15 lakhs to patients with rare disease. It is seen as a major let down from the previous draft in 2017 which mentioned a 100 crore corpus with both state and central governments providing assistance to the corpus for an estimate 70 million people living with rare diseases. To discuss this and more, ahead of the rare disease day, Suno India Editor Padma Priya spoke with Host of our rare disease podcast 1 in 20000.

<div>Recently, the Ministry of Health released a draft policy on rare disease. The policy mentions providing a one-time financial assistance of 15 lakhs to patients with rare disease. It is seen as a major let down from the previous draft in 2017 which mentioned a 100 crore corpus with both state and central governments providing assistance to the corpus for an estimate 70 million people living with rare diseases. To discuss this and more, ahead of the rare disease day, Suno India Editor Padma Priya spoke with Host of our rare disease podcast 1 in 20000.</div>

The Suno India Show’ is a news show by Suno India combining slow journalism with under-represented and under-reported stories. Covering the diverse range of topics like politics, technology, education and society, the host brings in informative interviews and engaging discussions with experts. The show not only shines a spotlight on stories that matter but keeps the listeners up to date with the latest national news.

<p>The Suno India Show&rsquo; is a news show by Suno India combining slow journalism with under-represented and under-reported stories. Covering the diverse range of topics like politics, technology, education and society, the host brings in informative interviews and engaging discussions with experts. The show not only shines a spotlight on stories that matter but keeps the listeners up to date with the latest national news.</p>

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