Thalassaemic child dies in Giridih, Jharkhand

Thalassaemia and Sickle cell disease in India

Death of Reshu Mali from sickle cell disease

Children not able to balance haemoglobin level

Ideal treatment for thalassaemia patients

Another thalassaemic child, Ghiasuddin dies

Day care center model for thalassemia children

Sickle Cell Clinic in Ambikapur

While in many parts of the world, a child living with blood disorders such as thalassemia or sickle cell anemia can practically live a normal life, in most of India they may not survive up to adulthood. This is because of a lack of regular blood supply and monitored treatment for these children. 

In this episode Suno India’s Menaka Rao speaks to people who suffer from blood disorders such as thalassaemia and sickle cell disease in rural Jharkhand and Chhattisgarh, and doctors and experts who work with these children. 

References

Guidelines for Prevention and Control of Hemoglobinopathies in India
Global epidemiology of haemoglobin disorders and derived service indicators - PMC
Life expectancy and risk factors for early death in patients with severe thalassemia syndromes in South India - PMC

While in many parts of the world, a child living with blood disorders such as thalassemia or sickle cell anemia can practically live a normal life, in most of India they may not survive up to adulthood. This is because of a lack of regular blood supply and monitored treatment for these children. 
In this episode Suno India’s Menaka Rao speaks to people who suffer from blood disorders such as thalassaemia and sickle cell disease in rural Jharkhand and Chhattisgarh, and doctors and experts who work with these children. 
References
<a href="https://nhm.gov.in/images/pdf/in-focus/NHM_Guidelines_on_Hemoglobinopathies_in_India.pdf">Guidelines for Prevention and Control of Hemoglobinopathies in India</a> <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2647473/">Global epidemiology of haemoglobin disorders and derived service indicators - PMC</a> <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7160270/">Life expectancy and risk factors for early death in patients with severe thalassemia syndromes in South India - PMC</a>

The Suno India Show’ is a news show by Suno India combining slow journalism with under-represented and under-reported stories. Covering the diverse range of topics like politics, technology, education and society, the host brings in informative interviews and engaging discussions with experts. The show not only shines a spotlight on stories that matter but keeps the listeners up to date with the latest national news.

The Suno India Show&rsquo; is a news show by Suno India combining slow journalism with under-represented and under-reported stories. Covering the diverse range of topics like politics, technology, education and society, the host brings in informative interviews and engaging discussions with experts. The show not only shines a spotlight on stories that matter but keeps the listeners up to date with the latest national news.

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