While in many parts of the world, a child living with blood disorders such as thalassemia or sickle cell anemia can practically live a normal life, in most of India they may not survive up to adulthood. This is because of a lack of regular blood supply and monitored treatment for these children. 

In this episode Suno India’s Menaka Rao speaks to people who suffer from blood disorders such as thalassaemia and sickle cell disease in rural Jharkhand and Chhattisgarh, and doctors and experts who work with these children. 

References

Guidelines for Prevention and Control of Hemoglobinopathies in India
Global epidemiology of haemoglobin disorders and derived service indicators - PMC
Life expectancy and risk factors for early death in patients with severe thalassemia syndromes in South India - PMC