A young kiwi patient will be one of the first to be treated with a radical new treatment for a rare disease. 

The drug will be used to target muscle cells and silence a gene which causes Facioscapulohumeral Muscular Dystrophy.

Neurologist and trial lead Richard Roxburgh says the method is promising.



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A young kiwi patient will be one of the first to be treated with a radical new treatment for a rare disease. 
The drug will be used to target muscle cells and silence a gene which causes Facioscapulohumeral Muscular Dystrophy.
Neurologist and trial lead Richard Roxburgh says the method is promising.
 
LISTEN ABOVE

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The sharpest voice and mind in the business, Mike drives strong opinion, delivers the best talent, and always leaves you wanting more.

The Mike Hosking Breakfast always cuts through and delivers the best daily on Newstalk ZB.

Open your mind to the world with New Zealand’s number one breakfast radio show. Without question, as New Zealand’s number one talk host, Mike Hosking sets the day’s agenda. The sharpest voice and mind in the business, Mike drives strong opinion, delivers the best talent, and always leaves you wanting more. The Mike Hosking Breakfast always cuts through and delivers the best daily on Newstalk ZB.

Open your mind to the world with New Zealand’s number one breakfast radio show.

Without question, as New Zealand’s number one talk host, Mike Hosking sets the day’s agenda.

The sharpest voice and mind in the business, Mike drives strong opinion,...

The Mike Hosking Breakfast

Richard Roxburgh: Young kiwi to be first to trial new muscular dystrophy drug

The fact the Government is going ahead with Labour's Fair Digital News Bargaining Bill, albeit with amendments, is not the story.

The fact ACT has played the “Agree to Disagree" card is not really the story.

The real story is the question of, does it solve the problem?

What exactly is the problem?

The problem is the media, or at least parts of it, are in a financial hole and have decided that if only we get Facebook and Instagram to the table and get them to give us some money, we can bring back Fair Go or hire back a journalist or two.

If only it were that easy.

There is universal agreement in media that the social media giants are taking money out of the market and there is general agreement that that is pretty much unfair, given they monetise someone else's work.

The fact the media outlets use Facebook etc to pump their service and outlets and digital views doesn’t get quite as widely covered.

But let's not interrupt the David and Goliath narrative flow and kill the buzz.

Should Facebook cut a deal? Probably.

Have they elsewhere? Sort of, but not really.

In Canada it hasn’t worked well. The Government has ended up handing out money to news organisations after services got turned off.

Australia is in the middle of striking another deal which may or may not work. The Government are under pressure from places like Channel 9 and 7, who are laying off people by the hundred.

It all boils down to the idea of whether a social media giant needs New Zealand. Do they care enough to pay?

This Government can pass a law and introduce arbitration until they are blue in the face.

We are trying to make them pay the same way social media giants aren't supposed to allow extremists and dangerous material online, or lure impressionable teenagers to spend their life scrolling. Have those laws worked?

How many American and European investigations and committee question and answer sessions do you want to see where politicians act tough for the camera? Mark Zuckerberg might stand up and apologise to grieving families, but has it worked?

Yes, we have a problem. But do we have a solution?

It's probably worth the exercise, but don’t be remotely surprised if in the real world it achieves next to nothing.

The fact the Government is going ahead with Labour's Fair Digital News Bargaining Bill, albeit with amendments, is not the story. 
The fact ACT has played the “Agree to Disagree" card is not really the story. 
The real story is the question of, does it solve the problem? 
What exactly is the problem? 
The problem is the media, or at least parts of it, are in a financial hole and have decided that if only we get Facebook and Instagram to the table and get them to give us some money, we can bring back Fair Go or hire back a journalist or two. 
If only it were that easy. 
There is universal agreement in media that the social media giants are taking money out of the market and there is general agreement that that is pretty much unfair, given they monetise someone else's work. 
The fact the media outlets use Facebook etc to pump their service and outlets and digital views doesn’t get quite as widely covered. 
But let's not interrupt the David and Goliath narrative flow and kill the buzz. 
Should Facebook cut a deal? Probably. 
Have they elsewhere? Sort of, but not really. 
In Canada it hasn’t worked well. The Government has ended up handing out money to news organisations after services got turned off. 
Australia is in the middle of striking another deal which may or may not work. The Government are under pressure from places like Channel 9 and 7, who are laying off people by the hundred. 
It all boils down to the idea of whether a social media giant needs New Zealand. Do they care enough to pay? 
This Government can pass a law and introduce arbitration until they are blue in the face. 
We are trying to make them pay the same way social media giants aren't supposed to allow extremists and dangerous material online, or lure impressionable teenagers to spend their life scrolling. Have those laws worked? 
How many American and European investigations and committee question and answer sessions do you want to see where politicians act tough for the camera? Mark Zuckerberg might stand up and apologise to grieving families, but has it worked? 
Yes, we have a problem. But do we have a solution? 
It's probably worth the exercise, but don’t be remotely surprised if in the real world it achieves next to nothing.

Mike's Minute: The media bill won't work

Hurricane Beryl is making its presence known in the Caribbean.

CNN reports at least three people were killed when it tipped through the Windward Islands earlier this week, and it’s currently hurtling across open waters nearing Jamaica and the Cayman Islands.

Newstalk ZB US Correspondent Richard Arnold told Mike Hosking that it's the earliest category five hurricane to rise up in the Caribbean.

He says it has top wind speeds of 265 kilometres an hour and could threaten Texas in the coming days. 

A hurricane warning is in effect for Jamaica and a hurricane watch for the Cayman Islands.

LISTEN ABOVE

Hurricane Beryl is making its presence known in the Caribbean. 
CNN reports at least three people were killed when it tipped through the Windward Islands earlier this week, and it’s currently hurtling across open waters nearing Jamaica and the Cayman Islands. 
Newstalk ZB US Correspondent Richard Arnold told Mike Hosking that it's the earliest category five hurricane to rise up in the Caribbean. 
He says it has top wind speeds of 265 kilometres an hour and could threaten Texas in the coming days.  
A hurricane warning is in effect for Jamaica and a hurricane watch for the Cayman Islands. 
LISTEN ABOVE

Richard Arnold: US Correspondent on Hurricane Beryl rising in the Caribbean

The Government crackdown on truancy could be causing a drop in families taking holidays during term time. 

Flight Centre data shows a 30% reduction in bookings during the school term compared to last year. 

At the same time, bookings during July's school holidays are up 10%.

General Manager Heidi Walker told Mike Hosking that the old excuse of it being more expensive to travel in the holidays is unfortunately true.

She said that prices rise due to supply and demand, as more people are wanting to travel to those family destinations during the school holidays.

However, Walker said, booking as far in advance as you can is your best bet to get a good deal.

LISTEN ABOVE

The Government crackdown on truancy could be causing a drop in families taking holidays during term time.  
Flight Centre data shows a 30% reduction in bookings during the school term compared to last year.  
At the same time, bookings during July's school holidays are up 10%. 
General Manager Heidi Walker told Mike Hosking that the old excuse of it being more expensive to travel in the holidays is unfortunately true. 
She said that prices rise due to supply and demand, as more people are wanting to travel to those family destinations during the school holidays. 
However, Walker said, booking as far in advance as you can is your best bet to get a good deal. 
LISTEN ABOVE

Richard Roxburgh: Young kiwi to be first to trial new muscular dystrophy drug

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