Robyn Moore, an Alzheimer's champion and Australia's most in-demand speaker, joins Dana’s podcast in a thoughtful and lively conversation today, giving insights and perspectives of her own caregiving experiences, and also discussing the appropriate balance of humor and compassion in caring for those living with dementia and their families and caregivers. Robyn emphasizes “savoring the precious seconds of life,” and listeners will instantly appreciate Robyn’s refreshing sense of humor, authentic Australian style, motivational wisdom, and her limitless amount of caring and compassion. Discover Robyn’s replacement term of “caregiver” to “promise keeper” and be enlightened by the power of her words.
Do you have a question for Dana? Email her directly at thememorywhisperer@gmail.com or visit www.thememorywhisperer.com for additional resources.
The Memory Whisperer podcast is written and produced by Dana Territo, with help from audio editor Blake Langlinais. Additional production support from Ryan Martz and Julia Weaver. Special Thanks to Michael Andrews, a person with dementia, and Innovations in Dementia, CIC for our flute music. Graphics by Xdesign.
See omnystudio.com/listener for privacy information.
It started with Peggy, someone with Alzheimer's who never knew my name and who I companion at her nursing home residence for twenty two years. Her influence in my life and the values I received from growing up with grandparents living in our home are the guiding forces in my love and advocacy for the Alzheimer's population. I am a newspaper columnist for The Advocate in Baton Rouge, Louisiana, and the author of What My Grandchildren Taught Me About Alzheimer's Disease And now I'm launching a podcast. Hi, you're listening to Dana Tita the Memory Whisper. Join me in these podcasts as we engage in thoughtful conversations about Alzheimer's disease and other dementias. HI, be ready to be wowed and be ready to learn the power of the word as I talk with Robin Moore, Australia's most indoman female speaker, on my podcast today. For over forty years, she has been working in education, advertising and the communication entertainment industry. She has unique skills with the power of the word and her entertaining, inspiring and thought provoking presentations totally captivate her audiences at national and international conferences. Robin sells people back to themselves so they can recognize old habits and behaviors and take responsibility for choices which create the outcomes they want in their lives, whether personally or professionally. Audiences relate instantly to Robin's refreshing sense of humor, authentic Australian style, and her values around caring and compassion. She has been a national patron, a volunteer and a Wish grantor for Make a Wish Australia for twenty five years and was a feature speaker at Australia's Alzheimer's Walk to Remember in twenty eleven. At an Alzheimer's conference attendee, one person spoke about Robin. I was very moved by Robin's sharing about her mother, who suffered from Alzheimer's disease. She shared with us what her mother said to her. I knew i'd love you, I just didn't know who you were. The words of Robin's mother are really profound if you think about it. The memories and some of the cognitive functions may be lost, but the love remains and is attached to the object of that love. Robin's unique skills as an educator and her powerful stories as a caregiver for her mum, her mother in law and her dear friend resonate with caregivers, support staff and stayholders alike in the aging care service sector. I'm so honored to welcome today Robin Moore, an educator, voiceover artist and entertainer who will inspire and make you smile with the power of her words. Welcome Robin. So I'm so happy and thankful to have you here, Robin on this podcast, and all the way from Australia. We're quite quite some hours apart right now. So I guess to start off, I read everything you do. You're an entertainer, you're a voiceover artist, you're an educator, and you make many presentations about aging and aging care. What's the most important advice you give to the aging population.
Oh, Dana, it's it's about seizing life in all of its dynamics, to be right here now, in every second. And I don't know whether your audio can pick up these my fingers, you know. And every time I'm in front of an audience to say you know this, this is it, this is your life. These are the precious seconds of your life come back? Oh I love that one and it's gone. And you know, with dementia and Alzheimer's and when we're caring for loved ones, it's such a reminder and it's a gift. I saw my MAM's dementia as as a gift because it woke me up to every second because we were trying to grab hold of them and they had more intensity. So that's the message I want to give to everybody is to be in those seconds. And often I'll run into people after the conference and they'll just click their fingers in my face and you know that they got that distinction that this is it, this is now.
Tell me you about your personal journey as a career. I know some say caregiver with a love one with dementia.
Yeah, well I had been a kind of care for my mum in law for twenty years. She had just a slight disability, but when her husband passed away, she actually had this shift where she wanted her son's back and it was quite a challenging time from being the most amazing mother in law to being one who became somebody who saw us as an enemy and so she lived with us for almost twenty years, so that was one kind of a caring responsibility where I virtually had to give my husband to his mum and manage the dynamics of that. So that was one type of caregiving, you know, and being able to surrender and understand and love and grow. And at the end of her life, I was very complete and was able to say thank you for being the best mother in law in the whole world, because she taught me backwards, as tough as it was, she taught me to let go of my sons and not have them as my babies. You know how You'll get people say this is my baby, this is my baby, and I'm standing in front of a six foot four man, and I think, my goodness, it must have been hard to give birth to this baby. You know, would let them go as men. So from the age of about sixteen, we called our two sons our men, not our boys, not our babies. And that was the gift she gave me. So when my mom was diagnosed with dementia.
That was first. Was that your first experience with your mom or who was first?
Yeah, my mom was the first, yeah, dementia person and she didn't sort of show up with any dementia. She was very clever at masking her symptoms and would have little pat questions, you know, how's the family, how are you going? Where are you living now? And we just didn't pick up on it until one day she threw a barbecue and some people were there and they came over and said, have you had your mom tested for Alzheimer's? And we said, wow, you know, we were most offended. And they said, well, because the sausages have little white dots on them, which indicated she'd been freezing them and defrosting them and freezing them and defrosting them. So she had issues with food management. And we didn't realize because we had to take Mum out all the time to give her treats.
And she lived alone.
She yes, And so that was the first indicator. And my sister and I were there seven years between us, we've had different lives, but in that moment, the gift was that we were going to care for Mum together as sisters. So my sister had her husband build a lovely cottage on her property. She became the primary care I was the secondary career, So whenever I was home from my travels, I'd pick mum up and take her to our place so that my sister had respite, and the journey was absolutely wonderful. You know, my husband and I were watching a sixty minutes program where there was a man who was caring for his wife who had dementia, and the reporter said, Oh, you're so caring, you're so loving, You're so thoughtful, and he said, no, I'm not. I'm just a promise keeper. Oh five words, I'm just a promise keeper. And my husband and I cried because we've been married fifty years, but we, you know, cherish that we are wife and husband. We don't say partner and all of that. We are wife and husband. And then we became a deeper connection with this promise keeper. We're promise keepers. So my sister and I became promise keepers for our mum. And I share that when I'm talking to groups of people in Australia, I'm often asked to speak to people who've just been diagnosed with dementia and their careers and I always ask for them to be in the same room together. And my clients are a little bit wary about that. Don't you want them to be separate. I said no, because I've only just been diagnosed. So this is the time where you can embed the most important aspects of this whole journey. So I say to the people with dementia, look at the carer next to you. You're loved one, the person who brought you here. They love you so much. They are a promise keeper for you, and they're going to be there too, thick and thin. And this disease is going to diminish your memory. It's not going to get better, it's going to get worse. That's the nature of it. So could you thank your loved one now? And it's so.
The story, my goodness, And in the room you do these people turn to their daughters and sons and they're hugging, and that embeds them for the care and I say to them, you know, will you please tell your relative, your loved one, that you are going to be the promise keeper for them.
And it's it's it's really powerful because the road is rocky, it's hard, it's really hard. So you know, at the beginning, my sister and I did all these joyous things with Mum. We celebrated her bliss, we took her out we went on cruisers, we did all sorts of things to actually have her just enjoy and savor every second. But then she went into a paranoia phase, which was very where she was saying, you know, what have you ever done for me? And I'm grateful and I've done a lot of transformational work where I don't take those sorts of things personally. I was able to watch that comment and for anybody watching who's a care this is your defense, this is your armor. Watch the comment come out of your loved one's mouth like a spear. But don't have the spear come into you. Have the spear go bypassed, passing you into the wall behind you, so that you can go, oh, that was an interesting one. And that's not my mom or my dad or my auntie. That's the disease speaking.
What a great limite to refer to.
Yes, so that you can disassociate yourself from the hurt. Now, my sister couldn't do that, so she spun into quite a lot of despair and her wellness was affected as a carer, and she became very sick, and sadly, my sister passed away after Mum died, So thank you, you know, but that's really an adamant that terras get that distinction that this is not personal. So that's, you know, that's something to hold on to from this talk to just every time they say something like that it's the disease speaking, it's not then because they will come through that paranoia mostly and then another type of them will be revealed. So I mean Mum lost her tact button during that period. So this kind beautiful woman who had fifteen hairdressing salons, two boarding houses, four restaurants, did houses up and sold them, was Australia's first female real estate agency manager in Australia.
Wow.
We would look at people in a restaurant and say look at the backside on that you know that nose and poke your eye out, you know. But we had so many, so many tools that I want to pass on in this interview if I can. One rule that my sister and I had was to grieve incrementally. So every time Mum lost something or lost a friend or couldn't remember this or how to do that, the rule was we had to ring each other immediately and then say, oh, Mom couldn't remember Elsie today, and then we'd cry. So that by the time we came to mum's funeral, all the grieving had been done and there was just joy. There was just joy and celebration, you know. So that's another just tip from experience. Celebrate the bliss all of the things they love.
My mom.
I took her to four conferences once and we were near a hotel where they did jet skiing, and my mum had always wanted to jet ski. Now she was eighty with dementia, and I took her down to the jet ski man and I said, look, my mom's eighty, can you just take her on a little gentle put put put put ride. And he said, oh, okay, I'll let her tell me how fast we go, and got on the back, and she was a road hog. She just obviously said to him, you gun it, boy, and they just took off right down Service Paradise. I lost sight of them. I suddenly thought, oh, my goodness, instead of the good daughter, I'm going to be the bad one who kills her mother, and she'll be dead on the back of the jet ski rigor mortis will have set in and it'll be all my fault. But when she came back, they did doies in the water and she.
Was going, oh wait, and.
As she alighted from the jet ski, there was this huge smile and I have the most beautiful photo. And she said that was the best thing I've ever done in my life. You know, because when you're a care it's not about just caring. Sometimes we can stifle our loved ones by caring too much. It's more about enablement, enabling them to access all of their passions, all of their desires. You know that lovely movie, and I'd recommended the documentary Alive Inside.
Is music.
The music will tap into memories, so enliven your loved ones. You know what was their favorite thing? Mom never forgot the jet ski. I had a little toy jet ski at the nursing home. Every time I picked it up and showed it to her, she would say, oh, I'll never forget that. That was wonderful. So the pluck didn't grow on the jet ski part of her brain.
I read a lot when you spoke at the twenty eleven Alzheimer's Association Conference Australia, and you said that there needs to be an appropriate balance of humor and compassion for those living with dementia, for their families and their caregivers, Can you explain a little bit about that balance.
Yes, you've got to have some support, some person who's the hole in the ground that you can whisper into. So my sister and I had that relationship with each other where we could just share and it's not laughing at somebody, it's bringing laughter into the moments. I mean, even that first time experience to stop us being anxious with mum going to restaurants and pointing out people's noses along and all of that, I practiced first time and would take Mum out driving every day towards the end of her life to the same place and we would laugh and I put on music that she loved in the car, we'd have an ice cream, we'd look at the yachts, we'd count the seagulls, we'd watch people load boats. Now, for Mom it was always it was first time, and for me, I didn't have that anxiety that what's she going to say next? And so there was win win for both of us. In my hectic life. I mean, as a speaker, I'm on about one hundred and sixty flights a year. To have those moments of respite, just being with my mom was absolutely beautiful.
You know you also said at that same conference to those with dementia, live with urgency before the emergency. What do you mean.
Well, I've been a volunteer and national patron of Make a Wish Australia for thirty years, so we grant wishes for children with critical illnesses. So life is right up in my face all the time. I'm living with life and death all the time. And one of our wish children taught me to live with urgency before the emergency, and I'd love to share a little bit of his story. His name is Daniel and he was thirteen lived in Melbourne. His wish was to meet a famous English cricketer, but the doctor said, Daniel, your brain tumor is growing so quickly you won't be able to fly and you're going to die soon, so you'll have to change your wish. So he changed it to a shopping spree. And his mom has given me permission to share Daniel's shopping list. I wish for a dishwasher for my mum because she works too hard. I wish for a puppy for my sisters so they have something to play with when I die. I wish for bracelets for my mom and my sisters with my name engraved on them, so that they don't forget me. And for my dad. I would like as with the words strength and courage engraved on it. I would just like a hum a rite. And on the morning of the shopping spree, he was so ill he could hardly move, and he said, I'm going anywhere because I don't know how long I've got to live. And they bought all of those things. Mum didn't get a dishwasher. She got a barbecue and she cooks on it almost every day. And two weeks later, I received an email from Maker Wish that just said Heaven was short of angels today. And I share Daniel's story in every talk I deliver, no matter who is in the audience doesn't know. I speak in every sector, so it could be engineers or doctors, or teachers or farmers, and everybody has the same reaction you're having. And I'm always happy when I tell the story because he knew what the emergency was, so he was living with urgency. Now he was loving, you know, for his mum. He gave her appreciation and respect and acknowledgment, you know, with the dishwasher, which became about you. He brought joy and love and fun to his sisters with the puppy. He captured memories with the bracelets, and he gave his dad's strength and courage because our dads, I think, come into the world with two words tattooed on their forehead, and that's provision and protection. And it's our dads who just crumble when their child has a critical illness, you know. So he gave his dad that back. And Daniel has inspired hundreds of thousands of people with that story. And you know, I have teenagers go home and tell their parents, you know, thank you for getting the job done, because a lady told me I was extraordinary today, you know. And everybody grows up thanks to Daniel. So that's that's the access, that's the doorway into living with urgency before the emergency. It's through Daniel's story.
What is one thing or a pearler wisdom you could give to our listeners as we close.
Yes, that first time that is so important. It means that if you practice first time over and over and over again, that it's always first time, you have access to abundance. That's the pathway into abundance. So if you practice first time, you'll be able to get an abundance of joy, an abundance of leadership, an abundance of friendship, and abundance of relationship, an abundance of pleasure because it's there all the time. I mean, I say to people, I don't care. If you had a meeting with somebody at nine o'clock and it was really fulfilling, guess what, you can have another one that's fulfilling at nine point thirty. Not oh no, here's another meeting, oh you know, oh, another phone, Oh, another thing I have to do. So it's that shift, And I'm really passionate about transformation, where you have a new point of view, you know, your Native Americans. There was a lovely story I heard here on the radio about a medicine man who used to put the young boys in a tp in a circle, and before they could emerge as young braves men, he would place a feather in the center of the circle, and one by one, each boy had to describe the feather from where they were sitting, and they would go right round the circle to describe the feather, and then they would move to the next place in the circle. And describe the feather again, and so on and so on, until everybody had sat in every position available in the circle. The feather did not become present, didn't manifest itself until every boy had sat in every different position. And that's the shift. I'm passionate about people through stories. You know, the more we share stories, the more you will have shifts in your perspective and see it from another point of view.
And how do you keep the upbeat personality and how do you keep your joy and positive attitude?
Well, I'm responsible for my purpose. I know why I'm here, and I don't want to spit or vomit on my purpose. It's a gift. I mean, I have a strong faith, so I know why I'm on the planet. And every day in the shower, I actually, you know, I say a little prayer and I actually put on my purpose like a coat. And I did an exercise once in a seminar where I was participating, and the exercise was to write down your purpose in ten words or fewer, and it just came to me. My purpose is in ten words, to be an irresistible invitation to fully participate in life. The heather ten words, and so I put that on in the shower.
You know.
Let me be my purpose, to be an irresistible invitation to fully participate in life. So every conversation I have, you know, and I'm if you put a Geiger Counter on my chest at the moment, it'd be going fear or the passion speaking to you. I'm looking at your beautiful face on the screen. I'm imagining all our lovely listeners to the podcast, you know. So this is like a conduit, this is a this is a window to the world here, you know, and I could drop it. I'm seventy two now I'm in the quickening of my own life. So I'm living with urgency before the emergency. I've just had two friends, you know, in a month die my age, and so I'm learning from Daniel to be that purpose right now, you know, so I can be the love. It could be one word. I have a little boy. I said, which empowering word are you going to be? As I finish my talk? And this little boy said, I have a word. And I said what's your word? Lucky? And he said life full? And I said, oh, lucky, I love your word. Did you just make that up? And yeah, I'm going to steal that word, and I'm going to give it to every audience I speak to, because that is the most beautiful word. And I looked it up on Google and it was last used in the thirteenth century. But we don't use it anymore. We use life less, we don't use life full. So when my mom passed away, we had some lovely, you know, sayings on her headstone. But when my sister passed away afterwards, she was buried in with Mum, so there was there were fewer spaces on the headstone and we have to have it redesigned. And so moms a headstone on hers. It just on the topic, just says Mary Elizabeth Wilkinson, life full and how precious, Kay, Marie Wilkinson Green.
Loved, Oh beauty. You know your focus can be one word right, can be loved, can be respect, can be care, can be joy, can be empathy, understanding, relationship freedom.
Well, my power word is gratitude for you and for being a part of this podcast, for being who you are and you're educator, entertainer, voiceover artists. But that education you've given today and the pearls of wisdom are just such a gift to the listeners, and I thank you for it. I know those on this journey with Alzheimer's disease and other dementias will certainly benefit from what you said and the advice you gave them. A record mandations, and thank you so much for sharing your mother's story in Daniel's story, because it sure can teach.
Us a lot.
Well, that's it for us today, Thank you for listening. The Memory Whisper is a production of iHeartRadio and the Senica Women Podcast Network. It's produced by me Dana Tiredo in honor of Peggy and all those affected by Alzheimer's disease. I offer a special thanks to my audio editor, Blake Longlonee, and to Michael Andrews, a person with dementia, who gave me permission to use his beautiful flute music for this podcast. For more information or to reach me directly, head on over to my website, The Memory Whisper dot com. And for those struggling with the diagnosis, remember my motto, the more you know, the better it'll go. Blessings