The Health AdvocatesThe Health Advocates

S7, Ep 21- Special Episode: The Power of Patient Stories

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Welcome to our special episode of The Health Advocates hosted by our 50-State Network and the Obesity Action Coalition (OAC). This episode features advocates Jody Quinn, Judy Nagy, Yolanda Clay, and Alecia Smith, who share their personal journeys — how they began sharing their stories, the invaluable support of community, the challenges they faced, and their successes along the way. You'll also hear their advice for others looking to make a difference.

Among the highlights in this episode:

01:17 - Judy recounts how being diagnosed with rheumatoid arthritis led her to advocacy and her extensive involvement with legislative support

02:12 - Jody describes her late diagnosis of psoriatic disease and her initial reluctance turned commitment to advocacy

03:14 - Alicia talks about her journey from seeking support for obesity to becoming a prominent advocate through the OAC

04:10 - Yolanda discusses her personal experiences with chronic obesity and how overcoming internal barriers propelled her into advocacy

05:22: Kendall prompts a discussion on how to get started in advocacy, with personal insights from each guest

07:00: Our guests discuss the importance of connecting with patient groups and finding communities that provide training and support for new advocates

08:56 - Alicia emphasizes the role of genuine passion in making an impact and connecting with others through advocacy

13:20 - Alicia reflects on her initial fears and how understanding the impact of personal stories helped her gain confidence in advocacy settings

16:36 - Judy emphasizes the critical role of fellowship and mentorship in navigating the complexities of advocacy and building resilience

20:25 - Jody highlights how mentors have supported her through her advocacy journey, sharing their knowledge and boosting her confidence in various advocacy activities

23:34 - Yolanda discusses her ongoing efforts to manage expectations and maintain motivation despite the slow pace of change in advocacy work

26:20 - Judy reflects on the need for patience in advocacy, sharing her long-term experience with legislative processes and the eventual rewards of persistent advocacy efforts

28:05 - Each guest offers their advice to those considering advocacy, emphasizing the importance of community, mentorship, and personal growth

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

Special Episode Co-Hosts

Kendall Griffey, Communications Manager at OAC

Erik Stone, Associate Director, Learning Experience Design at GHLF

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

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