In the third episode of our three-part series on polymyalgia rheumatica (PMR), we are joined by JP Summers, Patient Advocate and Community Outreach Manager at GHLF. JP shares what she’s learned from people living with PMR about managing their symptoms and advocating for themselves at doctor’s appointments.

JP and Zoe Rothblatt, Associate Director of Community Outreach at GHLF, talk about the challenges of discussing health issues with loved ones but emphasize how these conversations can provide crucial support in diagnosing and managing PMR.

This episode was made possible with support from Sanofi.

Among the highlights in this episode:

01:06: The Health Advocates share their personal highlights from the year in advocacy, emphasizing the importance and impact of patient advocacy, particularly through the 50-State Network

03:05: JP Summers shares her insights on advocating for oneself, and the importance of patients taking immediate action upon noticing symptoms and being proactive about their health

06:51: JP discusses how to navigate the stigma that can come with a chronic illness like PMR and advises on how to effectively ask for help from family, friends, and health care providers

08:30: JP talks about the broader aspects of advocacy, including engaging with legislators and stakeholders

12:20: JP reflects on her conversations with PMR patients, highlighting the importance of community support and the power of sharing one’s story as a form of advocacy

22:44: What our hosts learned from this episode

Contact Our Hosts

Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In the third episode of our three-part series on polymyalgia rheumatica (PMR), we are joined by JP Summers, Patient Advocate and Community Outreach Manager at GHLF. JP shares what she’s learned from people living with PMR about managing their symptoms and advocating for themselves at doctor’s appointments.
JP and Zoe Rothblatt, Associate Director of Community Outreach at GHLF, talk about the challenges of discussing health issues with loved ones but emphasize how these conversations can provide crucial support in diagnosing and managing PMR.
This episode was made possible with support from Sanofi.
Among the highlights in this episode:
01:06: The Health Advocates share their personal highlights from the year in advocacy, emphasizing the importance and impact of patient advocacy, particularly through the 50-State Network
03:05: JP Summers shares her insights on advocating for oneself, and the importance of patients taking immediate action upon noticing symptoms and being proactive about their health
06:51: JP discusses how to navigate the stigma that can come with a chronic illness like PMR and advises on how to effectively ask for help from family, friends, and health care providers
08:30: JP talks about the broader aspects of advocacy, including engaging with legislators and stakeholders
12:20: JP reflects on her conversations with PMR patients, highlighting the importance of community support and the power of sharing one’s story as a form of advocacy
22:44: What our hosts learned from this episode
Contact Our Hosts
Steven Newmark, Director of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a>
Zoe Rothblatt, Associate Director, Community Outreach at GHLF: <a href="mailto:zrothblatt@ghlf.org">zrothblatt@ghlf.org</a>
A podcast episode produced by Ben Blanc, Manager of Programs &amp; Special Projects at GHLF.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Catch up on all our episodes on our website or on your favorite podcast channel.

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what’s happening in the healthcare world to help you make informed decisions to live your best life.

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what&rsquo;s happening in the healthcare world to help you make informed decisions to live your best life.

The Health Advocates

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what’s happening in the healthcare world to help you make informed decisions to live your best life. The podcast is part of the Global Healthy Living Foundation Podcast Network and hosted by Steven Newmark, Chief of Policy at GHLF, and Zoe Rothblatt, Director of Community Outreach at GHLF.

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what’s happening in the healthcare world to help you make informed decisions to live your best life. The podcast is part of the Global Healthy Living Foundation Podcast Network and hosted by Steven Newmark, Chief of Policy at GHLF, and Zoe Rothblatt, Director of Community Outreach at GHLF.

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