In this special episode, Zoe is live at the American College of Rheumatology (ACR) 2023 Convergence and is joined by patient advocate Dana Guglielmo who lives with rheumatoid arthritis.

Dana shares about her patient perspectives poster where she uses data to manage her health information. She encourages patients to make their own "Dana's Dashboard" and find what works for them to take control over their health information.

Episode Note

You can download Dana's dashboard template via the link below: https://docs.google.com/spreadsheets/u/0/d/1RPCM-4KZ_tXb7uZGxNirZ_l5aiXwZyLjKAZ1CIhpU2M/htmlview

Contact Our Hosts

Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In this special episode, Zoe is live at the American College of Rheumatology (ACR) 2023 Convergence and is joined by patient advocate Dana Guglielmo who lives with rheumatoid arthritis.
Dana shares about her patient perspectives poster where she uses data to manage her health information. She encourages patients to make their own "Dana's Dashboard" and find what works for them to take control over their health information.
Episode Note
You can download Dana's dashboard template via the link below: <a href="https://docs.google.com/spreadsheets/u/0/d/1RPCM-4KZ_tXb7uZGxNirZ_l5aiXwZyLjKAZ1CIhpU2M/htmlview" aria-label="Link https://docs.google.com/spreadsheets/u/0/d/1RPCM-4KZ_tXb7uZGxNirZ_l5aiXwZyLjKAZ1CIhpU2M/htmlview">https://docs.google.com/spreadsheets/u/0/d/1RPCM-4KZ_tXb7uZGxNirZ_l5aiXwZyLjKAZ1CIhpU2M/htmlview</a>
Contact Our Hosts
Steven Newmark, Director of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a>
Zoe Rothblatt, Associate Director, Community Outreach at GHLF: <a href="mailto:zrothblatt@ghlf.org">zrothblatt@ghlf.org</a>
A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Catch up on all our episodes on our website or on your favorite podcast channel.

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what’s happening in the healthcare world to help you make informed decisions to live your best life.

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what&rsquo;s happening in the healthcare world to help you make informed decisions to live your best life.

The Health Advocates

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what’s happening in the healthcare world to help you make informed decisions to live your best life. The podcast is part of the Global Healthy Living Foundation Podcast Network and hosted by Steven Newmark, Chief of Policy at GHLF, and Zoe Rothblatt, Director of Community Outreach at GHLF.

A podcast that breaks down major health news of the week to help you make sense of it all. Our goal is to help you understand what’s happening in the healthcare world to help you make informed decisions to live your best life. The podcast is part of the Global Healthy Living Foundation Podcast Network and hosted by Steven Newmark, Chief of Policy at GHLF, and Zoe Rothblatt, Director of Community Outreach at GHLF.

American College of Rheumatology Convergence 2023: Live with Patient Dana Guglielmo

In this episode of The Health Advocates, our hosts welcome Brindley Brooks, founder and executive director of HS Connect. Brindley shares her powerful journey living with Hidradenitis Suppurativa (HS) since age 10, including her misdiagnosis, the stigma surrounding HS, and how her life-changing decision to undergo surgery led her to become a passionate patient advocate. The conversation highlights the critical role of advocacy in supporting the HS community, including initiatives like GHLF's HS Patient Guide and the impactful work of HS Connect in raising awareness, providing education, and fostering a supportive community for those living with HS.

Among the highlights in this episode:

01:23: Brindley introduces herself and shares HS Connect’s mission of providing factual education and promoting shared decision-making

01:53: Brindley recounts her early experience with HS, initial misdiagnosis, and the stigma that discouraged her from seeking care for over a decade

03:57: Brindley describes the pivotal decision to undergo surgery, the transformative impact it had on her life, and finding empowerment through that choice

06:12: Brindley discusses the founding of HS Connect, its rapid growth, and the organization’s focus on correcting misconceptions and reducing stigma in the HS community

08:18: Steven Newmark, Chief of Policy at GHLF, talks about GHLF’s HS Patient Guide and highlights Brindley’s role in incorporating patient perspectives into the resource

08:36: Brindley shares why patient-involved educational resources are essential for HS patients and her experience collaborating with GHLF

09:37: Brindley explains the different levels of advocacy, from sharing personal stories to influencing federal policies, including a campaign for insurance coverage of laser hair removal for HS patients

10:46: Steven emphasizes the importance of collaboration between organizations like GHLF and HS Connect in advancing advocacy

11:26: Brindley outlines HS Connect’s 2025 priorities, including mental health initiatives like "Healing Space for HS" and broader advocacy campaigns

12:58: Brindley offers words of encouragement, urging those with HS to seek community support and to know they are not alone

To learn more about HS and access GHLF’s HS Patient Guide, visit: https://ghlf.org/hspatientguide/

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In this episode of The Health Advocates, our hosts welcome Brindley Brooks, founder and executive director of HS Connect. Brindley shares her powerful journey living with Hidradenitis Suppurativa (HS) since age 10, including her misdiagnosis, the stigma surrounding HS, and how her life-changing decision to undergo surgery led her to become a passionate patient advocate. The conversation highlights the critical role of advocacy in supporting the HS community, including initiatives like GHLF's HS Patient Guide and the impactful work of HS Connect in raising awareness, providing education, and fostering a supportive community for those living with HS.
Among the highlights in this episode:
01:23: Brindley introduces herself and shares HS Connect&rsquo;s mission of providing factual education and promoting shared decision-making
01:53: Brindley recounts her early experience with HS, initial misdiagnosis, and the stigma that discouraged her from seeking care for over a decade
03:57: Brindley describes the pivotal decision to undergo surgery, the transformative impact it had on her life, and finding empowerment through that choice
06:12: Brindley discusses the founding of HS Connect, its rapid growth, and the organization&rsquo;s focus on correcting misconceptions and reducing stigma in the HS community
08:18: Steven Newmark, Chief of Policy at GHLF, talks about GHLF&rsquo;s HS Patient Guide and highlights Brindley&rsquo;s role in incorporating patient perspectives into the resource
08:36: Brindley shares why patient-involved educational resources are essential for HS patients and her experience collaborating with GHLF
09:37: Brindley explains the different levels of advocacy, from sharing personal stories to influencing federal policies, including a campaign for insurance coverage of laser hair removal for HS patients
10:46: Steven emphasizes the importance of collaboration between organizations like GHLF and HS Connect in advancing advocacy
11:26: Brindley outlines HS Connect&rsquo;s 2025 priorities, including mental health initiatives like "Healing Space for HS" and broader advocacy campaigns
12:58: Brindley offers words of encouragement, urging those with HS to seek community support and to know they are not alone
To learn more about HS and access GHLF&rsquo;s HS Patient Guide, visit: <a href="https://ghlf.org/hspatientguide/">https://ghlf.org/hspatientguide/</a>
Contact Our Hosts
Steven Newmark, Chief of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a>
Zoe Rothblatt, Director of Community Outreach at GHLF: <a href="mailto:zrothblatt@ghlf.org">zrothblatt@ghlf.org</a>
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Catch up on all our episodes on our website or on your favorite podcast channel.

S8, Ep 7- Finding Strength and Support: Brindley Brooks on Living with Hidradenitis Suppurativa (HS)

In honor of Black History Month, The Health Advocates welcome Dr. Georges Benjamin, Executive Director of the American Public Health Association (APHA). Dr. Benjamin shares his journey from emergency medicine to public health leadership, offering insights on health equity, community-based advocacy, and the ongoing challenges in public health. He discusses critical topics such as health care access and the importance of listening to communities to drive meaningful change.

Tune in for an insightful conversation about advancing public health for all.

Among the highlights in this episode:

02:08: Dr. Benjamin shares how his initial interest in molecular genetic research shifted toward emergency medicine and public health leadership

03:49: Dr. Benjamin discusses key challenges he has faced, from the HIV/AIDS epidemic to natural disasters and bioterrorism events

05:52: Dr. Benjamin highlights APHA’s focus on health insurance access, food insecurity, climate change, gun violence, reproductive rights, and vaccine advocacy

06:37: Zoe Rothblatt, Director of Community Outreach at GHLF, brings up the challenge of proving public health successes, noting that prevention often goes unnoticed

07:21: Dr. Benjamin explains how public health efforts prevent crises, using measles and vaccine hesitancy as examples

08:39: Zoe asks about the role of partnerships in public health, and Dr. Benjamin emphasizes collaboration as a key strategy

09:50: Dr. Benjamin shares personal experiences and the importance of diverse voices in decision-making

13:02: Zoe asks how public health programs should be evaluated, and Dr. Benjamin explains the importance of listening to communities before implementing solutions

14:45: Dr. Benjamin provides an example of how addressing social determinants of health, like safe neighborhoods, can make healthier choices more accessible

15:27: Dr. Benjamin shares his key takeaway: public health professionals must listen more than they talk

15:49 – Zoe and Steven Newmark, Chief of Policy at GHLF, reflect on Dr. Benjamin’s insights, emphasizing the importance of community engagement in public health

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In honor of Black History Month, The Health Advocates welcome Dr. Georges Benjamin, Executive Director of the American Public Health Association (APHA). Dr. Benjamin shares his journey from emergency medicine to public health leadership, offering insights on health equity, community-based advocacy, and the ongoing challenges in public health. He discusses critical topics such as health care access and the importance of listening to communities to drive meaningful change.
Tune in for an insightful conversation about advancing public health for all.
Among the highlights in this episode:
02:08: Dr. Benjamin shares how his initial interest in molecular genetic research shifted toward emergency medicine and public health leadership
03:49: Dr. Benjamin discusses key challenges he has faced, from the HIV/AIDS epidemic to natural disasters and bioterrorism events
05:52: Dr. Benjamin highlights APHA&rsquo;s focus on health insurance access, food insecurity, climate change, gun violence, reproductive rights, and vaccine advocacy
06:37: Zoe Rothblatt, Director of Community Outreach at GHLF, brings up the challenge of proving public health successes, noting that prevention often goes unnoticed
07:21: Dr. Benjamin explains how public health efforts prevent crises, using measles and vaccine hesitancy as examples
08:39: Zoe asks about the role of partnerships in public health, and Dr. Benjamin emphasizes collaboration as a key strategy
09:50: Dr. Benjamin shares personal experiences and the importance of diverse voices in decision-making
13:02: Zoe asks how public health programs should be evaluated, and Dr. Benjamin explains the importance of listening to communities before implementing solutions
14:45: Dr. Benjamin provides an example of how addressing social determinants of health, like safe neighborhoods, can make healthier choices more accessible
15:27: Dr. Benjamin shares his key takeaway: public health professionals must listen more than they talk
15:49 &ndash; Zoe and Steven Newmark, Chief of Policy at GHLF, reflect on Dr. Benjamin&rsquo;s insights, emphasizing the importance of community engagement in public health
Contact Our Hosts
Steven Newmark, Chief of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a>
Zoe Rothblatt, Director of Community Outreach at GHLF: <a href="mailto:zrothblatt@ghlf.org">zrothblatt@ghlf.org</a>
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Catch up on all our episodes on our website or on your favorite podcast channel.

S8, Ep 6- It Takes a Team: Dr. Georges Benjamin on Public Health, Equity & Community Impact

In this timely episode, The Health Advocates break down the recent Senate hearings for HHS nominee Robert Kennedy Jr.. They discuss the critical role of the HHS Secretary in shaping public health policy and managing key agencies like the FDA and CDC. The hearings exposed Kennedy’s controversial views on vaccines, concerns over scientific integrity, and notable missteps in understanding health policies.

Tune in to hear what this means for patients and what happens next in the confirmation process.

Contact Our Hosts

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In this timely episode, The Health Advocates break down the recent Senate hearings for HHS nominee Robert Kennedy Jr.. They discuss the critical role of the HHS Secretary in shaping public health policy and managing key agencies like the FDA and CDC. The hearings exposed Kennedy&rsquo;s controversial views on vaccines, concerns over scientific integrity, and notable missteps in understanding health policies.
Tune in to hear what this means for patients and what happens next in the confirmation process.
Contact Our Hosts
Steven Newmark, Chief of Policy at GHLF: <a href="mailto:snewmark@ghlf.org">snewmark@ghlf.org</a>
Zoe Rothblatt, Director of Community Outreach at GHLF: <a href="mailto:zrothblatt@ghlf.org">zrothblatt@ghlf.org</a>
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Catch up on all our episodes on our website or on your favorite podcast channel.

American College of Rheumatology Convergence 2023: Live with Patient Dana Guglielmo

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