In October 2021, our beautiful son, Sebastián, was diagnosed with Myoepithelial Carcinoma (MEC), which metastasized to his lungs. MEC is an exceptionally rare and aggressive cancer that is known to have a high rate of recurrence. As we watch our son fighting everyday for his life, we are beside him fighting as well. Despite our grief, we are hopeful for a miracle and this project is our mission to find a cure. We need your help. We are in a race against time—not only for Sebastián, but for all MEC patients, present and future. There is an urgent need for research to better understand this disease, and our patient-driven initiative aims to resolve that. By initiating and funding MEC-specific research, we can accelerate the discovery of effective treatments and ultimately a cure for MEC.
Naomi & Michael, parents to Santiago & Sebastián