SA Drink Of The Week

Claire Seeley

Musical Pilgrimage

Do you know what POTS is? If not, consider yourself lucky.

POTS is a syndrome that affects women of child-bearing age but can be experienced by both men and women of any age.

We'll be chatting with Claire Seeley, founder and director of the Australian POTS Foundation to learn more about the syndrome, its diagnosis, and its treatment.

The SA Drink Of The Week is St Hallett's Blackwells Shiraz.

And in the musical pilgrimage we have a track from Ben and Janna Romeo.

You can navigate episodes using chapter markers in your podcast app. Not a fan of wine? You can click next to jump to the next chapter in the show. We're here to serve!

And please consider becoming part of our podcast by joining our Inner Circle. It's an email list. Join it and you might get an email on a Sunday or Monday seeking question ideas, guest ideas and requests for other bits of feedback about YOUR podcast, The Adelaide Show. Email us directly and we'll add you to the list: podcast@theadelaideshow.com.au

If you enjoy the show, please leave us a 5-star review in iTunes or other podcast sites, or buy some great merch from our Red Bubble store - The Adelaide Show Shop. We'd greatly appreciate it.

And please talk about us and share our episodes on social media, it really helps build our community. Oh, and here's our index of all episode in one concise page

 

Running Sheet: What is POTS?00:00:00 Intro

Introduction to the show.

00:03:52 SA Drink Of The Week

The SA Drink Of The Week is 2018 St Hallett's Blackwells Shiraz.

00:08:46 Claire Seeley

It was only the last few days that I discovered the existence of a syndrome known as POTS. And the irony is, there could be people among us who are suffering from it without knowing it exists, either. This is the dilemma created by an syndrome that impacts the automatic nervous system in a range of ways, making it difficult to diagnose. What's more, we now are seeing people with post acute Covid being very suseptiable to POTS. Our guest tonight, Claire Seeley, discovered she had POTS, shortly after a viral infection and has not only been living with it ever since, but she's been working with fellow sufferers in her role as a Clinical Nurse Consultant, under the supervision of Associate Professor Dennis Lau (Cardiologist/Electrophysiologist) at Adelaide University. Welcome to The Adelaide Show.

Australian POTS Foundation

We're going to talk about what POTS is, your research into it, your work in with patients, and the Australian POTS Foundation, but first, if someone I know was suffering from a serious onset of POTS,  what sort of signs would I notice?

What did you experience?

Let's get into the detail. What do we know about POTS (and how do you pronounce all the words)

You mentioned in some of your notes that, historically, POTS has been much maligned by the medical profession. Any idea why? It is related to how complex it must be to diagnose?

Who is most at risk?

What outcomes should people expect to experience after being diagnosed with POTS? In other words, can it be treated successfully?

Can you tell us more about your work at Adelaide University. I think you said you are in one of the primary centres for treatment of Autonomic Cardiac Disorders in Australia.

The condition is highly associated with another poorly recognized condition could hypermobile Ehlers Danlos Syndrome which affects the collagen in the connective tissue. Why?

Listener, Lisa, has a question: She says her mum has Bradi Tachi Cardia, a heart condition. Unsure if related to POTS. Apparently it leads to her heart rate changing from fast to slow and vice versa. She said it would be good to know its common name.

There has been a surge in presentations and diagnosis of POTS in people post acute Covid-19.  To the point that there is now a drive for increased funding to understand the impact and cause of this condition. What is your research focussing on?

Do you need volunteers?

You have started a Foundation, tell us more about it.

Finally, I saw you recently at the birthday celebration for Sir Frank Seeley, your father-in-law. We just dressed up and went and feasted and chatted and headed home. Did POTS impact your approach to being at that night?

01:10:30 Musical Pilgrimage

In the musical pilgrimage, we hear from Claire Seeley's son-in-law and daughter, Ben and Janna Romeo, with a song called, Yellow Brick Road.

You can learn more about Janna at her Facebook page: Janna Romeo

Do you know what POTS is? If not, consider yourself lucky.
POTS is a syndrome that affects&nbsp;women of child-bearing age but can be experienced by both men and women of any age.
We'll be chatting with Claire Seeley, founder and director of the Australian POTS Foundation to learn more about the syndrome, its diagnosis, and its treatment.
The SA Drink Of The Week is St Hallett's Blackwells Shiraz.
And in the musical pilgrimage we have a track from Ben and Janna Romeo.
You can navigate episodes using chapter markers in your podcast app. Not a fan of wine? You can click next to jump to the next chapter in the show. We're here to serve!
And please consider becoming part of our podcast by joining our Inner Circle. It's an email list. Join it and you might get an email on a Sunday or Monday seeking question ideas, guest ideas and requests for other bits of feedback about YOUR podcast, The Adelaide Show. Email us directly and we'll add you to the list: <a href="mailto:podcast@theadelaideshow.com.au">podcast@theadelaideshow.com.au</a>
If you enjoy the show, please <a href="https://itunes.apple.com/us/podcast/another-boring-thursday-night/id696302138">leave us a 5-star review </a>in iTunes or other podcast sites, or buy some great merch from our Red Bubble store - <a href="https://www.redbubble.com/people/theadelaideshow/shop?asc=u">The Adelaide Show Shop</a>. We'd greatly appreciate it.
And please talk about us and share our episodes on social media, it really helps build our community. Oh, and here's <a href="https://theadelaideshow.com.au/complete-list-adelaide-show-episodes/">our index of all episode in one concise page</a>
&nbsp;
Running Sheet: What is POTS?00:00:00 Intro
Introduction to the show.
00:03:52&nbsp;SA Drink Of The Week
The SA Drink Of The Week is 2018 St Hallett's Blackwells Shiraz.
00:08:46&nbsp;Claire Seeley
It was only the last few days that I discovered the existence of a syndrome known as POTS. And the irony is, there could be people among us who are suffering from it without knowing it exists, either. This is the dilemma created by an syndrome that impacts the automatic nervous system in a range of ways, making it difficult to diagnose. What's more, we now are seeing people with post acute Covid being very suseptiable to POTS. Our guest tonight, Claire Seeley, discovered she had POTS, shortly after a viral infection and has not only been living with it ever since, but she's been working with fellow sufferers in her role as a Clinical Nurse Consultant, under the supervision of Associate Professor Dennis Lau (Cardiologist/Electrophysiologist) at Adelaide University. Welcome to The Adelaide Show.
<a href="https://potsfoundation.org.au/">Australian POTS Foundation</a>
We're going to talk about what POTS is, your research into it, your work in with patients, and the Australian POTS Foundation, but first, if someone I know was suffering from a serious onset of POTS,&nbsp; what sort of signs would I notice?
What did you experience?
Let's get into the detail. What do we know about POTS (and how do you pronounce all the words)
You mentioned in some of your notes that, historically, POTS has been much maligned by the medical profession. Any idea why? It is related to how complex it must be to diagnose?
Who is most at risk?
What outcomes should people expect to experience after being diagnosed with POTS? In other words, can it be treated successfully?
Can you tell us more about your work at Adelaide University. I think you said you are in one of the primary centres for treatment of Autonomic Cardiac Disorders in Australia.
The condition is highly associated with another poorly recognized condition could hypermobile Ehlers Danlos Syndrome which affects the collagen in the connective tissue. Why?
Listener, Lisa, has a question: She says her mum has Bradi Tachi Cardia, a heart condition. Unsure if related to POTS. Apparently it leads to her heart rate changing from fast to slow and vice versa. She said it would be good to know its common name.
There has been a surge in presentations and diagnosis of POTS in people post acute Covid-19.&nbsp; To the point that there is now a drive for increased funding to understand the impact and cause of this condition. What is your research focussing on?
Do you need volunteers?
You have started a Foundation, tell us more about it.
Finally, I saw you recently at the birthday celebration for Sir Frank Seeley, your father-in-law. We just dressed up and went and feasted and chatted and headed home. Did POTS impact your approach to being at that night?
01:10:30&nbsp;Musical Pilgrimage
In the musical pilgrimage, we hear from Claire Seeley's son-in-law and daughter, Ben and Janna Romeo, with a song called, Yellow Brick Road.
You can learn more about Janna at her Facebook page: <a href="https://www.facebook.com/romeo.janna">Janna Romeo</a>

A weekly podcast recorded in Adelaide that puts South Australian passion on centre stage with a featured guest who joins us each week as a co-presenter to share how they're pursuing their passions. We venture across topics as diverse as history, wine, food, art, music, relationships, critical thinking, health, news, interviews, chat and quizzes. 

Every single interview, every single show, unlocks insights into what drives people to be doing what they're doing and what keeps them striving. 

The Adelaide Show is produced by Steve Davis and Nigel Dobson-Keeffe.

Please subscribe to our In Crowd list; you get an email each Friday (when we have published a new episode) with an overview of that week's show. Plus, consider joining our Inner Circle; a small group of passionate South Aussies who allow us to pick their brains and gain interviewee suggestions.

This podcast began life as Another Boring Thursday Night In Adelaide from episodes 1-79.

A podcast recorded in Adelaide that puts South Australian passion on centre stage with a featured guest who joins us each week as a co-presenter to share how they're pursuing their passions. We venture across topics as diverse as history, wine, ...

The Adelaide Show

A podcast recorded in Adelaide that puts South Australian passion on centre stage with a featured guest who joins us to share how they're pursuing their passions. We venture across topics as diverse as history, wine, food, art, music, relationships, critical thinking, health, and general news. Every single interview, every single show, unlocks insights into what drives people to be doing what they're doing and what keeps them striving. The Adelaide Show is produced by Steve Davis, and ends with an original song by a South Australian artist. Please subscribe to our In Crowd list; you get an email each Friday with an overview of that week's show. This podcast began life as Another Boring Thursday Night In Adelaide from episodes 1-79.

A podcast recorded in Adelaide that puts South Australian passion on centre stage with a featured guest who joins us to share how they're pursuing their passions. We venture across topics as diverse as history, wine, food, art, music, relationships, critical thinking, health, and general news. Every single interview, every single show, unlocks insights into what drives people to be doing what they're doing and what keeps them striving. The Adelaide Show is produced by Steve Davis, and ends with an original song by a South Australian artist. Please subscribe to our In Crowd list; you get an email each Friday with an overview of that week's show. This podcast began life as Another Boring Thursday Night In Adelaide from episodes 1-79.

Claire Seeley discusses POTS and the Australian POTS Foundation

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