Join Joe on this special Talking Head Pain episode featuring Sarah Shaw (Senior Manager, BIPOC Community Outreach) and JP Summers (Patient Advocate, Community Outreach Manager). Sarah and JP get real and unpack a recent article that has caused controversy in the chronic disease community.

Joe, Sarah, and JP discuss the negative impact of clickbait articles surrounding chronic illness, turning anger into action, and the balance of posting the positives and negatives of living with a chronic illness on social media

Among the highlights in this episode:

00:09- Joe starts the episode by giving background information about the article being discussed alongside GHLF colleagues Sarah Shaw and JP Summers

01:55- JP Summers describes her initial reactions to reading the article

04:03- Sarah Shaw tells Joe about her feelings when reading the article

06:06- Joe asks JP what her advice is for people who are feeling angry

09:24- Sarah relays the thoughts and feelings she has heard from the communities she talks to through her network at GHLF

13:23- Joe hears from Sarah about the balance of posting the positives and negatives of living life with a chronic disease

14:47- JP shares her final thoughts on the subject and encourages people with negative views of chronic illness patients to seek out information and perspective from patients

17:04- Sarah shares her final words on the article and offers advice to journalists writing about people living with chronic disease

18:27- Joe shares the importance of not taking shortcuts when writing articles about chronic diseases and the importance of not letting others hold power over you

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org.

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