Today on Talking Head Pain, Joe is joined by Alan Kaplan, Founder of NDPHaware. Alan lives with New Daily Persistent Headache (NDPH) and started the organization to build community and advance research.

Join Joe and Alan as they discuss NDHP, online support groups, and the emergence of psychedelics.

Among the highlights in this episode:

01:20- Joe kicks off the episode by asking Alan Kaplan to tell the audience about New Daily Persistent Headache, NDPH, and the symptoms surrounding it

03:03- Alan shares how NDPH has affected his day-to-day life

03:54- Joe and Alan discuss the lack of information surrounding the origins of NDPH

04:39- Joe asks about the prevalence of NDPH in men

06:06- Alan talks about finding online support groups

07:18- Alan tells the story of how he decided to start NDPHaware.org

09:34- Joe and Alan discuss the emergence of psychedelics in Alan’s toolkit

11:09- Alan shares what starting a non-profit has taught him

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: jcoe@ghlf.org

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to TalkingHeadPain@GHLF.org.

Catch up on all our episodes on our website or on your favorite podcast channel.

Today on Talking Head Pain, Joe is joined by Alan Kaplan, Founder of NDPHaware. Alan lives with New Daily Persistent Headache (NDPH) and started the organization to build community and advance research.
Join Joe and Alan as they discuss NDHP, online support groups, and the emergence of psychedelics.
Among the highlights in this episode:
01:20- Joe kicks off the episode by asking Alan Kaplan to tell the audience about New Daily Persistent Headache, NDPH, and the symptoms surrounding it
03:03- Alan shares how NDPH has affected his day-to-day life
03:54- Joe and Alan discuss the lack of information surrounding the origins of NDPH
04:39- Joe asks about the prevalence of NDPH in men
06:06- Alan talks about finding online support groups
07:18- Alan tells the story of how he decided to start NDPHaware.org
09:34- Joe and Alan discuss the emergence of psychedelics in Alan’s toolkit
11:09- Alan shares what starting a non-profit has taught him
Contact Our Host:
Joe Coe, Director, Education and Digital Strategy at GHLF: <a href="mailto:jcoe@ghlf.org">jcoe@ghlf.org</a>
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to <a href="mailto:TalkingHeadPain@GHLF.org">TalkingHeadPain@GHLF.org</a>.
Catch up on all our episodes on <a href="https://ghlf.org/talkingheadpain/">our website</a> or on your favorite podcast channel.

Talking Head Pain is a podcast that confronts head pain, head on. 

Brought to you by the Global Healthy Living Foundation and hosted by migraine advocate Joe Coe, this show explores how people living with migraine, cluster headache and other types of intense pain find ways to better manage their disease. 

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

Or visit GHLF.org for more information. 

Talking Head Pain is a podcast that confronts head pain, head on. 
Brought to you by the Global Healthy Living Foundation and hosted by migraine advocate Joe Coe, this show explores how people living with migraine, cluster headache and other types of intense pain find ways to better manage their disease. 
To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.
Or visit GHLF.org for more information.

Talking Head Pain

A podcast confronting head pain, head on, brought to you by the Global Healthy Living Foundation. To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

A podcast confronting head pain, head on, brought to you by the Global Healthy Living Foundation. To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

Learning More About New Daily Persistent Headache: A Conversation with Alan Kaplan from NDPHaware

In this episode of Talking Head Pain, Sarah welcomes Katrina, a patient advocate navigating multiple conditions including migraine and endometriosis. They discuss Katrina's journey — from years of misdiagnosis to finally finding a doctor who would listen and offer effective migraine treatment options. Katrina and Sarah dive into the overlap of endometriosis and migraine advocacy, highlighting the challenges and breakthroughs along the way. This discussion provides insights into the daily realities of shared decision-making with your health care team, the journey to diagnosis, and the importance of self-advocacy.

Among the highlights in this episode:

02:05: Katrina describes the onset and progression of their migraine attacks, providing insights into the symptoms that go beyond a typical headache

03:58: Katrina shares their journey from misdiagnosis to finally getting a correct diagnosis and effective treatment plan, emphasizing the pivotal role of a neurologist

04:25: Sarah and Katrina discuss the overlap of endometriosis and migraine, and the challenges of being heard and properly diagnosed

07:26: Katrina and Sarah discuss the impact of advocacy in navigating health care and the importance of self-advocacy in chronic illness management

08:53: Katrina reflects on how their advocacy in endometriosis has empowered them in other areas such as migraine

14:41: Sarah and Katrina discuss the emotional and physical toll of chronic illness and the societal pressures that affect how people manage their health

19:11: Katrina expresses their approach to health management amidst advocacy fatigue

20:29: Closing thoughts on the importance of prioritizing personal health and the collective need for better health care understanding and support

Contact Our Hosts:

Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In this episode of Talking Head Pain, Sarah welcomes Katrina, a patient advocate navigating multiple conditions including migraine and endometriosis. They discuss Katrina's journey — from years of misdiagnosis to finally finding a doctor who would listen and offer effective migraine treatment options. Katrina and Sarah dive into the overlap of endometriosis and migraine advocacy, highlighting the challenges and breakthroughs along the way. This discussion provides insights into the daily realities of shared decision-making with your health care team, the journey to diagnosis, and the importance of self-advocacy.
Among the highlights in this episode:
02:05: Katrina describes the onset and progression of their migraine attacks, providing insights into the symptoms that go beyond a typical headache
03:58: Katrina shares their journey from misdiagnosis to finally getting a correct diagnosis and effective treatment plan, emphasizing the pivotal role of a neurologist
04:25: Sarah and Katrina discuss the overlap of endometriosis and migraine, and the challenges of being heard and properly diagnosed
07:26: Katrina and Sarah discuss the impact of advocacy in navigating health care and the importance of self-advocacy in chronic illness management
08:53: Katrina reflects on how their advocacy in endometriosis has empowered them in other areas such as migraine
14:41: Sarah and Katrina discuss the emotional and physical toll of chronic illness and the societal pressures that affect how people manage their health
19:11: Katrina expresses their approach to health management amidst advocacy fatigue
20:29: Closing thoughts on the importance of prioritizing personal health and the collective need for better health care understanding and support
Contact Our Hosts:
Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: <a href="mailto:jcoe@ghlf.org">jcoe@ghlf.org</a>
Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: <a href="mailto:sshaw@ghlf.org">sshaw@ghlf.org</a>
A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>  
Catch up on all our episodes on our website or on your favorite podcast channel.

Better Late Than Never: Katrina's Long Road to Diagnosis

In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine.

Join Sarah and Nicole for an episode that offers valuable insights for anyone looking to advocate for better migraine care and understanding.

Among the highlights in this episode:

01:20: Nicole recounts a severe migraine attack following a concussion in 2016, detailing the array of debilitating symptoms she experienced

02:25: Nicole discusses how educating herself about migraine, joining support groups, and learning to advocate for herself were crucial steps in managing her condition

03:50: Nicole shares practical advice on preparing for medical appointments, including keeping detailed health records and symptom notes to improve communication with health care providers

06:13: Nicole and Sarah highlight the significance of finding a community through support groups, sharing experiences, and not feeling alone in the journey with migraine

07:35: Nicole discusses the challenge of advocating for herself among family and friends and the importance of sharing personal stories to educate others about the realities of living with migraine

13:31: Nicole reflects on what motivated her to seek better treatment and care, emphasizing the role of research, therapy, and the determination to live independently despite her condition

15:26: Nicole acknowledges that despite best efforts, some people still struggle with migraine management due to the unique ways migraine affects each individual

Contact Our Hosts:

Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine.
Join Sarah and Nicole for an episode that offers valuable insights for anyone looking to advocate for better migraine care and understanding.
Among the highlights in this episode:
01:20: Nicole recounts a severe migraine attack following a concussion in 2016, detailing the array of debilitating symptoms she experienced
02:25: Nicole discusses how educating herself about migraine, joining support groups, and learning to advocate for herself were crucial steps in managing her condition
03:50: Nicole shares practical advice on preparing for medical appointments, including keeping detailed health records and symptom notes to improve communication with health care providers
06:13: Nicole and Sarah highlight the significance of finding a community through support groups, sharing experiences, and not feeling alone in the journey with migraine
07:35: Nicole discusses the challenge of advocating for herself among family and friends and the importance of sharing personal stories to educate others about the realities of living with migraine
13:31: Nicole reflects on what motivated her to seek better treatment and care, emphasizing the role of research, therapy, and the determination to live independently despite her condition
15:26: Nicole acknowledges that despite best efforts, some people still struggle with migraine management due to the unique ways migraine affects each individual
Contact Our Hosts:
Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: <a href="mailto:jcoe@ghlf.org">jcoe@ghlf.org</a>
Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: <a href="mailto:sshaw@ghlf.org">sshaw@ghlf.org</a>
A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>  
Catch up on all our episodes on our website or on your favorite podcast channel.

Advocacy in Action: Navigating Migraine with Nicole

In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds light on the challenges and opportunities in treatment for those living with episodic migraine.

If you are a health care provider or a patient living with episodic migraine, make sure to listen to the episode and participate in our survey. This will help more patients like you, get diagnosed and on proper treatment.

Healthcare, Nurse & ER Practitioner Survey: https://www.research.net/r/FBDYLHM

Episodic Migraine Patient Survey: https://singuser0bd3f30c.iad1.qualtrics.com/jfe/form/SV_0OGZIOGI0mmtMsm?Source=Ext

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds light on the challenges and opportunities in treatment for those living with episodic migraine.
If you are a health care provider or a patient living with episodic migraine, make sure to listen to the episode and participate in our survey. This will help more patients like you, get diagnosed and on proper treatment.
Healthcare, Nurse &amp; ER Practitioner Survey: <a href="https://www.research.net/r/FBDYLHM" data-outlook-id="1f71a509-52dc-41a1-a08e-f05f86793fdc">https://www.research.net/r/FBDYLHM</a>
Episodic Migraine Patient Survey: <a href="https://singuser0bd3f30c.iad1.qualtrics.com/jfe/form/SV_0OGZIOGI0mmtMsm?Source=Ext" data-outlook-id="a8b49f42-8ebd-4e09-bfb8-7ea02cf29129">https://singuser0bd3f30c.iad1.qualtrics.com/jfe/form/SV_0OGZIOGI0mmtMsm?Source=Ext</a>
Contact Our Hosts:
Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: <a href="mailto:jcoe@ghlf.org">jcoe@ghlf.org</a>
Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: <a href="mailto:sshaw@ghlf.org">sshaw@ghlf.org</a>
A podcast episode produced by Ben Blanc, Manager of Programs &amp; Special Projects at GHLF.
We want to hear what you think. Send your comments, or a video or audio clip of yourself, to <a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>  
Catch up on all our episodes on our website or on your favorite podcast channel.

Learning More About New Daily Persistent Headache: A Conversation with Alan Kaplan from NDPHaware

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