It’s one of the most confronting challenges imaginable for a child and their family: facing the onset of a life-limiting condition.  Loughlin Patrick reports a national plan aims to break down barriers to care – if it can get the support it needs to keep up advocates’ momentum.

If this story impacted you, call Griefline on 1300 845 745 or Lifeline on 13 11 14.  In an emergency, always call Triple Zero (000).

On The Beat brings you compelling interviews with news-makers and culture-shapers.  Plus, SYN Media reporters cover local stories meaningful to young people in Melbourne/Naarm.