In our first episode, we will be exploring how the lived experience of someone managing a condition like rheumatoid arthritis can systematically be documented via the use of what we call Patient Reported Outcome Measures.

Joining us to explore this topic are Dr. Susan Goodman, Professor of Clinical Medicine at Weill Cornell Medicine, Director of the Integrative Rheumatology and Orthopedics Center of Excellence, and Medical Chief and Research Director of the Combined Arthritis Program Hospital for Special Surgery, and Shelley Fritz, who is an educator and patient advocate who lives with rheumatoid arthritis and several co-morbidities.

This podcast is a co-production by the Global Healthy Living Foundation and HCP Live. 

Additional Resources:
(1.) https://ard.bmj.com/content/71/11/1855.long
Bartlett 2012 “Identifying core domains to assess flare in rheumatoid arthritis: an OMERACT international patient and provider combined Delphi consensus” from the OMERACT RA Flare Working Group where patients identified fatigue as an important concern
(2.) https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-019-2076-7
Gavigan 2020 – in particular look at Figure 6 – that’s really the one related to PROs, including RAPID3 and how well they measure patients’ off the cuff response about how they are feeling
(3.) https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-021-02430-0
Nowell 2021 “Which patient-reported outcomes do rheumatology patients find important to track digitally? A real-world longitudinal study in ArthritisPower”
(4.) https://pubmed.ncbi.nlm.nih.gov/30927515/
Yun 2020 – this was a good study of ArthritisPower data to show how you can predict certain PROs using other PROs, meaning you don’t have to always ask patients every single measure, so it can save some time and burden on patients responding to questions

Learn more at ghlf.org/relatable-rheumatology/

In our first episode, we will be exploring how the lived experience of someone managing a condition like rheumatoid arthritis can systematically be documented via the use of what we call Patient Reported Outcome Measures.
Joining us to explore this topic are Dr. Susan Goodman, Professor of Clinical Medicine at Weill Cornell Medicine, Director of the Integrative Rheumatology and Orthopedics Center of Excellence, and Medical Chief and Research Director of the Combined Arthritis Program Hospital for Special Surgery, and Shelley Fritz, who is an educator and patient advocate who lives with rheumatoid arthritis and several co-morbidities.
This podcast is a co-production by the Global Healthy Living Foundation and HCP Live. 
Additional Resources: (1.) <a href="https://ard.bmj.com/content/71/11/1855.long">https://ard.bmj.com/content/71/11/1855.long</a> Bartlett 2012 “Identifying core domains to assess flare in rheumatoid arthritis: an OMERACT international patient and provider combined Delphi consensus” from the OMERACT RA Flare Working Group where patients identified fatigue as an important concern (2.) <a href="https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-019-2076-7">https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-019-2076-7</a> Gavigan 2020 – in particular look at Figure 6 – that’s really the one related to PROs, including RAPID3 and how well they measure patients’ off the cuff response about how they are feeling (3.) <a href="https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-021-02430-0">https://arthritis-research.biomedcentral.com/articles/10.1186/s13075-021-02430-0</a> Nowell 2021 “Which patient-reported outcomes do rheumatology patients find important to track digitally? A real-world longitudinal study in ArthritisPower” (4.) <a href="https://pubmed.ncbi.nlm.nih.gov/30927515/">https://pubmed.ncbi.nlm.nih.gov/30927515/</a> Yun 2020 – this was a good study of ArthritisPower data to show how you can predict certain PROs using other PROs, meaning you don’t have to always ask patients every single measure, so it can save some time and burden on patients responding to questions
Learn more at <a href="https://ghlf.org/relatable-rheumatology">ghlf.org/relatable-rheumatology/</a>

Welcome to Relatable Rheumatology: From Stories to Studies, a podcast where we explore the personal experiences of people living with rheumatic diseases and the latest research evidence on the pathway to diagnosis and challenges around it, what research is telling us about rheumatic diseases and strategies to manage it and the latest cutting-edge treatment and therapeutics.

In this podcast, we invite patients to share questions or concerns that they encountered during their journey, and we welcome experts in relevant fields to describe the research evidence, novelties in clinical practice, and new evidence and technology to address these concerns and questions.

This podcast is hosted by Dr. Ben Nowell and Dr. Shilpa Venkatachalam and is a co-production by the Global Healthy Living Foundation and HCP Live. 

Learn more at ghlf.org/relatable-rheumatology/

Welcome to Relatable Rheumatology: From Stories to Studies, a podcast where we explore the personal experiences of people living with rheumatic diseases and the latest research evidence on the pathway to diagnosis and challenges around it, what research is telling us about rheumatic diseases and strategies to manage it and the latest cutting-edge treatment and therapeutics.
In this podcast, we invite patients to share questions or concerns that they encountered during their journey, and we welcome experts in relevant fields to describe the research evidence, novelties in clinical practice, and new evidence and technology to address these concerns and questions.
This podcast is hosted by Dr. Ben Nowell and Dr. Shilpa Venkatachalam and is a co-production by the Global Healthy Living Foundation and HCP Live. 
Learn more at <a href="https://ghlf.org/relatable-rheumatology">ghlf.org/relatable-rheumatology/</a>

Relatable Rheumatology

Welcome to Relatable Rheumatology: From Stories to Studies, a podcast where we explore the personal experiences of people living with rheumatic diseases and the latest research evidence on the pathway to diagnosis and challenges around it, what research is telling us about rheumatic diseases and strategies to manage it and the latest cutting-edge treatment and therapeutics.  
In this podcast, we invite patients to share questions or concerns that they encountered during their journey, and we welcome experts in relevant fields to describe the research evidence, novelties in clinical practice, and new evidence and technology to address these concerns and questions.

This podcast is a co-production by the Global Healthy Living Foundation and HCP Live. 

Learn more at ghlf.org/relatable-rheumatology/

Welcome to Relatable Rheumatology: From Stories to Studies, a podcast where we explore the personal experiences of people living with rheumatic diseases and the latest research evidence on the pathway to diagnosis and challenges around it, what research is telling us about rheumatic diseases and strategies to manage it and the latest cutting-edge treatment and therapeutics.   In this podcast, we invite patients to share questions or concerns that they encountered during their journey, and we welcome experts in relevant fields to describe the research evidence, novelties in clinical practice, and new evidence and technology to address these concerns and questions.
This podcast is a co-production by the Global Healthy Living Foundation and HCP Live. 
Learn more at <a href="https://ghlf.org/relatable-rheumatology">ghlf.org/relatable-rheumatology/</a>

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