Over the years, the importance of taking care of one’s mental health has gained more acceptance. In 2020, with the breakdown of more traditional and physical forms of communication, social isolation reared its ugly head. While the pandemic has thrown up serious uncertainties, it has also led to greater recognition of valuing each moment that life has to offer. Gratitude is an emotional coping tool that rare individuals employ most of the time.

In this episode, Arouba Kabir, a practising therapist at Enso Wellness and a rare individual who has Cystic Fibrosis, discusses her life journey, and how she has seen rare individuals coping against massive odds. This episode thus delves into the hidden emotional costs of being rare.  

<p dir="ltr">Over the years, the importance of taking care of one&rsquo;s mental health has gained more acceptance. In 2020, with the breakdown of more traditional and physical forms of communication, social isolation reared its ugly head. While the pandemic has thrown up serious uncertainties, it has also led to greater recognition of valuing each moment that life has to offer. Gratitude is an emotional coping tool that rare individuals employ most of the time.</p>
<p dir="ltr">In this episode,&nbsp;<a href="https://twitter.com/Aroubakabir">Arouba Kabir</a>, a practising therapist at&nbsp;<a href="https://www.ensowellness.in/">Enso Wellness</a>&nbsp;and a rare individual who has Cystic Fibrosis, discusses her life journey, and how she has seen rare individuals coping against massive odds. This episode thus delves into the hidden emotional costs of being rare.&nbsp;&nbsp;</p>

There are more than 7,000 documented rare conditions in the world. While there is no known cure for some conditions, where there is a cure (or maintenance through medicines is possible), the cost of medication is exponentially high to bear. This podcast will focus on the status of rare conditions in India, which has been talked about very little in Indian society. It will be a one-of-its-kind attempt in India to document the gamut of challenges and achievements of people with rare conditions and will open a constructive dialogue on what can be done. This is important because an estimated 1 in 20 Indians are affected by a rare disease. The series will bring out the human face behind rare conditions – the patients, the families, caregivers, doctors, activists and geneticists working to improve life for people with rare conditions.

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