When Laurie Strongin’s son Henry was born with the rare, often fatal disease of Fanconi anemia, doctors told her that the best way to save his life was with an umbilical cord blood transplant from a genetically matched sibling. But Henry had no matching siblings. Laurie and her husband then got a call from a doctor with a novel idea of combining three technologies to create a child who was guaranteed to be a genetic match, raising the question: is it ethical to create a life in order to save another?

Show Notes:

In addition to Laurie Strongin, this episode features interviews with:

John Wagner, Co-Leader of the Transplantation and Cellular Therapy Program, Professor in the Division of Transplant and Cell Therapy in the Department of Pediatrics, and the McKnight-Presidential Endowed Chair, Department of Pediatrics, Division of Pediatric Blood and Marrow Transplantation & Cellular Therapy, University of Minnesota

Jeffrey Kahn, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics

You can learn more about Fanconi anemia, learn about the latest research, and find resources for those affected by the disease here. You can read more about the Strongin-Goldbergs’ and the Nashes’ stories in this New York Times article from 2001. 

Laurie Strongin went on to found the Hope for Henry Foundation, which works with hospitals to help provide support and better care for pediatric patients.

To learn more about the ethics issues raised in this episode, visit the Berman Institute’s episode guide.  

The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at greenwall.org.

When Laurie Strongin’s son Henry was born with the rare, often fatal disease of Fanconi anemia, doctors told her that the best way to save his life was with an umbilical cord blood transplant from a genetically matched sibling. But Henry had no matching siblings. Laurie and her husband then got a call from a doctor with a novel idea of combining three technologies to create a child who was guaranteed to be a genetic match, raising the question: is it ethical to create a life in order to save another?
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Show Notes:
In addition to Laurie Strongin, this episode features interviews with:
<a href="https://cancer.umn.edu/staff/john-e-wagner">John Wagner</a>, Co-Leader of the Transplantation and Cellular Therapy Program, Professor in the Division of Transplant and Cell Therapy in the Department of Pediatrics, and the McKnight-Presidential Endowed Chair, Department of Pediatrics, Division of Pediatric Blood and Marrow Transplantation &amp; Cellular Therapy, University of Minnesota
<a href="https://bioethics.jhu.edu/people/profile/jeffrey-kahn/">Jeffrey Kahn</a>, Andreas C. Dracopolous Director of the Johns Hopkins Berman Institute of Bioethics
You can learn more about Fanconi anemia, learn about the latest research, and find resources for those affected by the disease <a href="https://rarediseases.info.nih.gov/diseases/6425/fanconi-anemia">here</a>. You can read more about the Strongin-Goldbergs’ and the Nashes’ stories in this <a href="https://www.nytimes.com/2001/07/01/magazine/the-made-to-order-savior.html">New York Times article</a> from 2001. 
Laurie Strongin went on to found the <a href="https://hopeforhenry.org/">Hope for Henry Foundation</a>, which works with hospitals to help provide support and better care for pediatric patients.
To learn more about the ethics issues raised in this episode, visit the Berman Institute’s <a href="https://bioethics.jhu.edu/playinggod/episode-6">episode guide</a>.  
The Greenwall Foundation seeks to make bioethics integral to decisions in health care, policy, and research. Learn more at <a href="http://greenwall.org/">greenwall.org</a>.

Life-and-death dilemmas. New medical technologies. Controversial treatments. In playing god? we hear from the patients whose lives were transformed—and sometimes saved—by medical innovations and the bioethicists who help guide complex decisions.

Ventilators can keep critically ill people alive, but when is it acceptable to turn the machines off? Organ transplants save lives but when demand outpaces supply how do we decide who gets them? Increasingly, novel reproductive technologies can help people have babies in ways that are far beyond what nature allows. So, when should such “Brave New World” technologies be introduced and who should control them? 

playing god? is hosted by Lauren Arora Hutchinson, Director of the iDeas Lab at the Johns Hopkins Berman Institute of Bioethics. 

playing god? is a co-production of Pushkin Industries and the Berman Institute of Bioethics at Johns Hopkins University, with generous support from The Greenwall Foundation. New episodes drop every Tuesday.

The Berman Institute has created a guide for each episode where you can learn more about the guests, the history, and the ethics issues at: bioethics.jhu.edu/playing-god

Life-and-death dilemmas. New medical technologies. Controversial treatments. In playing god? we hear from the patients whose lives were transformed—and sometimes saved—by medical innovations and the bioethicists who help guide complex decisions.
Ventilators can keep critically ill people alive, but when is it acceptable to turn the machines off? Organ transplants save lives but when demand outpaces supply how do we decide who gets them? Increasingly, novel reproductive technologies can help people have babies in ways that are far beyond what nature allows. So, when should such “Brave New World” technologies be introduced and who should control them? 
playing god? is hosted by Lauren Arora Hutchinson, Director of the iDeas Lab at the Johns Hopkins Berman Institute of Bioethics. 
playing god? is a co-production of Pushkin Industries and the Berman Institute of Bioethics at Johns Hopkins University, with generous support from The Greenwall Foundation. New episodes drop every Tuesday.
The Berman Institute has created a guide for each episode where you can learn more about the guests, the history, and the ethics issues at: <a href="http://bioethics.jhu.edu/playing-god" data-saferedirecturl="https://www.google.com/url?q=http://bioethics.jhu.edu/playing-god&amp;source=gmail&amp;ust=1697728099647000&amp;usg=AOvVaw1qmlNSYneUfyWNEnZchoSU">bioethics.jhu.edu/playing-god</a>

playing god?

Creating One Life to Save Another

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/4f485bc0-2b91-4b56-94e2-b0ab012245fa/transcript

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