We spoke to Anne Stephenson, whose husband died from the disease and who is the current Chair of the Huntington's Disease Association (HDA) in Hampshire.

She speaks about the illness, its symptoms and impact on families and talks more about social life, combatting loneliness and making happy memories.

Mike Waddington, whose wife died from Huntington's in 2010, spoke to Anne about it, about Woody Guthrie and Hope.

The HDA branch can be contacted at Huntington's Disease Association - South East (hda.org.uk)