In this episode, host Naomi Creek and her guests discuss the early stages of Axial Spondyloarthritis (axSpA).

Cherie Cleland (70) lives with a non-specific form on axSpA. She has tried numerous treatments over the years and has developed other health conditions including inflammatory bowel disease and thyroid, kidney and heart issues. Cherie and her husband love travelling and cycling.

Shayne Van Der Heide (57) was diagnosed with ankylosing spondylitis at age 30 but felt very isolated with little support from his doctors. Shayne later had spinal surgeries and developed Parkinson’s disease. He lives a full life spending time with his family, managing a training organisation and cycling for exercise and enjoyment.

Cherie and Shane share their long diagnosis and treatment journeys and the impact of axSpA on their lives. They emphasise the importance of good doctor-patient communication and of getting quality information and support to help them feel less overwhelmed and alone.

Dr Michael Yoon is a rheumatologist at Campbelltown Hospital in Sydney, NSW, with a special interest in axial spondyloarthritis (axSpA). His passion for patient-centered care and clinical research drives his continuous efforts to enhance treatment approaches.

Dr Yoon explains the challenges of diagnosing axSpA as there is no definitive test and symptoms are similar to those of other conditions. Doctors rely on a mix of tests, imaging and clinical judgement. Treatment can range from anti-inflammatories to medications that suppress the immune system, along with exercise and lifestyle adjustments.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Meet the Team

Host: Naomi Creek, National Coordinator at CreakyJoints Australia.

A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.

This third season of Patient PrepRheum is produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints Australia, and made possible with support from UCB Australia.

For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

In this episode, host Naomi Creek and her guests discuss the early stages of Axial Spondyloarthritis (axSpA).
Cherie Cleland (70) lives with a non-specific form on axSpA. She has tried numerous treatments over the years and has developed other health conditions including inflammatory bowel disease and thyroid, kidney and heart issues. Cherie and her husband love travelling and cycling.
Shayne Van Der Heide (57) was diagnosed with ankylosing spondylitis at age 30 but felt very isolated with little support from his doctors. Shayne later had spinal surgeries and developed Parkinson&rsquo;s disease. He lives a full life spending time with his family, managing a training organisation and cycling for exercise and enjoyment.
Cherie and Shane share their long diagnosis and treatment journeys and the impact of axSpA on their lives. They emphasise the importance of good doctor-patient communication and of getting quality information and support to help them feel less overwhelmed and alone.
Dr Michael Yoon is a rheumatologist at Campbelltown Hospital in Sydney, NSW, with a special interest in axial spondyloarthritis (axSpA). His passion for patient-centered care and clinical research drives his continuous efforts to enhance treatment approaches.
Dr Yoon explains the challenges of diagnosing axSpA as there is no definitive test and symptoms are similar to those of other conditions. Doctors rely on a mix of tests, imaging and clinical judgement. Treatment can range from anti-inflammatories to medications that suppress the immune system, along with exercise and lifestyle adjustments.
We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to&nbsp;<a href="mailto:podcasts@ghlf.org">podcasts@ghlf.org</a>
Meet the Team
Host: Naomi Creek, National Coordinator at CreakyJoints Australia.
A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF.
This third season of&nbsp;Patient&nbsp;PrepRheum&nbsp;is produced by the non-profit&nbsp;Global Healthy Living Foundation,&nbsp;its arthritis patient community&nbsp;CreakyJoints Australia, and made possible with support from&nbsp;UCB Australia.
For more information, visit the CreakyJoints Australia website at creakyjoints.org.au

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.

At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 

In Patient PrepRheum, we are looking at three key areas:
Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;
How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and
the importance of good patient-doctor communication.

Hosted by CreakyJoints Australia National Coordinator Naomi Creek. 

For more information, visit the CreakyJoints Australia website.

Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.
At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health.&nbsp;
In Patient PrepRheum, we are looking at three key areas:
<ol>
<li>Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;</li>
<li>How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; and</li>
<li>the importance of good patient-doctor communication.</li>
</ol>
<ul></ul>
Hosted by CreakyJoints Australia National Coordinator Naomi Creek.&nbsp;
For more information, visit the CreakyJoints Australia website.

Patient PrepRheum Podcast

Patient PrepRheum is a podcast produced by Creakyjoints Australia exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. We speak to fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing autoimmune diseases.

At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 

Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit CreakyJoints Australia - https://creakyjoints.org.au/ or visit our facebook page https://www.facebook.com/creakyjoints

Patient PrepRheum is a podcast produced by Creakyjoints Australia exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. We speak to fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing autoimmune diseases.
At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. 
<ul></ul>
Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit CreakyJoints Australia - <a href="https://creakyjoints.org.au/">https://creakyjoints.org.au/</a> or visit our facebook page https://www.facebook.com/creakyjoints

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