Today, approximately 10,000 rare diseases collectively affect as many as 400 million people around the world, and women leaders have long been at the forefront of bringing awareness to these diseases and driving change. Katie Couric moderates a panel that includes Tania Simoncelli of Chan Zuckerberg Initiative, whose “Rare as One” campaign gives to rare disease researchers and support groups, Tara Zier who founded the Stiff Person Syndrome Research Foundation, Susan Dando of the Smith-Kingsmore Syndrome Foundation, and Dr. Christina Miyake, a researcher studying TANGO2 deficiency disorder. This panel will explore the resilience, determination, and ingenuity required to address the unique challenges in rare disease advocacy and research. Panelists will share their experiences in breaking barriers, leading patient-centered initiatives, and building collaborations that move the needle toward treatments and cures. #SponsoredbyCZI

Today, approximately 10,000 rare diseases collectively affect as many as 400 million people around the world, and women leaders have long been at the forefront of bringing awareness to these diseases and driving change. Katie Couric moderates a panel that includes Tania Simoncelli of Chan Zuckerberg Initiative, whose &ldquo;Rare as One&rdquo; campaign gives to rare disease researchers and support groups, Tara Zier who founded the Stiff Person Syndrome Research Foundation, Susan Dando of the Smith-Kingsmore Syndrome Foundation, and Dr. Christina Miyake, a researcher studying TANGO2 deficiency disorder. This panel will explore the resilience, determination, and ingenuity required to address the unique challenges in rare disease advocacy and research. Panelists will share their experiences in breaking barriers, leading patient-centered initiatives, and building collaborations that move the needle toward treatments and cures. #SponsoredbyCZI

Tired of political headlines that feel like déjà vu? Wondering if you actually need to care about every controversy? This season, Katie’s asking those same questions—and talking to the people who have real answers. From political insiders to sharp-eyed journalists, she’s breaking down what’s worth your attention (and what’s not), with smarts, sanity, and even a little humor. Because none of us can be tuned in 24/7—but we can stay informed without losing our minds. 

Tune in every Thursday and join Katie Couric and her guests for a conversation on NEXT QUESTION.

Tired of political headlines that feel like d&eacute;j&agrave; vu? Wondering if you actually need to care about every controversy? This season, Katie&rsquo;s asking those same questions&mdash;and talking to the people who have real answers. From political insiders to sharp-eyed journalists, she&rsquo;s breaking down what&rsquo;s worth your attention (and what&rsquo;s not), with smarts, sanity, and even a little humor. Because none of us can be tuned in 24/7&mdash;but we can stay informed without losing our minds.&nbsp;
Tune in every Thursday and join Katie Couric and her guests for a conversation on NEXT QUESTION.

Next Question with Katie Couric

Voices of Resilience: Women Leaders in the Rare Disease Community

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/3edd047a-dad5-4afc-893c-b2bc01464be7/transcript

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