In this episode Mel chats with Stacey Phillips of Tubie Fun, a business that makes products to support families and people who tube-feed. Tubie Fun was inspired by Stacey's son, Callum, who’s been tube-fed for pretty much his whole life. Callum is now six, and is one of three boys being raised by Stacey and her husband, Anthony, in Brisbane.
Both Callum and his brother Harry, 8, have NDIS plans supporting various diagnoses including level-two autism, ADHD and Ehlers-Danlos syndromes (EDS), which is a group of conditions that affect the body’s connective tissue.
Stacey, like Callum and Harry, has EDS. She also has a condition called postural orthostatic tachycardia syndrome (POTS), which is a blood circulation disorder. Stacey is in the process of applying for her own NDIS plan and shares some of this experience, as well as her son Harry’s transition out of early childhood early intervention (ECEI) to the over-7s' arm of the NDIS.
Mel and Stacey also talk about the benefits of having allied health therapists supporting kids at home, rather than in clinics, and share some nitty-gritty NDIS admin advice.
Visit Stacey's business, Tubie Fun: https://tubiefun.com.au/
Find top-notch support workers for your family: https://hireup.com.au/