In this heartfelt episode, Mick Hunt talks with Chad and Alicia about their family's battle with MPS 1 following their son's late diagnosis. They discuss the complexities of the disease, the critical role of early detection, and their dedicated efforts to raise awareness and support other affected families. Their story is not just one of challenges but also immense love, resilience, and hope.

Background: Chad and Alicia share their journey dealing with their son’s diagnosis of MPS 1, a rare genetic condition. 

Discussion Topics:
The challenges of recognizing and diagnosing MPS 1 include initial symptoms and the genetic aspects of the disease.
The emotional and practical impacts of MPS 1 on their family life, detailing their son's various treatments and their advocacy efforts.
The importance of genetic testing and early diagnosis, and the couple's involvement in legislative changes to support this cause.

Key Quotes:
"No parents should have to wait three years to get this diagnosis."
"Every single symptom he has was like checking off a box."

Next Steps:
Learn More: Dive deeper into MPS 1 and how you can support families and research.
Reflect: Consider how you can contribute to advocacy in your community for rare diseases.
Engage: Share your thoughts or stories about overcoming health challenges using #MickUnplugged.

Connect & Discover:
National MPS Society: mpssociety.org>courage>jacob-bohley★ Support this podcast on Patreon ★

In this heartfelt episode, Mick Hunt talks with Chad and Alicia about their family's battle with MPS 1 following their son's late diagnosis. They discuss the complexities of the disease, the critical role of early detection, and their dedicated efforts to raise awareness and support other affected families. Their story is not just one of challenges but also immense love, resilience, and hope.Background: Chad and Alicia share their journey dealing with their son’s diagnosis of MPS 1, a rare genetic condition. Discussion Topics:<ul><li>The challenges of recognizing and diagnosing MPS 1 include initial symptoms and the genetic aspects of the disease.</li><li>The emotional and practical impacts of MPS 1 on their family life, detailing their son's various treatments and their advocacy efforts.</li><li>The importance of genetic testing and early diagnosis, and the couple's involvement in legislative changes to support this cause.</li></ul>Key Quotes:<ul><li>"No parents should have to wait three years to get this diagnosis."</li><li>"Every single symptom he has was like checking off a box."</li></ul>Next Steps:<ul><li>Learn More: Dive deeper into MPS 1 and how you can support families and research.</li><li>Reflect: Consider how you can contribute to advocacy in your community for rare diseases.</li><li>Engage: Share your thoughts or stories about overcoming health challenges using #MickUnplugged.</li></ul>Connect &amp; Discover: National MPS Society: mpssociety.org&gt;courage&gt;jacob-bohley

 <a href="https://www.patreon.com/mickunplugged" rel="payment" title="★ Support this podcast on Patreon ★">★ Support this podcast on Patreon ★</a>

"Mick Unplugged" is a transformative podcast that challenges listeners to move beyond the conventional 'Why' and embrace the empowering realm of 'Because.' Hosted by Mick Hunt, the voice of Modern Leadership, this podcast is designed for leaders, doers, and anyone aspiring to create meaningful impact in both their personal and professional lives.

Each episode delves into the principles of Modern Leadership, focusing on discovering your 'Because'—your core driving force—and how it can turn dreams into reality and aspirations into actionable steps. With practical advice, real-life stories, and forward-thinking insights, you’ll learn to make your 'Because' a daily focus, fueling your journey toward success and fulfillment.

Whether you’re looking to deepen your motivation, set meaningful goals, or apply modern leadership theories to overcome challenges, "Mick Unplugged" provides the tools, strategies, and insights to guide your path. Subscribe now and start transforming your life with purpose and modern leadership principles.

"Mick Unplugged" is a transformative podcast that challenges listeners to move beyond the conventional 'Why' and embrace the empowering realm of 'Because.' Hosted by Mick Hunt, the voice of Modern Leadership, this podcast is designed for leaders, doers, and anyone aspiring to create meaningful impact in both their personal and professional lives.

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