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Malaine Robinson (Usher Syndrome)|#118

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What’s it like to live with Usher syndrome, a condition that causes both progressive vision loss and deafness

"I really, really struggle with the fact that my hearing loss is almost a hidden disability?"

In this episode, Malaine Robinson shares her experience of adapting to life with dual disabilities, from early diagnosis to becoming a guide dog handler and falling in love with her 'partner in crime' Dessi.

 What You’ll Learn:

  • The challenges of navigating daily life with Usher syndrome.
  • How guide dogs provide independence and mobility support.
  • The role of technology in accessibility and communication.
  • Malaine’s career journey and the adjustments she’s made along the way.
  • Her take on accessible dining and why it matters.

Whether you’re interested in the responsibility of owning a guide dog, or just want to hear a firsthand account of living without sight and sound, this episode offers a practical look at the challenges and solutions that shape Melanie’s day-to-day life.

Want to work with Mel? Check out the links below!

Watch the Full Episode with Captions Here: https://youtu.be/Ohd6IdrZhaw

Grab our first merch release at our website Session in Progress.
https://fromyourpocket.com.au/work/listenable/merch

Recorded, edited and produced by Angus' Podcast Company: www.sessioninprogress.com.au

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