Janna Linke is a 35-year old mother of two who, whilst registered as a Pharmacist, and having worked in both Hospital and Community pharmacy roles, isn't currently employed in the Pharmacy sector. This is due to ongoing chronic health conditions.
Janna was diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) at the age of 33 years, a rare connective tissue disorder.
Janna established the health advocacy brand, Zebra Blends at beginning of 2020, as it became evident to her, in her search for answers to her own health issues, that rare diseases and similarly chronic illnesses are very commonly under researched, under funded, and in turn under diagnosed. Janna hopes to change this via providing patient advocacy services to people experiencing rare disease and chronic illness.
It's hoped via the increases in exposure and awareness of these conditions, the path to diagnosis and treatment will become much smoother and quicker
Indispensable Episode 8 Invisible Disease | Making Connections
In this episode, Janna discusses HyperMobile Ehlers-Danlos Syndrome or hEDS, chronic pain and chronic fatigue syndrome and some of the medications used to help with the symptoms. The path to diagnosis for these 'invisible diseases' can be long and frustrating. Janna offers some ways to advocate for yourself and also opportunities to connect with others that may be managing these conditions. "If you can't connect the issues, think connective tissue".
5 Indispensable tips
You can connect with Janna here:
Instagram: @zebrablends
FB: Zebra Blends
Email: janna@zebrablends.com.au
Additional Links:
Rare Voices Australia (RVA)
https://www.rarevoices.org.au/
The Ehlers-Danlos Society
https://www.ehlers-danlos.com/
Emerge Australia
Unrest - Documentary Film available to watch on Netflix
Pain Australia
https://www.painaustralia.org.au/
Low Dose Naltrexone (LDN)