This week we are revisiting an insightful conversation from last year with prominent author, lawyer and Attorney General of Western Australia Tony Buti. The discussion delves into his personal experience as a father raising a child with Cri-du-chat, and the struggles Tony and his wife Mandy faced along the way. 

On the 5th day of the 5th month we recognise 5P or Cri Du Chat Syndrome with an international awareness day to shine a light on the condition. Cri Du Chat Syndrome is a rare genetic condition cause by a deletion on chromosome 5, affecting 20,000 to 50,000 births. On this day we not only recognise a rare condition but amplify lived experiences like Alkira's. 

We very much appreciated Tony coming in to talk with us; it was a moving and informative conversation.

 

This week we are revisiting an insightful conversation from last year with prominent author, lawyer and Attorney General of Western Australia Tony Buti. The discussion delves into his personal experience as a father raising a child with Cri-du-chat, and the struggles Tony and his wife Mandy faced along the way.&nbsp;
On the 5th day of the 5th month we recognise 5P or Cri Du Chat Syndrome with an international awareness day to shine a light on the condition. Cri Du Chat Syndrome is a rare genetic condition cause by a deletion on chromosome 5, affecting 20,000 to 50,000 births. On this day we not only recognise a rare condition but amplify lived experiences like Alkira's.&nbsp;
We very much appreciated Tony coming in to talk with us; it was a moving and informative conversation.
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In Plain Sight, hosted by Simon Chong and produced by Andrew Williams, is a program where we highlight the incredible stories of people who are making a positive impact in the community and disability sector. Giving a voice to dedicated disability advocates demonstrating advocacy in all its different forms, shining a light on those who might otherwise be hidden ‘in plain sight'.

Get in touch with the program team via: inplainsight@visionaustralia.org. Simon and Andrew would love to hear your feedback, thoughts and ideas.

In Plain Sight, hosted by Simon Chong and produced by Andrew Williams, is a program where we highlight the incredible stories of people who are making a positive impact in the community and disability sector. Giving a voice to dedicated disability advocates demonstrating advocacy in all its different forms, shining a light on those who might otherwise be hidden &lsquo;in plain sight'.
Get in touch with the program team via:&nbsp;<a href="mailto:inplainsight@visionaustralia.org">inplainsight@visionaustralia.org</a>. Simon and Andrew would love to hear your feedback, thoughts and ideas.

In Plain Sight

In Plain Sight by Vision Australia Radio

Cri du Chat Awareness Day - Tony Buti and Alkira

https://api.omny.fm/orgs/fa7924ac-d4fd-4bff-b1b4-ac7f006dda87/clips/925bf4d0-5665-48de-87b6-b4410049cf52/transcript