When Monica Coenraads’ daughter was diagnosed with Rett syndrome, she refused to accept that nothing could be done. As founder and CEO of the Rett Syndrome Research Trust, she has helped advance groundbreaking research aimed at treating the disorder at its genetic root. In this episode of Get Real, Monica joins Jim Weiss to discuss the personal journey that led her into rare disease advocacy, the promise of gene therapy, and what it takes to turn urgency, hope, and determination into scientific progress. This is a conversation about resilience, purpose, and the power of one family’s fight to change the future for thousands of others.

<p>When Monica Coenraads&rsquo; daughter was diagnosed with Rett syndrome, she refused to accept that nothing could be done. As founder and CEO of the Rett Syndrome Research Trust, she has helped advance groundbreaking research aimed at treating the disorder at its genetic root. In this episode of Get Real, Monica joins Jim Weiss to discuss the personal journey that led her into rare disease advocacy, the promise of gene therapy, and what it takes to turn urgency, hope, and determination into scientific progress. This is a conversation about resilience, purpose, and the power of one family&rsquo;s fight to change the future for thousands of others.</p>

As the founder of internationally acclaimed global health innovation company Real Chemistry, Jim Weiss knows that the key to success and leveraging one's mission is connection -- so he's reached out to innovators in and outside of healthcare to discuss what's now and what's next. He's interviewing world-renowned scientists, CEOs, public health experts, and the list goes on! It's time to GET REAL about the future of healthcare and how to be better health citizens.

Get Real with Jim Weiss

A Mother’s Mission to Cure Rett Syndrome with Monica Coenraads

https://api.omny.fm/orgs/e73c998e-6e60-432f-8610-ae210140c5b1/clips/72f0bc87-d479-4a7a-a5e5-b48e01192700/transcript